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Recommended measurement protocols for sickle cell disease in the PhenX toolkit: psychosocial factors and social determinants of health.

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Title: Recommended measurement protocols for sickle cell disease in the PhenX toolkit: psychosocial factors and social determinants of health.
Authors: Crosby LE; Division of Behavioral Medicine and Clinical Psychology, Children's Hospital Medical Center, Cincinnati, OH, 45229, United States.; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, 45229, United States., Williford DN; Division of Behavioral Medicine and Clinical Psychology, Children's Hospital Medical Center, Cincinnati, OH, 45229, United States.; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, 45229, United States., King AA; Pediatric Hematology/Oncology, Washington University School of Medicine, Saint Louis, MO, 63110, United States., Porter JS; Department of Psychology and Biobehavioral Sciences, St. Jude Children's Research Hospital, Memphis, TN, 38105, United States., Badawy SM; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, 60611, United States.; Division of Hematology, Oncology and Stem Cell Transplantation, Lurie Children's Hospital of Chicago, Chicago, IL, 60611, United States., Bulgin D; The University of Tennessee, Knoxville College of Nursing, Knoxville, TN, 37996, United States., Hardy SJ; Departments of Psychiatry & Behavioral Sciences and Pediatrics, George Washington University School of Medicine and Health Sciences, Washington, DC, 20037, United States.; Division of Hematology, Children's National Hospital, Washington, DC, 20010, United States., Arnold SD; Aflac Cancer and Blood Disorders Center, Children's Healthcare of Atlanta, Atlanta, GA, 30322, United States.; Department of Pediatrics, Emory University, Atlanta, GA, 30322, United States., Treadwell M; University of California San Francisco (UCSF) Benioff Children's Hospital Oakland, Oakland, CA, 94609, United States.; UCSF, Oakland, CA, 94609, United States., Huggins W; RTI International, Research Triangle Park, NC, 27709, United States., Ives C; RTI International, Research Triangle Park, NC, 27709, United States., Sullivan M; RTI International, Research Triangle Park, NC, 27709, United States., Hamilton CM; RTI International, Research Triangle Park, NC, 27709, United States.
Source: Journal of sickle cell disease [J Sick Cell Dis] 2025 Jun 10; Vol. 2 (1), pp. yoaf019. Date of Electronic Publication: 2025 Jun 10 (Print Publication: 2025).
Publication Type: Journal Article
Journal Info: Publisher: Oxford University Press Country of Publication: England NLM ID: 9918991895506676 Publication Model: eCollection Cited Medium: Internet ISSN: 3029-0473 (Electronic) Linking ISSN: 30290473 NLM ISO Abbreviation: J Sick Cell Dis Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Crosby+LE%22">Crosby LE</searchLink>; Division of Behavioral Medicine and Clinical Psychology, Children's Hospital Medical Center, Cincinnati, OH, 45229, United States.; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, 45229, United States.<br /><searchLink fieldCode="AU" term="%22Williford+DN%22">Williford DN</searchLink>; Division of Behavioral Medicine and Clinical Psychology, Children's Hospital Medical Center, Cincinnati, OH, 45229, United States.; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, 45229, United States.<br /><searchLink fieldCode="AU" term="%22King+AA%22">King AA</searchLink>; Pediatric Hematology/Oncology, Washington University School of Medicine, Saint Louis, MO, 63110, United States.<br /><searchLink fieldCode="AU" term="%22Porter+JS%22">Porter JS</searchLink>; Department of Psychology and Biobehavioral Sciences, St. Jude Children's Research Hospital, Memphis, TN, 38105, United States.<br /><searchLink fieldCode="AU" term="%22Badawy+SM%22">Badawy SM</searchLink>; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, 60611, United States.; Division of Hematology, Oncology and Stem Cell Transplantation, Lurie Children's Hospital of Chicago, Chicago, IL, 60611, United States.<br /><searchLink fieldCode="AU" term="%22Bulgin+D%22">Bulgin D</searchLink>; The University of Tennessee, Knoxville College of Nursing, Knoxville, TN, 37996, United States.<br /><searchLink fieldCode="AU" term="%22Hardy+SJ%22">Hardy SJ</searchLink>; Departments of Psychiatry & Behavioral Sciences and Pediatrics, George Washington University School of Medicine and Health Sciences, Washington, DC, 20037, United States.; Division of Hematology, Children's National Hospital, Washington, DC, 20010, United States.<br /><searchLink fieldCode="AU" term="%22Arnold+SD%22">Arnold SD</searchLink>; Aflac Cancer and Blood Disorders Center, Children's Healthcare of Atlanta, Atlanta, GA, 30322, United States.; Department of Pediatrics, Emory University, Atlanta, GA, 30322, United States.<br /><searchLink fieldCode="AU" term="%22Treadwell+M%22">Treadwell M</searchLink>; University of California San Francisco (UCSF) Benioff Children's Hospital Oakland, Oakland, CA, 94609, United States.; UCSF, Oakland, CA, 94609, United States.<br /><searchLink fieldCode="AU" term="%22Huggins+W%22">Huggins W</searchLink>; RTI International, Research Triangle Park, NC, 27709, United States.<br /><searchLink fieldCode="AU" term="%22Ives+C%22">Ives C</searchLink>; RTI International, Research Triangle Park, NC, 27709, United States.<br /><searchLink fieldCode="AU" term="%22Sullivan+M%22">Sullivan M</searchLink>; RTI International, Research Triangle Park, NC, 27709, United States.<br /><searchLink fieldCode="AU" term="%22Hamilton+CM%22">Hamilton CM</searchLink>; RTI International, Research Triangle Park, NC, 27709, United States.
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  Data: <searchLink fieldCode="JN" term="%229918991895506676%22">Journal of sickle cell disease</searchLink> [J Sick Cell Dis] 2025 Jun 10; Vol. 2 (1), pp. yoaf019. <i>Date of Electronic Publication: </i>2025 Jun 10 (<i>Print Publication: </i>2025).
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Oxford+University+Press%22">Oxford University Press </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>9918991895506676 <i>Publication Model: </i>eCollection <i>Cited Medium: </i>Internet <i>ISSN: </i>3029-0473 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2230290473%22">30290473 </searchLink><i>NLM ISO Abbreviation: </i>J Sick Cell Dis <i>Subsets: </i>PubMed not MEDLINE
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