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Pediatric to adult care transfer in rare liver diseases: Recommendations based on insights from a European omnistakeholder event.

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Title: Pediatric to adult care transfer in rare liver diseases: Recommendations based on insights from a European omnistakeholder event.
Authors: Vanden Wyngaert K; Department of Internal Medicine and Pediatrics, Faculty of Health Sciences, Ghent University, Ghent, Belgium.; Centre for Nursing Excellence, Ghent University Hospital, Ghent, Belgium.; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany., Suykens J; Department of Internal Medicine and Pediatrics, Faculty of Health Sciences, Ghent University, Ghent, Belgium.; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Liver Research Center Ghent, Ghent University, Ghent University Hospital, Ghent, Belgium., Kelly D; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Paediatric Hepatology, Birmingham Women's Hospital, Birmingham, UK., Goncalves I; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Pediatric Liver Transplant and Hepatology Unit, Unidade Local de Saúde de Coimbra, Coimbra, Portugal., Thomsen EL; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Pediatrics and Adolescent Medicine, Copenhagen University Hospital, Rigshospitalet, Denmark., Willemse J; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Dutch Liver Patients Association, Hoogland, The Netherlands., Mariño Z; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Liver Unit, Hospital Clinic Barcelona, IDIBAPS, CIBERehd, ERN-RARE Liver, Universitat de Barcelona, Barcelona, Spain., Madaleno J; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Internal Medicine Department, University Hospital Coimbra, Coimbra, Portugal., Day J; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Institute of Liver Studies, King's College Hospital, London, UK., Samyn M; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Paediatric Liver, Gastroenterology & Nutrition Centre, King's College Hospital, London, UK., Ali M; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Paediatric Liver, Gastroenterology & Nutrition Centre, King's College Hospital, London, UK., Jørgensen MH; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Pediatric and Adolescent Medicine, JMC, Rigshospitalet, Copenhagen, Denmark., Goossens E; Department of Patient Care, Antwerp University Hospital, Antwerp, Belgium., De Munter J; Cancer Centre University Hospital Ghent, Ghent, Belgium., Staa AV; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands., Wray J; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Critical Care and Cardiorespiratory Department, Great Ormond Street Hospital for Children NHS Foundation Trust, Great Ormond Street, London, UK., Protopapa P; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Paediatric Liver, GI, and Nutrition Centre, Archbishop Makarios III Hospital, Nicosia, Cyprus., Lohse A; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Internal Medicine and Gastroenterology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany., De Bruyne R; Department of Internal Medicine and Pediatrics, Faculty of Health Sciences, Ghent University, Ghent, Belgium.; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Pediatric Gastroenterology, Ghent University Hospital, Ghent, Belgium.
Source: JHEP reports : innovation in hepatology [JHEP Rep] 2025 Mar 26; Vol. 7 (6), pp. 101403. Date of Electronic Publication: 2025 Mar 26 (Print Publication: 2025).
Publication Type: Journal Article
Journal Info: Publisher: Elsevier B.V Country of Publication: Netherlands NLM ID: 101761237 Publication Model: eCollection Cited Medium: Internet ISSN: 2589-5559 (Electronic) Linking ISSN: 25895559 NLM ISO Abbreviation: JHEP Rep Subsets: PubMed not MEDLINE
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  Data: Pediatric to adult care transfer in rare liver diseases: Recommendations based on insights from a European omnistakeholder event.
