How to foster new treatment development in ultra-rare tumours? Joint EMA-EORTC multi-stakeholder workshops on ultra-rare sarcomas as a model for rare cancers.
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| Title: | How to foster new treatment development in ultra-rare tumours? Joint EMA-EORTC multi-stakeholder workshops on ultra-rare sarcomas as a model for rare cancers. |
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| Authors: | Stacchiotti S; Department of Medical Oncology, Adult Mesenchymal and Rare Tumours Unit Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy. Electronic address: silvia.stacchiotti@istitutotumori.mi.it., Pantziarka P; Anticancer Fund, Meise, Belgium; George Pantziarka TP53 Trust, London, United Kingdom., Leonard H; The EHE Rare Cancer Charity, Kingston-Upon-Thames, United Kingdom., Voltz C; European Medicines Agency, Amsterdam, The Netherlands., Abatedaga L; Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy; TU.TO.R. Tumori Toracici Rari, Patient Advocacy, Milan, Italy., Bouche G; Anticancer Fund, Meise, Belgium., Bouygues C; Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy., Bovee JVMG; Department of Pathology, Leiden University Medical Center (LUMC), Leiden, The Netherlands., Van der Graaf WTA; Department of Medical Oncology, Netherlands Cancer Institute, Amsterdam, The Netherlands; Department of Medical Oncology Erasmus MC Cancer Institute, Erasmus Medical Center, Rotterdam, The Netherlands., Rojas T; Arztpraxis Mylife Fulenbach, Fulenbach, Switzerland., D'Ambrosio L; Department of Medical Oncology, University of Turin, Turin, Italy., Donoghue M; U.S. Food and Drug Administration, Silver Spring, MD, United States., Enzmann H; European Medicines Agency, Amsterdam, The Netherlands., Feeney G; Sarcoma Patient Advocacy Global Network, Wolfersheim, Germany., Foggi P; Agenzia Italiana del Farmaco, Rome, Italy., Frezza AM; Department of Medical Oncology, Adult Mesenchymal and Rare Tumours Unit Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy., Herold R; European Medicines Agency, Amsterdam, The Netherlands., Jones RL; Sarcoma Unit, The Royal Marsden NHS and Institute of Cancer Research, London, United Kingdom., Kasper B; Sarcoma Unit, Mannheim Cancer Center, Mannheim University Medical Center, University of Heidelberg, Mannheim, Germany., Roes K; Radboud University Medical Center, Department IQ Health, Biostatistics, Nijmegen, The Netherlands., Marreaud S; European Organisation for Research and Treatment of Cancer (EORTC), Brussels, Belgium., Miceli R; Biostatistics for Clinical Research Unit, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy., Robinson D; The EHE Foundation, Hobart, WI, United States., Sommer J; The Chordoma Foundation, Durham, NC, United States., Tap WD; Department of Medicine, Memorial Sloan Kettering Cancer Center and Weill Cornell Medical College, New York, United States., Tydings C; Sarcoma Patient Advocacy Global Network, Wolfersheim, Germany., Trama A; Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy., Houdt WV; Netherland Cancer Institute, Amsterdam, The Netherlands., van Oortmerssen G; Sarcoma Patient Advocacy Global Network, Wolfersheim, Germany., Wagner AJ; Department of Medical Oncology, Dana-Farber Cancer Institute, Boston, MA, United States., Widemann B; Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute, Bethesda, MD, United States., Gelderblom H; Department of Medical Oncology , Leiden University Medical Center, Leiden, The Netherlands., Gronchi A; Department of Surgery, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy., Napolitano A; Sarcoma Unit, The Royal Marsden NHS and Institute of Cancer Research, London, United Kingdom., Dufresne A; Department of Medical Oncology, Centre Leon Berard, Lyon, France., Fumagalli ER; Department of Medical Oncology, Adult Mesenchymal and Rare Tumours Unit Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy., Baldi G; Department of Oncology, Hospital of Prato, Azienda USL Toscana Centro, Prato, Italy., Marquina G; Department of Medical Oncology, Hospital Clínico San Carlos, Madrid, Spain., Koseła-Paterczyk