Healthcare needs, care use and health status outcomes in adults with Bardet-Biedl syndrome: a cross-sectional study in Norway.
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| Title: | Healthcare needs, care use and health status outcomes in adults with Bardet-Biedl syndrome: a cross-sectional study in Norway. |
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| Authors: | Rustad CF; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway cerus@ous-hf.no.; Faculty of Medicine, University of Oslo, Oslo, Norway., Bragadottir R; Faculty of Medicine, University of Oslo, Oslo, Norway.; Department of Ophthalmology, Oslo University Hospital, Oslo, Norway., Nordgarden H; National Resource Centre for Oral Health in Rare Disorders, Lovisenberg Diakonale Hospital, Oslo, Norway., Miller JU; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway., Weedon-Fekjær MS; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway., Arfa S; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway., Åsten PM; National Resource Centre for Oral Health in Rare Disorders, Lovisenberg Diakonale Hospital, Oslo, Norway., Tveten K; Department of Medical Genetics, Telemark Hospital, Skien, Telemark, Norway., von der Lippe C; Department of Medical Genetics, Telemark Hospital, Skien, Telemark, Norway., Sigurdardottir S; Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway. |
| Source: | BMJ open [BMJ Open] 2025 Apr 22; Vol. 15 (4), pp. e095986. Date of Electronic Publication: 2025 Apr 22. |
| Publication Type: | Journal Article; Observational Study |
| Journal Info: | Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN: 2044-6055 (Electronic) Linking ISSN: 20446055 NLM ISO Abbreviation: BMJ Open Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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