Development of a Minimum Dataset for the Global Monitoring of the Safety and Efficacy of Growth Hormone Replacement in Adults With Growth Hormone Deficiency (AGHD).

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Title: Development of a Minimum Dataset for the Global Monitoring of the Safety and Efficacy of Growth Hormone Replacement in Adults With Growth Hormone Deficiency (AGHD).
Authors: Chen SC; Developmental Endocrinology Research Group, Royal Hospital for Children, University of Glasgow, Glasgow, UK.; Office for Rare Conditions, University of Glasgow, Glasgow, UK., Lucas-Herald AK; Developmental Endocrinology Research Group, Royal Hospital for Children, University of Glasgow, Glasgow, UK.; Office for Rare Conditions, University of Glasgow, Glasgow, UK., Tang R; Developmental Endocrinology Research Group, Royal Hospital for Children, University of Glasgow, Glasgow, UK., Tseretopoulou X; Developmental Endocrinology Research Group, Royal Hospital for Children, University of Glasgow, Glasgow, UK., Alimussina M; Developmental Endocrinology Research Group, Royal Hospital for Children, University of Glasgow, Glasgow, UK.; Office for Rare Conditions, University of Glasgow, Glasgow, UK., Andrews D; Chicago, Illinois, USA., Biller BMK; Neuroendocrine & Pituitary Tumor Clinical Center, Massachusetts General Hospital, Boston, Massachusetts, USA., Boguszewski CL; Endocrine Division (SEMPR), Department of Internal Medicine, Federal University of Parana, Curitiba, Brazil., Bryce J; Office for Rare Conditions, University of Glasgow, Glasgow, UK., Chen M; Office for Rare Conditions, University of Glasgow, Glasgow, UK., Clayton PE; University of Manchester, Manchester, UK., Fleseriu M; Departments of Medicine and Neurological Surgery, Pituitary Center, Oregon Health & Science University, Portland, Oregon, USA., Gebauer J; Department of Internal Medicine 1, University Hospital of Schleswig-Holstein, Luebeck, Germany., Ho KKY; The Garvan Institute of Medical Research and St. Vincent's Hospital, Sydney, New South Wales, Australia., Jorgensen JOL; Aarhus University Hospital, Aarhus, Denmark., Luo X; Tongji Hospital, Huazhong University of Science and Technology, Wuhan, China., Miller BS; MHealth Fairview Masonic Children's Hospital, University of Minnesota Medical School, Minneapolis, Minnesota, USA., Neggers SJ; Department of Internal Medicine, Section Endocrinology and Pituitary Center, Rotterdam, The Netherlands., Sävendahl L; Department of Women's and Children's Health, Karolinska Institutet and Karolinska University Hospital, Stockholm, Sweden., Schilbach K; Department of Medicine IV, LMU University Hospital, LMU, Munich, Munich, Germany.; Deggendorf Institute of Technology, Deggendorf, Germany., Strasburger CJ; Department of Endocrinology and Metabolic Disorders, Charite Universitaetsmedizin, Berlin, Germany., Takahashi Y; Department of Diabetes and Endocrinology, Nara Medical University, Kashihara, Japan., Vitali D; SOD ITALY APS Italian Patients Organisation for Septic Optic Dysplasia and Other Neuroendocrine Diseases, Rome, Italy., Yuen KCJ; Barrow Pituitary Center, University Arizona College of Medicine and Creighton University School of Medicine, Phoenix, Arizona, USA., Hoffman AR; Department of Medicine, Stanford University School of Medicine, Stanford, California, USA., Johannson G; Sahlgrenska University Hospital and Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden., Ahmed SF; Developmental Endocrinology Research Group, Royal Hospital for Children, University of Glasgow, Glasgow, UK.; Office for Rare Conditions, University of Glasgow, Glasgow, UK.
Source: Clinical endocrinology [Clin Endocrinol (Oxf)] 2025 Dec; Vol. 103 (6), pp. 841-851. Date of Electronic Publication: 2025 Jul 21.
Publication Type: Journal Article; Systematic Review
Journal Info: Publisher: Blackwell Publishing Country of Publication: England NLM ID: 0346653 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1365-2265 (Electronic) Linking ISSN: 03000664 NLM ISO Abbreviation: Clin Endocrinol (Oxf) Subsets: MEDLINE
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  Data: Development of a Minimum Dataset for the Global Monitoring of the Safety and Efficacy of Growth Hormone Replacement in Adults With Growth Hormone Deficiency (AGHD).
