MeDeMSA care study protocol: developing personalized best medical care with integrated mobile palliative and telemedicine support for individuals with multiple system atrophy.
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| Title: | MeDeMSA care study protocol: developing personalized best medical care with integrated mobile palliative and telemedicine support for individuals with multiple system atrophy. |
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| Authors: | Fanciulli A; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria. alessandra.fanciulli@i-med.ac.at., Caliò B; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Schmidt S; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Goebel G; EPICENTER - Institute of Clinical Epidemiology, Public Health, Health Economics, Medical Statistics and Informatics, Medical University of Innsbruck, Innsbruck, Austria., Leys F; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Radl K; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Breitegger C; Department of Health Care Ethics, University of Graz, Graz, Austria., Arvandi M; Institute of Public Health, Medical Decision Making and Health Technology Assessment, Department of Public Health, Health Services Research and Health Technology Assessment, UMIT TIROL-University for Health Sciences and Technology, Hall in Tirol, Austria., Blum A; Department of Psychiatry, Psychotherapy, Psychosomatics, and Medical Psychology, University Clinic of Psychiatry II, Innsbruck Medical University, Innsbruck, Austria., Gabl C; Tyrolean Regional Institute for Integrated Palliative and Hospice Care, Tiroler Hospiz Gemeinschaft, Hall in Tirol, Austria., Galvan O; Department for Hearing, Speech and Voice Disorders, Medical University of Innsbruck, Innsbruck, Austria., Herms A; Neuro-Urology Unit, Department of Urology, Medical University of Innsbruck, Innsbruck, Austria., Högl B; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Holzner B; Institute of Public Health, Medical Decision Making and Health Technology Assessment, Department of Public Health, Health Services Research and Health Technology Assessment, UMIT TIROL-University for Health Sciences and Technology, Hall in Tirol, Austria.; University Clinic of Psychiatry I, Innsbruck Medical University, Innsbruck, Austria., Jagusch F; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Kiechl S; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Knoflach-Gabis A; Tyrolean Regional Institute for Integrated Palliative and Hospice Care, Tiroler Hospiz Gemeinschaft, Hall in Tirol, Austria., Koegl M; Department of Neurology, Medical University of Graz, Graz, Austria., Kuchin I; Institute of Public Health, Medical Decision Making and Health Technology Assessment, Department of Public Health, Health Services Research and Health Technology Assessment, UMIT TIROL-University for Health Sciences and Technology, Hall in Tirol, Austria., Lorenzl S; Institute of Palliative Care, Paracelsus Medical University, Salzburg, Austria., Poewe W; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Prajczer S; Tyrolean Regional Institute for Integrated Palliative and Hospice Care, Tiroler Hospiz Gemeinschaft, Hall in Tirol, Austria., Rumpold G; Department of Psychiatry, Psychotherapy, Psychosomatics, and Medical Psychology, University Clinic of Psychiatry II, Innsbruck Medical University, Innsbruck, Austria., Schlager A; Department of Anesthesiology and Intensive Care Medicine, Medical University of Innsbruck, Innsbruck, Austria., Schrag A; Department of Neurology, University College London, London, UK., Seppi K; Department of Neurology, Provincial Hospital of Kufstein, Kufstein, Austria., Siebert U; Institute of Public Health, Medical Decision Making and Health Technology Assessment, Department of Public Health, Health Services Research and Health Technology Assessment, UMIT TIROL-University for Health Sciences and Technology, Hall in Tirol, Austria.; Institute for Technology Assessment and Department of Radiology, Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA.; Center for Health Decision Science and Departments of Epidemiology and Health Policy & Management, Harvard T.H. Chan School of Public Health, Boston, MA, USA., Schönherr G; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Sroczynski G; University Clinic of Psychiatry I, Innsbruck Medical University, Innsbruck, Austria., Schmidhuber M; Department of Health Care Ethics, University of Graz, Graz, Austria., Schwingenschuh P; Neuro-Urology Unit, Department of Urology, Medical University of Innsbruck, Innsbruck, Austria., Jahn B; University Clinic of Psychiatry I, Innsbruck Medical University, Innsbruck, Austria., Krismer F; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Wenning GK; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria. |
| Source: | Journal of neural transmission (Vienna, Austria : 1996) [J Neural Transm (Vienna)] 2026 May; Vol. 133 (5), pp. 903-917. Date of Electronic Publication: 2025 May 24. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: Springer-Verlag Country of Publication: Austria NLM ID: 9702341 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1435-1463 (Electronic) Linking ISSN: 03009564 NLM ISO Abbreviation: J Neural Transm (Vienna) Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| Header | DbId: mdl DbLabel: MEDLINE Ultimate An: 40411588 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: MeDeMSA care study protocol: developing personalized best medical care with integrated mobile palliative and telemedicine support for individuals with multiple system atrophy. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AU" term="%22Fanciulli+A%22">Fanciulli A</searchLink>; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria. alessandra.fanciulli@i-med.ac.at.<br /><searchLink fieldCode="AU" term="%22Caliò+B%22">Caliò B</searchLink>; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Schmidt+S%22">Schmidt S</searchLink>; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Goebel+G%22">Goebel G</searchLink>; EPICENTER - Institute of Clinical Epidemiology, Public Health, Health Economics, Medical Statistics and Informatics, Medical University of Innsbruck, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Leys+F%22">Leys F</searchLink>; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Radl+K%22">Radl K</searchLink>; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Breitegger+C%22">Breitegger C</searchLink>; Department of Health Care Ethics, University of Graz, Graz, Austria.