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Outcome measurement in pemphigus clinical research: a scoping review on heterogeneity in outcome reporting and definitions.

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Title: Outcome measurement in pemphigus clinical research: a scoping review on heterogeneity in outcome reporting and definitions.
Authors: Hiel MAJ; Department of Dermatology, Centre of Expertise for Blistering Diseases, European Reference Network for Rare Skin Diseases (ERN SKIN), University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands., Korte EWH; Department of Dermatology, Centre of Expertise for Blistering Diseases, European Reference Network for Rare Skin Diseases (ERN SKIN), University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands., Tedbirt B; Department of Dermatology, Rouen University Hospital, Normandie University and INSERM U1234, European Reference Network for Rare Skin Diseases (ERN SKIN), Centre de Référence National des Maladies Bulleuses Auto-Immunes, Rouen, France., Bolling MC; Department of Dermatology, Centre of Expertise for Blistering Diseases, European Reference Network for Rare Skin Diseases (ERN SKIN), University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands., Meijer JM; Department of Dermatology, Centre of Expertise for Blistering Diseases, European Reference Network for Rare Skin Diseases (ERN SKIN), University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands., Spuls PI; Department of Dermatology, Amsterdam UMC, Academic Medical Centre, University of Amsterdam, Amsterdam, the Netherlands.; Amsterdam Public Health, Infection and Immunity, Academic Medical Centre, University of Amsterdam, Amsterdam, the Netherlands., van der Werf S; Medical Library, University of Groningen, University Medical Centre Groningen, Groningen, the Netherlands., Yale M; International Pemphigus and Pemphigoid Foundation, Roseville, CA, USA., Horváth B; Department of Dermatology, Centre of Expertise for Blistering Diseases, European Reference Network for Rare Skin Diseases (ERN SKIN), University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands., Joly P; Department of Dermatology, Rouen University Hospital, Normandie University and INSERM U1234, European Reference Network for Rare Skin Diseases (ERN SKIN), Centre de Référence National des Maladies Bulleuses Auto-Immunes, Rouen, France.
Source: The British journal of dermatology [Br J Dermatol] 2025 Jul 17; Vol. 193 (2), pp. 221-231.
Publication Type: Journal Article; Scoping Review
Journal Info: Publisher: Oxford University Press Country of Publication: England NLM ID: 0004041 Publication Model: Print Cited Medium: Internet ISSN: 1365-2133 (Electronic) Linking ISSN: 00070963 NLM ISO Abbreviation: Br J Dermatol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Hiel+MAJ%22">Hiel MAJ</searchLink>; Department of Dermatology, Centre of Expertise for Blistering Diseases, European Reference Network for Rare Skin Diseases (ERN SKIN), University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Korte+EWH%22">Korte EWH</searchLink>; Department of Dermatology, Centre of Expertise for Blistering Diseases, European Reference Network for Rare Skin Diseases (ERN SKIN), University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Tedbirt+B%22">Tedbirt B</searchLink>; Department of Dermatology, Rouen University Hospital, Normandie University and INSERM U1234, European Reference Network for Rare Skin Diseases (ERN SKIN), Centre de Référence National des Maladies Bulleuses Auto-Immunes, Rouen, France.<br /><searchLink fieldCode="AU" term="%22Bolling+MC%22">Bolling MC</searchLink>; Department of Dermatology, Centre of Expertise for Blistering Diseases, European Reference Network for Rare Skin Diseases (ERN SKIN), University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Meijer+JM%22">Meijer JM</searchLink>; Department of Dermatology, Centre of Expertise for Blistering Diseases, European Reference Network for Rare Skin Diseases (ERN SKIN), University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Spuls+PI%22">Spuls PI</searchLink>; Department of Dermatology, Amsterdam UMC, Academic Medical Centre, University of Amsterdam, Amsterdam, the Netherlands.; Amsterdam Public Health, Infection and Immunity, Academic Medical Centre, University of Amsterdam, Amsterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22van+der+Werf+S%22">van der Werf S</searchLink>; Medical Library, University of Groningen, University Medical Centre Groningen, Groningen, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Yale+M%22">Yale M</searchLink>; International Pemphigus and Pemphigoid Foundation, Roseville, CA, USA.<br /><searchLink fieldCode="AU" term="%22Horváth+B%22">Horváth B</searchLink>; Department of Dermatology, Centre of Expertise for Blistering Diseases, European Reference Network for Rare Skin Diseases (ERN SKIN), University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Joly+P%22">Joly P</searchLink>; Department of Dermatology, Rouen University Hospital, Normandie University and INSERM U1234, European Reference Network for Rare Skin Diseases (ERN SKIN), Centre de Référence National des Maladies Bulleuses Auto-Immunes, Rouen, France.
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              Text: 2025 Jul 17
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