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Symptoms, unmet needs, and quality of life in Erdheim-Chester disease: a longitudinal registry-based analysis.

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Title: Symptoms, unmet needs, and quality of life in Erdheim-Chester disease: a longitudinal registry-based analysis.
Authors: Marathe PH; Department of Pediatrics, Memorial Sloan Kettering Cancer Center, New York, NY., Reiner AS; Department of Epidemiology and Biostatistics, Memorial Sloan Kettering Cancer Center, New York, NY., Bossert D; Department of Neurology, Memorial Sloan Kettering Cancer Center, New York, NY., Sigler AM; Department of Neurology, Memorial Sloan Kettering Cancer Center, New York, NY., Fournier D; Histiocytosis Association, Pitman, NJ., Brewer K; Erdheim-Chester Disease Global Alliance, DeRidder, LA., Goyal G; Division of Hematology-Oncology, The University of Alabama at Birmingham, Birmingham, AL., Atkinson TM; Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY., Mao JJ; Integrative Medicine Service, Department of Medicine, Memorial Sloan Kettering Cancer Center, New York, NY., Panageas KS; Department of Epidemiology and Biostatistics, Memorial Sloan Kettering Cancer Center, New York, NY., Diamond EL; Department of Neurology, Memorial Sloan Kettering Cancer Center, New York, NY.; Early Drug Development Service, Department of Medicine, Memorial Sloan Kettering Cancer Center, New York, NY.
Source: Blood advances [Blood Adv] 2025 Sep 09; Vol. 9 (17), pp. 4415-4424.
Publication Type: Journal Article
Journal Info: Publisher: American Society of Hematology Country of Publication: United States NLM ID: 101698425 Publication Model: Print Cited Medium: Internet ISSN: 2473-9537 (Electronic) Linking ISSN: 24739529 NLM ISO Abbreviation: Blood Adv Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Marathe+PH%22">Marathe PH</searchLink>; Department of Pediatrics, Memorial Sloan Kettering Cancer Center, New York, NY.<br /><searchLink fieldCode="AU" term="%22Reiner+AS%22">Reiner AS</searchLink>; Department of Epidemiology and Biostatistics, Memorial Sloan Kettering Cancer Center, New York, NY.<br /><searchLink fieldCode="AU" term="%22Bossert+D%22">Bossert D</searchLink>; Department of Neurology, Memorial Sloan Kettering Cancer Center, New York, NY.<br /><searchLink fieldCode="AU" term="%22Sigler+AM%22">Sigler AM</searchLink>; Department of Neurology, Memorial Sloan Kettering Cancer Center, New York, NY.<br /><searchLink fieldCode="AU" term="%22Fournier+D%22">Fournier D</searchLink>; Histiocytosis Association, Pitman, NJ.<br /><searchLink fieldCode="AU" term="%22Brewer+K%22">Brewer K</searchLink>; Erdheim-Chester Disease Global Alliance, DeRidder, LA.<br /><searchLink fieldCode="AU" term="%22Goyal+G%22">Goyal G</searchLink>; Division of Hematology-Oncology, The University of Alabama at Birmingham, Birmingham, AL.<br /><searchLink fieldCode="AU" term="%22Atkinson+TM%22">Atkinson TM</searchLink>; Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY.<br /><searchLink fieldCode="AU" term="%22Mao+JJ%22">Mao JJ</searchLink>; Integrative Medicine Service, Department of Medicine, Memorial Sloan Kettering Cancer Center, New York, NY.<br /><searchLink fieldCode="AU" term="%22Panageas+KS%22">Panageas KS</searchLink>; Department of Epidemiology and Biostatistics, Memorial Sloan Kettering Cancer Center, New York, NY.<br /><searchLink fieldCode="AU" term="%22Diamond+EL%22">Diamond EL</searchLink>; Department of Neurology, Memorial Sloan Kettering Cancer Center, New York, NY.; Early Drug Development Service, Department of Medicine, Memorial Sloan Kettering Cancer Center, New York, NY.
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        Value: 10.1182/bloodadvances.2024015659
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              Text: 2025 Sep 09
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