<br /><searchLink fieldCode="AU" term="%22Arvandi+M%22">Arvandi M</searchLink>; Institute of Public Health, Medical Decision Making and Health Technology Assessment, Department of Public Health, Health Services Research and Health Technology Assessment, UMIT TIROL-University for Health Sciences and Technology, Hall in Tirol, Austria.<br /><searchLink fieldCode="AU" term="%22Blum+A%22">Blum A</searchLink>; Department of Psychiatry, Psychotherapy, Psychosomatics, and Medical Psychology, University Clinic of Psychiatry II, Innsbruck Medical University, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Gabl+C%22">Gabl C</searchLink>; Tyrolean Regional Institute for Integrated Palliative and Hospice Care, Tiroler Hospiz Gemeinschaft, Hall in Tirol, Austria.<br /><searchLink fieldCode="AU" term="%22Galvan+O%22">Galvan O</searchLink>; Department for Hearing, Speech and Voice Disorders, Medical University of Innsbruck, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Herms+A%22">Herms A</searchLink>; Neuro-Urology Unit, Department of Urology, Medical University of Innsbruck, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Högl+B%22">Högl B</searchLink>; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Holzner+B%22">Holzner B</searchLink>; Institute of Public Health, Medical Decision Making and Health Technology Assessment, Department of Public Health, Health Services Research and Health Technology Assessment, UMIT TIROL-University for Health Sciences and Technology, Hall in Tirol, Austria.; University Clinic of Psychiatry I, Innsbruck Medical University, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Jagusch+F%22">Jagusch F</searchLink>; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Kiechl+S%22">Kiechl S</searchLink>; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Knoflach-Gabis+A%22">Knoflach-Gabis A</searchLink>; Tyrolean Regional Institute for Integrated Palliative and Hospice Care, Tiroler Hospiz Gemeinschaft, Hall in Tirol, Austria.<br /><searchLink fieldCode="AU" term="%22Koegl+M%22">Koegl M</searchLink>; Department of Neurology, Medical University of Graz, Graz, Austria.<br /><searchLink fieldCode="AU" term="%22Kuchin+I%22">Kuchin I</searchLink>; Institute of Public Health, Medical Decision Making and Health Technology Assessment, Department of Public Health, Health Services Research and Health Technology Assessment, UMIT TIROL-University for Health Sciences and Technology, Hall in Tirol, Austria.<br /><searchLink fieldCode="AU" term="%22Lorenzl+S%22">Lorenzl S</searchLink>; Institute of Palliative Care, Paracelsus Medical University, Salzburg, Austria.<br /><searchLink fieldCode="AU" term="%22Poewe+W%22">Poewe W</searchLink>; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Prajczer+S%22">Prajczer S</searchLink>; Tyrolean Regional Institute for Integrated Palliative and Hospice Care, Tiroler Hospiz Gemeinschaft, Hall in Tirol, Austria.<br /><searchLink fieldCode="AU" term="%22Rumpold+G%22">Rumpold G</searchLink>; Department of Psychiatry, Psychotherapy, Psychosomatics, and Medical Psychology, University Clinic of Psychiatry II, Innsbruck Medical University, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Schlager+A%22">Schlager A</searchLink>; Department of Anesthesiology and Intensive Care Medicine, Medical University of Innsbruck, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Schrag+A%22">Schrag A</searchLink>; Department of Neurology, University College London, London, UK.<br /><searchLink fieldCode="AU" term="%22Seppi+K%22">Seppi K</searchLink>; Department of Neurology, Provincial Hospital of Kufstein, Kufstein, Austria.<br /><searchLink fieldCode="AU" term="%22Siebert+U%22">Siebert U</searchLink>; Institute of Public Health, Medical Decision Making and Health Technology Assessment, Department of Public Health, Health Services Research and Health Technology Assessment, UMIT TIROL-University for Health Sciences and Technology, Hall in Tirol, Austria.; Institute for Technology Assessment and Department of Radiology, Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA.; Center for Health Decision Science and Departments of Epidemiology and Health Policy & Management, Harvard T.H. Chan School of Public Health, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Schönherr+G%22">Schönherr G</searchLink>; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Sroczynski+G%22">Sroczynski G</searchLink>; University Clinic of Psychiatry I, Innsbruck Medical University, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Schmidhuber+M%22">Schmidhuber M</searchLink>; Department of Health Care Ethics, University of Graz, Graz, Austria.<br /><searchLink fieldCode="AU" term="%22Schwingenschuh+P%22">Schwingenschuh P</searchLink>; Neuro-Urology Unit, Department of Urology, Medical University of Innsbruck, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Jahn+B%22">Jahn B</searchLink>; University Clinic of Psychiatry I, Innsbruck Medical University, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Krismer+F%22">Krismer F</searchLink>; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria.<br /><searchLink fieldCode="AU" term="%22Wenning+GK%22">Wenning GK</searchLink>; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria. – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%229702341%22">Journal of neural transmission (Vienna, Austria : 1996)</searchLink> [J Neural Transm (Vienna)] 2026 May; Vol. 133 (5), pp. 903-917. <i>Date of Electronic Publication: </i>2025 May 24. – Name: TypePub Label: Publication Type Group: TypPub Data: Journal Article – Name: TitleSource Label: Journal Info Group: Src Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Springer-Verlag%22">Springer-Verlag </searchLink><i>Country of Publication: </i>Austria <i>NLM ID: </i>9702341 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1435-1463 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2203009564%22">03009564 </searchLink><i>NLM ISO Abbreviation: </i>J Neural Transm (Vienna) <i>Subsets: </i>MEDLINE |
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