H; Department of Soft Tissue/Bone Sarcoma and Melanoma, Maria Sklodowska-Curie National Research Institute of Oncology, Warsaw, Poland., Martin Javier JB; Medical Oncology Department, Fundación Jimenez Diaz University Hospital, Madrid, Spain., Junker N; Department of Oncology, Sarcoma Unit, Herlev and Gentofte Hospital, Copenhagen, Denmark., Rutkowski P; Department of Soft Tissue/Bone Sarcoma and Melanoma, Maria Sklodowska-Curie National Research Institute of Oncology, Warsaw, Poland., Oyen WJG; Department of Radiology and Nuclear Medicine, Radboud University Medical Centre, Nijmegen, The Netherlands., Lacombe D; European Organisation for Research and Treatment of Cancer (EORTC), Brussels, Belgium., Pignatti F; European Medicines Agency, Amsterdam, The Netherlands., Demolis P; Icelandic Medicines Agency, Iceland. |
| Source: | Cancer treatment reviews [Cancer Treat Rev] 2025 Nov; Vol. 140, pp. 103003. Date of Electronic Publication: 2025 Aug 06. |
| Publication Type: | Journal Article; Review |
| Journal Info: | Publisher: Elsevier Country of Publication: Netherlands NLM ID: 7502030 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1532-1967 (Electronic) Linking ISSN: 03057372 NLM ISO Abbreviation: Cancer Treat Rev Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
| FullText | Text: Availability: 0 |
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| Header | DbId: mdl DbLabel: MEDLINE Ultimate An: 40789252 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: How to foster new treatment development in ultra-rare tumours? Joint EMA-EORTC multi-stakeholder workshops on ultra-rare sarcomas as a model for rare cancers. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AU" term="%22Stacchiotti+S%22">Stacchiotti S</searchLink>; Department of Medical Oncology, Adult Mesenchymal and Rare Tumours Unit Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy. Electronic address: silvia.stacchiotti@istitutotumori.mi.it.<br /><searchLink fieldCode="AU" term="%22Pantziarka+P%22">Pantziarka P</searchLink>; Anticancer Fund, Meise, Belgium; George Pantziarka TP53 Trust, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Leonard+H%22">Leonard H</searchLink>; The EHE Rare Cancer Charity, Kingston-Upon-Thames, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Voltz+C%22">Voltz C</searchLink>; European Medicines Agency, Amsterdam, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Abatedaga+L%22">Abatedaga L</searchLink>; Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy; TU.TO.R. Tumori Toracici Rari, Patient Advocacy, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Bouche+G%22">Bouche G</searchLink>; Anticancer Fund, Meise, Belgium.<br /><searchLink fieldCode="AU" term="%22Bouygues+C%22">Bouygues C</searchLink>; Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Bovee+JVMG%22">Bovee JVMG</searchLink>; Department of Pathology, Leiden University Medical Center (LUMC), Leiden, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Van+der+Graaf+WTA%22">Van der Graaf WTA</searchLink>; Department of Medical Oncology, Netherlands Cancer Institute, Amsterdam, The Netherlands; Department of Medical Oncology Erasmus MC Cancer Institute, Erasmus Medical Center, Rotterdam, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Rojas+T%22">Rojas T</searchLink>; Arztpraxis Mylife Fulenbach, Fulenbach, Switzerland.<br /><searchLink fieldCode="AU" term="%22D'Ambrosio+L%22">D'Ambrosio L</searchLink>; Department of Medical Oncology, University of Turin, Turin, Italy.<br /><searchLink fieldCode="AU" term="%22Donoghue+M%22">Donoghue M</searchLink>; U.S. Food and Drug Administration, Silver Spring, MD, United States.<br /><searchLink fieldCode="AU" term="%22Enzmann+H%22">Enzmann H</searchLink>; European Medicines Agency, Amsterdam, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Feeney+G%22">Feeney G</searchLink>; Sarcoma Patient Advocacy Global Network, Wolfersheim, Germany.