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A survey of adult caregivers of people with developmental and epileptic encephalopathies: A long-term care planning needs assessment.

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Title: A survey of adult caregivers of people with developmental and epileptic encephalopathies: A long-term care planning needs assessment.
Authors: Andrade DM; Adult Genetic Epilepsy Program, Division of Neurology, Department of Medicine, University of Toronto, Toronto, Canada., Bailey LD; UCB, Smyrna, GA, USA., Meskis MA; Dravet Syndrome Foundation, Cherry Hill, NJ, USA., Hood V; Dravet Syndrome Foundation, Cherry Hill, NJ, USA., Ferreira S; Dravet Syndrome Foundation, Cherry Hill, NJ, USA., Dixon-Salazar T; Lennox-Gastaut Syndrome (LGS) Foundation, San Diego, CA, USA., Griffin J; Lennox-Gastaut Syndrome (LGS) Foundation, San Diego, CA, USA., Perry MS; Jane and John Justin Institute for Mind Health, Cook Children's Medical Center, Ft. Worth, TX, USA. Electronic address: scott.perry@cookchildrens.org.
Source: Epilepsy & behavior : E&B [Epilepsy Behav] 2025 Nov; Vol. 172, pp. 110677. Date of Electronic Publication: 2025 Aug 30.
Publication Type: Journal Article
Journal Info: Publisher: Academic Press Country of Publication: United States NLM ID: 100892858 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1525-5069 (Electronic) Linking ISSN: 15255050 NLM ISO Abbreviation: Epilepsy Behav Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: A survey of adult caregivers of people with developmental and epileptic encephalopathies: A long-term care planning needs assessment.
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  Data: <searchLink fieldCode="AU" term="%22Andrade+DM%22">Andrade DM</searchLink>; Adult Genetic Epilepsy Program, Division of Neurology, Department of Medicine, University of Toronto, Toronto, Canada.<br /><searchLink fieldCode="AU" term="%22Bailey+LD%22">Bailey LD</searchLink>; UCB, Smyrna, GA, USA.<br /><searchLink fieldCode="AU" term="%22Meskis+MA%22">Meskis MA</searchLink>; Dravet Syndrome Foundation, Cherry Hill, NJ, USA.<br /><searchLink fieldCode="AU" term="%22Hood+V%22">Hood V</searchLink>; Dravet Syndrome Foundation, Cherry Hill, NJ, USA.<br /><searchLink fieldCode="AU" term="%22Ferreira+S%22">Ferreira S</searchLink>; Dravet Syndrome Foundation, Cherry Hill, NJ, USA.<br /><searchLink fieldCode="AU" term="%22Dixon-Salazar+T%22">Dixon-Salazar T</searchLink>; Lennox-Gastaut Syndrome (LGS) Foundation, San Diego, CA, USA.<br /><searchLink fieldCode="AU" term="%22Griffin+J%22">Griffin J</searchLink>; Lennox-Gastaut Syndrome (LGS) Foundation, San Diego, CA, USA.<br /><searchLink fieldCode="AU" term="%22Perry+MS%22">Perry MS</searchLink>; Jane and John Justin Institute for Mind Health, Cook Children's Medical Center, Ft. Worth, TX, USA. Electronic address: scott.perry@cookchildrens.org.
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  Data: <searchLink fieldCode="JN" term="%22100892858%22">Epilepsy & behavior : E&B</searchLink> [Epilepsy Behav] 2025 Nov; Vol. 172, pp. 110677. <i>Date of Electronic Publication: </i>2025 Aug 30.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Academic+Press%22">Academic Press </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>100892858 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1525-5069 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2215255050%22">15255050 </searchLink><i>NLM ISO Abbreviation: </i>Epilepsy Behav <i>Subsets: </i>MEDLINE
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        Value: 10.1016/j.yebeh.2025.110677
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      – Code: eng
        Text: English
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              Text: 2025 Nov
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              Y: 2025
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