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Indigenous Data Sovereignty in Genomics and Human Genetics: Genomic Equity and Justice for Indigenous Peoples.

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Title: Indigenous Data Sovereignty in Genomics and Human Genetics: Genomic Equity and Justice for Indigenous Peoples.
Authors: Halmai NB; Traditional and ancestral lands of the Patwin Peoples.; Genome Center, University of California, Davis, California, USA; email: nbcoggins@ucdavis.edu., Taitingfong R; Homelands of the O'odham and contemporary lands of the Yaqui Peoples.; Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, Arizona, USA; email: stephaniecarroll@arizona.edu., Jennings LL; Ancestral and unceded lands of the Abenaki Peoples and their nonhuman relations.; Department of Environmental Studies, Dartmouth College, Hanover, New Hampshire, USA., Yracheta J; Homelands of the Oceti Sakowin (Sioux).; Native BioData Consortium, Eagle Butte, South Dakota, USA.; Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA., Garba I; Homelands of the O'odham and contemporary lands of the Yaqui Peoples.; Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, Arizona, USA; email: stephaniecarroll@arizona.edu.; Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, Arizona, USA., Lund JR; Ancestral lands of the Caddo Nation and Wichita and Affiliated Tribes and contemporary lands of the Muscogee (Creek) Nation.; Department of Anatomy and Cell Biology, Center for Health Sciences, Oklahoma State University, Tulsa, Oklahoma, USA., Curley CA; Homelands of the O'odham and contemporary lands of the Yaqui Peoples.; Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, Arizona, USA; email: stephaniecarroll@arizona.edu.; Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, Arizona, USA., Claw KG; Traditional, ancestral, and unceded territory of the Cheyenne, Arapaho, Ute, and many other Native American Nations.; Department of Biomedical Informatics, Colorado Center for Personalized Medicine, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA., Taualii M; Traditional, ancestral and unceded territory of Kanaka 'Ōiwi of Hawai'i.; Hawai'i Permanente Medical Group, Honolulu, Hawai'i, USA., Garrison NA; Traditional, ancestral and unceded territory of the Gabrielino/Tongva peoples.; Institute for Society and Genetics; Institute for Precision Health, David Geffen School of Medicine; and Division of General Internal Medicine and Health Services Research, David Geffen School of Medicine, University of California, Los Angeles, California, USA., Carroll SR; Homelands of the O'odham and contemporary lands of the Yaqui Peoples.; Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, Arizona, USA; email: stephaniecarroll@arizona.edu.; Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, Arizona, USA.
Source: Annual review of genomics and human genetics [Annu Rev Genomics Hum Genet] 2025 Aug; Vol. 26 (1), pp. 375-400. Date of Electronic Publication: 2025 Apr 18.
Publication Type: Journal Article; Review; Research Support, Non-U.S. Gov't; Research Support, N.I.H., Extramural
Journal Info: Publisher: Annual Reviews Country of Publication: United States NLM ID: 100911346 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1545-293X (Electronic) Linking ISSN: 15278204 NLM ISO Abbreviation: Annu Rev Genomics Hum Genet Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Indigenous Data Sovereignty in Genomics and Human Genetics: Genomic Equity and Justice for Indigenous Peoples.
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  Data: <searchLink fieldCode="AU" term="%22Halmai+NB%22">Halmai NB</searchLink>; Traditional and ancestral lands of the Patwin Peoples.; Genome Center, University of California, Davis, California, USA; email: nbcoggins@ucdavis.edu.<br /><searchLink fieldCode="AU" term="%22Taitingfong+R%22">Taitingfong R</searchLink>; Homelands of the O'odham and contemporary lands of the Yaqui Peoples.; Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, Arizona, USA; email: stephaniecarroll@arizona.edu.<br /><searchLink fieldCode="AU" term="%22Jennings+LL%22">Jennings LL</searchLink>; Ancestral and unceded lands of the Abenaki Peoples and their nonhuman relations.; Department of Environmental Studies, Dartmouth College, Hanover, New Hampshire, USA.<br /><searchLink fieldCode="AU" term="%22Yracheta+J%22">Yracheta J</searchLink>; Homelands of the Oceti Sakowin (Sioux).; Native BioData Consortium, Eagle Butte, South Dakota, USA.; Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.<br /><searchLink fieldCode="AU" term="%22Garba+I%22">Garba I</searchLink>; Homelands of the O'odham and contemporary lands of the Yaqui Peoples.; Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, Arizona, USA; email: stephaniecarroll@arizona.edu.; Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, Arizona, USA.<br /><searchLink fieldCode="AU" term="%22Lund+JR%22">Lund JR</searchLink>; Ancestral lands of the Caddo Nation and Wichita and Affiliated Tribes and contemporary lands of the Muscogee (Creek) Nation.; Department of Anatomy and Cell Biology, Center for Health Sciences, Oklahoma State University, Tulsa, Oklahoma, USA.<br /><searchLink fieldCode="AU" term="%22Curley+CA%22">Curley CA</searchLink>; Homelands of the O'odham and contemporary lands of the Yaqui Peoples.; Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, Arizona, USA; email: stephaniecarroll@arizona.edu.; Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, Arizona, USA.<br /><searchLink fieldCode="AU" term="%22Claw+KG%22">Claw KG</searchLink>; Traditional, ancestral, and unceded territory of the Cheyenne, Arapaho, Ute, and many other Native American Nations.; Department of Biomedical Informatics, Colorado Center for Personalized Medicine, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.<br /><searchLink fieldCode="AU" term="%22Taualii+M%22">Taualii M</searchLink>; Traditional, ancestral and unceded territory of Kanaka 'Ōiwi of Hawai'i.; Hawai'i Permanente Medical Group, Honolulu, Hawai'i, USA.<br /><searchLink fieldCode="AU" term="%22Garrison+NA%22">Garrison NA</searchLink>; Traditional, ancestral and unceded territory of the Gabrielino/Tongva peoples.; Institute for Society and Genetics; Institute for Precision Health, David Geffen School of Medicine; and Division of General Internal Medicine and Health Services Research, David Geffen School of Medicine, University of California, Los Angeles, California, USA.<br /><searchLink fieldCode="AU" term="%22Carroll+SR%22">Carroll SR</searchLink>; Homelands of the O'odham and contemporary lands of the Yaqui Peoples.; Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, Arizona, USA; email: stephaniecarroll@arizona.edu.; Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, Arizona, USA.
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  Data: <searchLink fieldCode="JN" term="%22100911346%22">Annual review of genomics and human genetics</searchLink> [Annu Rev Genomics Hum Genet] 2025 Aug; Vol. 26 (1), pp. 375-400. <i>Date of Electronic Publication: </i>2025 Apr 18.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Annual+Reviews%22">Annual Reviews </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>100911346 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1545-293X (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2215278204%22">15278204 </searchLink><i>NLM ISO Abbreviation: </i>Annu Rev Genomics Hum Genet <i>Subsets: </i>MEDLINE
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      – Type: doi
        Value: 10.1146/annurev-genom-022024-125543
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      – Code: eng
        Text: English
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        StartPage: 375
    Titles:
      – TitleFull: Indigenous Data Sovereignty in Genomics and Human Genetics: Genomic Equity and Justice for Indigenous Peoples.
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            NameFull: Halmai NB
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            – D: 01
              M: 08
              Text: 2025 Aug
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              Y: 2025
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