<br /><searchLink fieldCode="AU" term="%22Foggi+P%22">Foggi P</searchLink>; Agenzia Italiana del Farmaco, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Frezza+AM%22">Frezza AM</searchLink>; Department of Medical Oncology, Adult Mesenchymal and Rare Tumours Unit Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Herold+R%22">Herold R</searchLink>; European Medicines Agency, Amsterdam, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Jones+RL%22">Jones RL</searchLink>; Sarcoma Unit, The Royal Marsden NHS and Institute of Cancer Research, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Kasper+B%22">Kasper B</searchLink>; Sarcoma Unit, Mannheim Cancer Center, Mannheim University Medical Center, University of Heidelberg, Mannheim, Germany.<br /><searchLink fieldCode="AU" term="%22Roes+K%22">Roes K</searchLink>; Radboud University Medical Center, Department IQ Health, Biostatistics, Nijmegen, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Marreaud+S%22">Marreaud S</searchLink>; European Organisation for Research and Treatment of Cancer (EORTC), Brussels, Belgium.<br /><searchLink fieldCode="AU" term="%22Miceli+R%22">Miceli R</searchLink>; Biostatistics for Clinical Research Unit, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Robinson+D%22">Robinson D</searchLink>; The EHE Foundation, Hobart, WI, United States.<br /><searchLink fieldCode="AU" term="%22Sommer+J%22">Sommer J</searchLink>; The Chordoma Foundation, Durham, NC, United States.<br /><searchLink fieldCode="AU" term="%22Tap+WD%22">Tap WD</searchLink>; Department of Medicine, Memorial Sloan Kettering Cancer Center and Weill Cornell Medical College, New York, United States.<br /><searchLink fieldCode="AU" term="%22Tydings+C%22">Tydings C</searchLink>; Sarcoma Patient Advocacy Global Network, Wolfersheim, Germany.<br /><searchLink fieldCode="AU" term="%22Trama+A%22">Trama A</searchLink>; Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Houdt+WV%22">Houdt WV</searchLink>; Netherland Cancer Institute, Amsterdam, The Netherlands.<br /><searchLink fieldCode="AU" term="%22van+Oortmerssen+G%22">van Oortmerssen G</searchLink>; Sarcoma Patient Advocacy Global Network, Wolfersheim, Germany.<br /><searchLink fieldCode="AU" term="%22Wagner+AJ%22">Wagner AJ</searchLink>; Department of Medical Oncology, Dana-Farber Cancer Institute, Boston, MA, United States.<br /><searchLink fieldCode="AU" term="%22Widemann+B%22">Widemann B</searchLink>; Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute, Bethesda, MD, United States.<br /><searchLink fieldCode="AU" term="%22Gelderblom+H%22">Gelderblom H</searchLink>; Department of Medical Oncology , Leiden University Medical Center, Leiden, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Gronchi+A%22">Gronchi A</searchLink>; Department of Surgery, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Napolitano+A%22">Napolitano A</searchLink>; Sarcoma Unit, The Royal Marsden NHS and Institute of Cancer Research, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Dufresne+A%22">Dufresne A</searchLink>; Department of Medical Oncology, Centre Leon Berard, Lyon, France.<br /><searchLink fieldCode="AU" term="%22Fumagalli+ER%22">Fumagalli ER</searchLink>; Department of Medical Oncology, Adult Mesenchymal and Rare Tumours Unit Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Baldi+G%22">Baldi G</searchLink>; Department of Oncology, Hospital of Prato, Azienda USL Toscana Centro, Prato, Italy.<br /><searchLink fieldCode="AU" term="%22Marquina+G%22">Marquina G</searchLink>; Department of Medical Oncology, Hospital Clínico San Carlos, Madrid, Spain.<br /><searchLink fieldCode="AU" term="%22Koseła-Paterczyk+H%22">Koseła-Paterczyk H</searchLink>; Department of Soft Tissue/Bone Sarcoma and Melanoma, Maria Sklodowska-Curie National Research Institute of Oncology, Warsaw, Poland.<br /><searchLink fieldCode="AU" term="%22Martin+Javier+JB%22">Martin Javier JB</searchLink>; Medical Oncology Department, Fundación Jimenez Diaz University Hospital, Madrid, Spain.<br /><searchLink fieldCode="AU" term="%22Junker+N%22">Junker N</searchLink>; Department of Oncology, Sarcoma Unit, Herlev and Gentofte Hospital, Copenhagen, Denmark.