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Healthcare needs, care use and health status outcomes in adults with Bardet-Biedl syndrome: a cross-sectional study in Norway.

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Title: Healthcare needs, care use and health status outcomes in adults with Bardet-Biedl syndrome: a cross-sectional study in Norway.
Authors: Rustad CF; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway cerus@ous-hf.no.; Faculty of Medicine, University of Oslo, Oslo, Norway., Bragadottir R; Faculty of Medicine, University of Oslo, Oslo, Norway.; Department of Ophthalmology, Oslo University Hospital, Oslo, Norway., Nordgarden H; National Resource Centre for Oral Health in Rare Disorders, Lovisenberg Diakonale Hospital, Oslo, Norway., Miller JU; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway., Weedon-Fekjær MS; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway., Arfa S; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway., Åsten PM; National Resource Centre for Oral Health in Rare Disorders, Lovisenberg Diakonale Hospital, Oslo, Norway., Tveten K; Department of Medical Genetics, Telemark Hospital, Skien, Telemark, Norway., von der Lippe C; Department of Medical Genetics, Telemark Hospital, Skien, Telemark, Norway., Sigurdardottir S; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway.
Source: BMJ open [BMJ Open] 2025 Apr 22; Vol. 15 (4), pp. e095986. Date of Electronic Publication: 2025 Apr 22.
Publication Type: Journal Article; Observational Study
Journal Info: Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN: 2044-6055 (Electronic) Linking ISSN: 20446055 NLM ISO Abbreviation: BMJ Open Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Healthcare needs, care use and health status outcomes in adults with Bardet-Biedl syndrome: a cross-sectional study in Norway.
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  Data: <searchLink fieldCode="AU" term="%22Rustad+CF%22">Rustad CF</searchLink>; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway cerus@ous-hf.no.; Faculty of Medicine, University of Oslo, Oslo, Norway.<br /><searchLink fieldCode="AU" term="%22Bragadottir+R%22">Bragadottir R</searchLink>; Faculty of Medicine, University of Oslo, Oslo, Norway.; Department of Ophthalmology, Oslo University Hospital, Oslo, Norway.<br /><searchLink fieldCode="AU" term="%22Nordgarden+H%22">Nordgarden H</searchLink>; National Resource Centre for Oral Health in Rare Disorders, Lovisenberg Diakonale Hospital, Oslo, Norway.<br /><searchLink fieldCode="AU" term="%22Miller+JU%22">Miller JU</searchLink>; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway.<br /><searchLink fieldCode="AU" term="%22Weedon-Fekjær+MS%22">Weedon-Fekjær MS</searchLink>; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway.<br /><searchLink fieldCode="AU" term="%22Arfa+S%22">Arfa S</searchLink>; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway.<br /><searchLink fieldCode="AU" term="%22Åsten+PM%22">Åsten PM</searchLink>; National Resource Centre for Oral Health in Rare Disorders, Lovisenberg Diakonale Hospital, Oslo, Norway.<br /><searchLink fieldCode="AU" term="%22Tveten+K%22">Tveten K</searchLink>; Department of Medical Genetics, Telemark Hospital, Skien, Telemark, Norway.<br /><searchLink fieldCode="AU" term="%22von+der+Lippe+C%22">von der Lippe C</searchLink>; Department of Medical Genetics, Telemark Hospital, Skien, Telemark, Norway.<br /><searchLink fieldCode="AU" term="%22Sigurdardottir+S%22">Sigurdardottir S</searchLink>; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway.
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              Text: 2025 Apr 22
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