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  Data: <searchLink fieldCode="AU" term="%22Vanden+Wyngaert+K%22">Vanden Wyngaert K</searchLink>; Department of Internal Medicine and Pediatrics, Faculty of Health Sciences, Ghent University, Ghent, Belgium.; Centre for Nursing Excellence, Ghent University Hospital, Ghent, Belgium.; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22Suykens+J%22">Suykens J</searchLink>; Department of Internal Medicine and Pediatrics, Faculty of Health Sciences, Ghent University, Ghent, Belgium.; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Liver Research Center Ghent, Ghent University, Ghent University Hospital, Ghent, Belgium.<br /><searchLink fieldCode="AU" term="%22Kelly+D%22">Kelly D</searchLink>; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Paediatric Hepatology, Birmingham Women's Hospital, Birmingham, UK.<br /><searchLink fieldCode="AU" term="%22Goncalves+I%22">Goncalves I</searchLink>; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Pediatric Liver Transplant and Hepatology Unit, Unidade Local de Saúde de Coimbra, Coimbra, Portugal.<br /><searchLink fieldCode="AU" term="%22Thomsen+EL%22">Thomsen EL</searchLink>; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Pediatrics and Adolescent Medicine, Copenhagen University Hospital, Rigshospitalet, Denmark.<br /><searchLink fieldCode="AU" term="%22Willemse+J%22">Willemse J</searchLink>; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Dutch Liver Patients Association, Hoogland, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Mariño+Z%22">Mariño Z</searchLink>; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Liver Unit, Hospital Clinic Barcelona, IDIBAPS, CIBERehd, ERN-RARE Liver, Universitat de Barcelona, Barcelona, Spain.<br /><searchLink fieldCode="AU" term="%22Madaleno+J%22">Madaleno J</searchLink>; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Internal Medicine Department, University Hospital Coimbra, Coimbra, Portugal.<br /><searchLink fieldCode="AU" term="%22Day+J%22">Day J</searchLink>; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Institute of Liver Studies, King's College Hospital, London, UK.<br /><searchLink fieldCode="AU" term="%22Samyn+M%22">Samyn M</searchLink>; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Paediatric Liver, Gastroenterology & Nutrition Centre, King's College Hospital, London, UK.<br /><searchLink fieldCode="AU" term="%22Ali+M%22">Ali M</searchLink>; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Paediatric Liver, Gastroenterology & Nutrition Centre, King's College Hospital, London, UK.<br /><searchLink fieldCode="AU" term="%22Jørgensen+MH%22">Jørgensen MH</searchLink>; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Pediatric and Adolescent Medicine, JMC, Rigshospitalet, Copenhagen, Denmark.<br /><searchLink fieldCode="AU" term="%22Goossens+E%22">Goossens E</searchLink>; Department of Patient Care, Antwerp University Hospital, Antwerp, Belgium.<br /><searchLink fieldCode="AU" term="%22De+Munter+J%22">De Munter J</searchLink>; Cancer Centre University Hospital Ghent, Ghent, Belgium.<br /><searchLink fieldCode="AU" term="%22Staa+AV%22">Staa AV</searchLink>; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Wray+J%22">Wray J</searchLink>; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Critical Care and Cardiorespiratory Department, Great Ormond Street Hospital for Children NHS Foundation Trust, Great Ormond Street, London, UK.<br /><searchLink fieldCode="AU" term="%22Protopapa+P%22">Protopapa P</searchLink>; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Paediatric Liver, GI, and Nutrition Centre, Archbishop Makarios III Hospital, Nicosia, Cyprus.<br /><searchLink fieldCode="AU" term="%22Lohse+A%22">Lohse A</searchLink>; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Internal Medicine and Gastroenterology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22De+Bruyne+R%22">De Bruyne R</searchLink>; Department of Internal Medicine and Pediatrics, Faculty of Health Sciences, Ghent University, Ghent, Belgium.; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Pediatric Gastroenterology, Ghent University Hospital, Ghent, Belgium.
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  Data: <searchLink fieldCode="JN" term="%22101761237%22">JHEP reports : innovation in hepatology</searchLink> [JHEP Rep] 2025 Mar 26; Vol. 7 (6), pp. 101403. <i>Date of Electronic Publication: </i>2025 Mar 26 (<i>Print Publication: </i>2025).
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Elsevier+B%2EV%22">Elsevier B.V </searchLink><i>Country of Publication: </i>Netherlands <i>NLM ID: </i>101761237 <i>Publication Model: </i>eCollection <i>Cited Medium: </i>Internet <i>ISSN: </i>2589-5559 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2225895559%22">25895559 </searchLink><i>NLM ISO Abbreviation: </i>JHEP Rep <i>Subsets: </i>PubMed not MEDLINE
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