<br /><searchLink fieldCode="AU" term="%22Rutkowski+P%22">Rutkowski P</searchLink>; Department of Soft Tissue/Bone Sarcoma and Melanoma, Maria Sklodowska-Curie National Research Institute of Oncology, Warsaw, Poland.<br /><searchLink fieldCode="AU" term="%22Oyen+WJG%22">Oyen WJG</searchLink>; Department of Radiology and Nuclear Medicine, Radboud University Medical Centre, Nijmegen, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Lacombe+D%22">Lacombe D</searchLink>; European Organisation for Research and Treatment of Cancer (EORTC), Brussels, Belgium.<br /><searchLink fieldCode="AU" term="%22Pignatti+F%22">Pignatti F</searchLink>; European Medicines Agency, Amsterdam, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Demolis+P%22">Demolis P</searchLink>; Icelandic Medicines Agency, Iceland. – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%227502030%22">Cancer treatment reviews</searchLink> [Cancer Treat Rev] 2025 Nov; Vol. 140, pp. 103003. <i>Date of Electronic Publication: </i>2025 Aug 06. – Name: TypePub Label: Publication Type Group: TypPub Data: Journal Article; Review – Name: TitleSource Label: Journal Info Group: Src Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Elsevier%22">Elsevier </searchLink><i>Country of Publication: </i>Netherlands <i>NLM ID: </i>7502030 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1532-1967 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2203057372%22">03057372 </searchLink><i>NLM ISO Abbreviation: </i>Cancer Treat Rev <i>Subsets: </i>MEDLINE |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1016/j.ctrv.2025.103003 Languages: – Code: eng Text: English PhysicalDescription: Pagination: StartPage: 103003 Titles: – TitleFull: How to foster new treatment development in ultra-rare tumours? Joint EMA-EORTC multi-stakeholder workshops on ultra-rare sarcomas as a model for rare cancers. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Stacchiotti S – PersonEntity: Name: NameFull: Pantziarka P – PersonEntity: Name: NameFull: Leonard H – PersonEntity: Name: NameFull: Voltz C – PersonEntity: Name: NameFull: Abatedaga L – PersonEntity: Name: NameFull: Bouche G – PersonEntity: Name: NameFull: Bouygues C – PersonEntity: Name: NameFull: Bovee JVMG – PersonEntity: Name: NameFull: Van der Graaf WTA – PersonEntity: Name: NameFull: Rojas T – PersonEntity: Name: NameFull: D'Ambrosio L – PersonEntity: Name: NameFull: Donoghue M – PersonEntity: Name: NameFull: Enzmann H – PersonEntity: Name: NameFull: Feeney G – PersonEntity: Name: NameFull: Foggi P – PersonEntity: Name: NameFull: Frezza AM – PersonEntity: Name: NameFull: Herold R – PersonEntity: Name: NameFull: Jones RL – PersonEntity: Name: NameFull: Kasper B – PersonEntity: Name: NameFull: Roes K – PersonEntity: Name: NameFull: Marreaud S – PersonEntity: Name: NameFull: Miceli R – PersonEntity: Name: NameFull: Robinson D – PersonEntity: Name: NameFull: Sommer J – PersonEntity: Name: NameFull: Tap WD – PersonEntity: Name: NameFull: Tydings C – PersonEntity: Name: NameFull: Trama A – PersonEntity: Name: NameFull: Houdt WV – PersonEntity: Name: NameFull: van Oortmerssen G – PersonEntity: Name: NameFull: Wagner AJ – PersonEntity: Name: NameFull: Widemann B – PersonEntity: Name: NameFull: Gelderblom H – PersonEntity: Name: NameFull: Gronchi A – PersonEntity: Name: NameFull: Napolitano A – PersonEntity: Name: NameFull: Dufresne A – PersonEntity: Name: NameFull: Fumagalli ER – PersonEntity: Name: NameFull: Baldi G – PersonEntity: Name: NameFull: Marquina G – PersonEntity: Name: NameFull: Koseła-Paterczyk H – PersonEntity: Name: NameFull: Martin Javier JB – PersonEntity: Name: NameFull: Junker N – PersonEntity: Name: NameFull: Rutkowski P – PersonEntity: Name: NameFull: Oyen WJG – PersonEntity: Name: NameFull: Lacombe D – PersonEntity: Name: NameFull: Pignatti F – PersonEntity: Name: NameFull: Demolis P IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 11 Text: 2025 Nov Type: published Y: 2025 Identifiers: – Type: issn-electronic Value: 1532-1967 Numbering: – Type: volume Value: 140 Titles: – TitleFull: Cancer treatment reviews Type: main |
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