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Assessing racial differences in North American hereditary hemorrhagic telangiectasia study recruitment and care.

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Title: Assessing racial differences in North American hereditary hemorrhagic telangiectasia study recruitment and care.
Authors: Scott G; Toronto HHT Centre, Keenan Research Centre in the Li Ka Shing Knowledge Institute, St Michael's Hospital, Toronto, ON, Canada.; Division of Respirology, Department of Medicine, St. Michael's Hospital, University of Toronto, Toronto, ON, Canada., Agundiz A; Department of Anesthesia and Perioperative Care, University of California, UCSF HHT Center of Excellence, San Francisco, San Francisco, CA, USA., Nelson J; Department of Anesthesia and Perioperative Care, University of California, UCSF HHT Center of Excellence, San Francisco, San Francisco, CA, USA., Hetts S; Department of Radiology, University of California, San Francisco, UCSF HHT Center of Excellence, San Francisco, CA, USA., Clancy M; Cure HHT, Monkton, MD, USA., Kim H; Toronto HHT Centre, Keenan Research Centre in the Li Ka Shing Knowledge Institute, St Michael's Hospital, Toronto, ON, Canada.; Department of Anesthesia and Perioperative Care, University of California, UCSF HHT Center of Excellence, San Francisco, San Francisco, CA, USA., Faughnan ME; Toronto HHT Centre, Keenan Research Centre in the Li Ka Shing Knowledge Institute, St Michael's Hospital, Toronto, ON, Canada. marie.faughnan@unityhealth.to.; Division of Respirology, Department of Medicine, St. Michael's Hospital, University of Toronto, Toronto, ON, Canada. marie.faughnan@unityhealth.to.; St. Michael's Hospital, 30 Bond St, Toronto, ON, M5B1W8, Canada. marie.faughnan@unityhealth.to.
Corporate Authors: Brain Vascular Malformation Consortium HHT Investigator Group
Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2025 Aug 28; Vol. 20 (1), pp. 461. Date of Electronic Publication: 2025 Aug 28.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Assessing racial differences in North American hereditary hemorrhagic telangiectasia study recruitment and care.
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  Data: <searchLink fieldCode="AU" term="%22Scott+G%22">Scott G</searchLink>; Toronto HHT Centre, Keenan Research Centre in the Li Ka Shing Knowledge Institute, St Michael's Hospital, Toronto, ON, Canada.; Division of Respirology, Department of Medicine, St. Michael's Hospital, University of Toronto, Toronto, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Agundiz+A%22">Agundiz A</searchLink>; Department of Anesthesia and Perioperative Care, University of California, UCSF HHT Center of Excellence, San Francisco, San Francisco, CA, USA.<br /><searchLink fieldCode="AU" term="%22Nelson+J%22">Nelson J</searchLink>; Department of Anesthesia and Perioperative Care, University of California, UCSF HHT Center of Excellence, San Francisco, San Francisco, CA, USA.<br /><searchLink fieldCode="AU" term="%22Hetts+S%22">Hetts S</searchLink>; Department of Radiology, University of California, San Francisco, UCSF HHT Center of Excellence, San Francisco, CA, USA.<br /><searchLink fieldCode="AU" term="%22Clancy+M%22">Clancy M</searchLink>; Cure HHT, Monkton, MD, USA.<br /><searchLink fieldCode="AU" term="%22Kim+H%22">Kim H</searchLink>; Toronto HHT Centre, Keenan Research Centre in the Li Ka Shing Knowledge Institute, St Michael's Hospital, Toronto, ON, Canada.; Department of Anesthesia and Perioperative Care, University of California, UCSF HHT Center of Excellence, San Francisco, San Francisco, CA, USA.<br /><searchLink fieldCode="AU" term="%22Faughnan+ME%22">Faughnan ME</searchLink>; Toronto HHT Centre, Keenan Research Centre in the Li Ka Shing Knowledge Institute, St Michael's Hospital, Toronto, ON, Canada. marie.faughnan@unityhealth.to.; Division of Respirology, Department of Medicine, St. Michael's Hospital, University of Toronto, Toronto, ON, Canada. marie.faughnan@unityhealth.to.; St. Michael's Hospital, 30 Bond St, Toronto, ON, M5B1W8, Canada. marie.faughnan@unityhealth.to.
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  Data: <searchLink fieldCode="JN" term="%22101266602%22">Orphanet journal of rare diseases</searchLink> [Orphanet J Rare Dis] 2025 Aug 28; Vol. 20 (1), pp. 461. <i>Date of Electronic Publication: </i>2025 Aug 28.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101266602 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1750-1172 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2217501172%22">17501172 </searchLink><i>NLM ISO Abbreviation: </i>Orphanet J Rare Dis <i>Subsets: </i>MEDLINE
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        Value: 10.1186/s13023-025-03883-1
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              Text: 2025 Aug 28
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