Pediatric to adult care transfer in rare liver diseases: Recommendations based on insights from a European omnistakeholder event.
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| Title: | Pediatric to adult care transfer in rare liver diseases: Recommendations based on insights from a European omnistakeholder event. |
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| Authors: | Vanden Wyngaert K; Department of Internal Medicine and Pediatrics, Faculty of Health Sciences, Ghent University, Ghent, Belgium.; Centre for Nursing Excellence, Ghent University Hospital, Ghent, Belgium.; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany., Suykens J; Department of Internal Medicine and Pediatrics, Faculty of Health Sciences, Ghent University, Ghent, Belgium.; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Liver Research Center Ghent, Ghent University, Ghent University Hospital, Ghent, Belgium., Kelly D; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Paediatric Hepatology, Birmingham Women's Hospital, Birmingham, UK., Goncalves I; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Pediatric Liver Transplant and Hepatology Unit, Unidade Local de Saúde de Coimbra, Coimbra, Portugal., Thomsen EL; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Pediatrics and Adolescent Medicine, Copenhagen University Hospital, Rigshospitalet, Denmark., Willemse J; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Dutch Liver Patients Association, Hoogland, The Netherlands., Mariño Z; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Liver Unit, Hospital Clinic Barcelona, IDIBAPS, CIBERehd, ERN-RARE Liver, Universitat de Barcelona, Barcelona, Spain., Madaleno J; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Internal Medicine Department, University Hospital Coimbra, Coimbra, Portugal., Day J; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Institute of Liver Studies, King's College Hospital, London, UK., Samyn M; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Paediatric Liver, Gastroenterology & Nutrition Centre, King's College Hospital, London, UK., Ali M; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Paediatric Liver, Gastroenterology & Nutrition Centre, King's College Hospital, London, UK., Jørgensen MH; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Pediatric and Adolescent Medicine, JMC, Rigshospitalet, Copenhagen, Denmark., Goossens E; Department of Patient Care, Antwerp University Hospital, Antwerp, Belgium., De Munter J; Cancer Centre University Hospital Ghent, Ghent, Belgium., Staa AV; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands., Wray J; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Critical Care and Cardiorespiratory Department, Great Ormond Street Hospital for Children NHS Foundation Trust, Great Ormond Street, London, UK., Protopapa P; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Paediatric Liver, GI, and Nutrition Centre, Archbishop Makarios III Hospital, Nicosia, Cyprus., Lohse A; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Internal Medicine and Gastroenterology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany., De Bruyne R; Department of Internal Medicine and Pediatrics, Faculty of Health Sciences, Ghent University, Ghent, Belgium.; European Reference Network of Hepatological Diseases (ERN-RARE LIVER), Hamburg, Germany.; Department of Pediatric Gastroenterology, Ghent University Hospital, Ghent, Belgium. |
| Source: | JHEP reports : innovation in hepatology [JHEP Rep] 2025 Mar 26; Vol. 7 (6), pp. 101403. Date of Electronic Publication: 2025 Mar 26 (Print Publication: 2025). |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: Elsevier B.V Country of Publication: Netherlands NLM ID: 101761237 Publication Model: eCollection Cited Medium: Internet ISSN: 2589-5559 (Electronic) Linking ISSN: 25895559 NLM ISO Abbreviation: JHEP Rep Subsets: PubMed not MEDLINE |
| Database: | MEDLINE Ultimate |
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