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Preferences for Outcome Data Collection and Access in a Pediatric Autism Learning Health Network Registry.

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Title: Preferences for Outcome Data Collection and Access in a Pediatric Autism Learning Health Network Registry.
Authors: Murray DS; Division of Developmental & Behavioral Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Department of Pediatrics, Cincinnati, OH., Anixt JS; Division of Developmental & Behavioral Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Department of Pediatrics, Cincinnati, OH., Vasudevan V; Science Department, Data Science and Evaluation Research, Autism Speaks, Washington, DC., Cole LL; Developmental and Behavioral Pediatrics, University of Rochester Medical Center, Rochester, NY., Fedele A; Science Department, Clinical Programs, Autism Speaks, Ellenton, FL., Karpur A; Clinical Statistics and Modeling, CHDI Foundation, Princeton, NJ., Cornell WL; Family Partner Committee, Autism Care Network, Columbia, MO., Latten LM; Division of Developmental & Behavioral Pediatrics, University of Rochester Medical Center, Rochester, NY., Butter EM; Pediatrics, Psychiatry, and Psychology, Ohio State University College of Medicine, Columbus, OH.; Division of Behavioral Health, Nationwide Children's Hospital, Columbus, OH; and., Coury DL; Division of Developmental & Behavioral Pediatrics, Nationwide Children's Hospital, The Ohio State University, Columbus, OH.
Source: Journal of developmental and behavioral pediatrics : JDBP [J Dev Behav Pediatr] 2025 Nov-Dec 01; Vol. 46 (6), pp. e572-e578. Date of Electronic Publication: 2025 Aug 15.
Publication Type: Journal Article
Journal Info: Publisher: Lippincott Williams & Wilkins Country of Publication: United States NLM ID: 8006933 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1536-7312 (Electronic) Linking ISSN: 0196206X NLM ISO Abbreviation: J Dev Behav Pediatr Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Murray+DS%22">Murray DS</searchLink>; Division of Developmental & Behavioral Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Department of Pediatrics, Cincinnati, OH.<br /><searchLink fieldCode="AU" term="%22Anixt+JS%22">Anixt JS</searchLink>; Division of Developmental & Behavioral Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Department of Pediatrics, Cincinnati, OH.<br /><searchLink fieldCode="AU" term="%22Vasudevan+V%22">Vasudevan V</searchLink>; Science Department, Data Science and Evaluation Research, Autism Speaks, Washington, DC.<br /><searchLink fieldCode="AU" term="%22Cole+LL%22">Cole LL</searchLink>; Developmental and Behavioral Pediatrics, University of Rochester Medical Center, Rochester, NY.<br /><searchLink fieldCode="AU" term="%22Fedele+A%22">Fedele A</searchLink>; Science Department, Clinical Programs, Autism Speaks, Ellenton, FL.<br /><searchLink fieldCode="AU" term="%22Karpur+A%22">Karpur A</searchLink>; Clinical Statistics and Modeling, CHDI Foundation, Princeton, NJ.<br /><searchLink fieldCode="AU" term="%22Cornell+WL%22">Cornell WL</searchLink>; Family Partner Committee, Autism Care Network, Columbia, MO.<br /><searchLink fieldCode="AU" term="%22Latten+LM%22">Latten LM</searchLink>; Division of Developmental & Behavioral Pediatrics, University of Rochester Medical Center, Rochester, NY.<br /><searchLink fieldCode="AU" term="%22Butter+EM%22">Butter EM</searchLink>; Pediatrics, Psychiatry, and Psychology, Ohio State University College of Medicine, Columbus, OH.; Division of Behavioral Health, Nationwide Children's Hospital, Columbus, OH; and.<br /><searchLink fieldCode="AU" term="%22Coury+DL%22">Coury DL</searchLink>; Division of Developmental & Behavioral Pediatrics, Nationwide Children's Hospital, The Ohio State University, Columbus, OH.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Lippincott+Williams+%26+Wilkins%22">Lippincott Williams & Wilkins </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>8006933 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1536-7312 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%220196206X%22">0196206X </searchLink><i>NLM ISO Abbreviation: </i>J Dev Behav Pediatr <i>Subsets: </i>MEDLINE
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        Value: 10.1097/DBP.0000000000001401
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        Text: English
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              Text: 2025 Nov-Dec 01
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