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  Data: <searchLink fieldCode="AU" term="%22Chen+SC%22">Chen SC</searchLink>; Developmental Endocrinology Research Group, Royal Hospital for Children, University of Glasgow, Glasgow, UK.; Office for Rare Conditions, University of Glasgow, Glasgow, UK.<br /><searchLink fieldCode="AU" term="%22Lucas-Herald+AK%22">Lucas-Herald AK</searchLink>; Developmental Endocrinology Research Group, Royal Hospital for Children, University of Glasgow, Glasgow, UK.; Office for Rare Conditions, University of Glasgow, Glasgow, UK.<br /><searchLink fieldCode="AU" term="%22Tang+R%22">Tang R</searchLink>; Developmental Endocrinology Research Group, Royal Hospital for Children, University of Glasgow, Glasgow, UK.<br /><searchLink fieldCode="AU" term="%22Tseretopoulou+X%22">Tseretopoulou X</searchLink>; Developmental Endocrinology Research Group, Royal Hospital for Children, University of Glasgow, Glasgow, UK.<br /><searchLink fieldCode="AU" term="%22Alimussina+M%22">Alimussina M</searchLink>; Developmental Endocrinology Research Group, Royal Hospital for Children, University of Glasgow, Glasgow, UK.; Office for Rare Conditions, University of Glasgow, Glasgow, UK.<br /><searchLink fieldCode="AU" term="%22Andrews+D%22">Andrews D</searchLink>; Chicago, Illinois, USA.<br /><searchLink fieldCode="AU" term="%22Biller+BMK%22">Biller BMK</searchLink>; Neuroendocrine & Pituitary Tumor Clinical Center, Massachusetts General Hospital, Boston, Massachusetts, USA.<br /><searchLink fieldCode="AU" term="%22Boguszewski+CL%22">Boguszewski CL</searchLink>; Endocrine Division (SEMPR), Department of Internal Medicine, Federal University of Parana, Curitiba, Brazil.<br /><searchLink fieldCode="AU" term="%22Bryce+J%22">Bryce J</searchLink>; Office for Rare Conditions, University of Glasgow, Glasgow, UK.<br /><searchLink fieldCode="AU" term="%22Chen+M%22">Chen M</searchLink>; Office for Rare Conditions, University of Glasgow, Glasgow, UK.<br /><searchLink fieldCode="AU" term="%22Clayton+PE%22">Clayton PE</searchLink>; University of Manchester, Manchester, UK.<br /><searchLink fieldCode="AU" term="%22Fleseriu+M%22">Fleseriu M</searchLink>; Departments of Medicine and Neurological Surgery, Pituitary Center, Oregon Health & Science University, Portland, Oregon, USA.<br /><searchLink fieldCode="AU" term="%22Gebauer+J%22">Gebauer J</searchLink>; Department of Internal Medicine 1, University Hospital of Schleswig-Holstein, Luebeck, Germany.<br /><searchLink fieldCode="AU" term="%22Ho+KKY%22">Ho KKY</searchLink>; The Garvan Institute of Medical Research and St. Vincent's Hospital, Sydney, New South Wales, Australia.<br /><searchLink fieldCode="AU" term="%22Jorgensen+JOL%22">Jorgensen JOL</searchLink>; Aarhus University Hospital, Aarhus, Denmark.<br /><searchLink fieldCode="AU" term="%22Luo+X%22">Luo X</searchLink>; Tongji Hospital, Huazhong University of Science and Technology, Wuhan, China.<br /><searchLink fieldCode="AU" term="%22Miller+BS%22">Miller BS</searchLink>; MHealth Fairview Masonic Children's Hospital, University of Minnesota Medical School, Minneapolis, Minnesota, USA.<br /><searchLink fieldCode="AU" term="%22Neggers+SJ%22">Neggers SJ</searchLink>; Department of Internal Medicine, Section Endocrinology and Pituitary Center, Rotterdam, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Sävendahl+L%22">Sävendahl L</searchLink>; Department of Women's and Children's Health, Karolinska Institutet and Karolinska University Hospital, Stockholm, Sweden.<br /><searchLink fieldCode="AU" term="%22Schilbach+K%22">Schilbach K</searchLink>; Department of Medicine IV, LMU University Hospital, LMU, Munich, Munich, Germany.; Deggendorf Institute of Technology, Deggendorf, Germany.<br /><searchLink fieldCode="AU" term="%22Strasburger+CJ%22">Strasburger CJ</searchLink>; Department of Endocrinology and Metabolic Disorders, Charite Universitaetsmedizin, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Takahashi+Y%22">Takahashi Y</searchLink>; Department of Diabetes and Endocrinology, Nara Medical University, Kashihara, Japan.<br /><searchLink fieldCode="AU" term="%22Vitali+D%22">Vitali D</searchLink>; SOD ITALY APS Italian Patients Organisation for Septic Optic Dysplasia and Other Neuroendocrine Diseases, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Yuen+KCJ%22">Yuen KCJ</searchLink>; Barrow Pituitary Center, University Arizona College of Medicine and Creighton University School of Medicine, Phoenix, Arizona, USA.<br /><searchLink fieldCode="AU" term="%22Hoffman+AR%22">Hoffman AR</searchLink>; Department of Medicine, Stanford University School of Medicine, Stanford, California, USA.<br /><searchLink fieldCode="AU" term="%22Johannson+G%22">Johannson G</searchLink>; Sahlgrenska University Hospital and Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.<br /><searchLink fieldCode="AU" term="%22Ahmed+SF%22">Ahmed SF</searchLink>; Developmental Endocrinology Research Group, Royal Hospital for Children, University of Glasgow, Glasgow, UK.; Office for Rare Conditions, University of Glasgow, Glasgow, UK.
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