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Australian research priorities for inherited retinal diseases: a James Lind Alliance priority setting partnership.

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Title: Australian research priorities for inherited retinal diseases: a James Lind Alliance priority setting partnership.
Authors: Robertson EG; School of Clinical Medicine, UNSW Medicine and Health, University of New South Wales, Sydney, New South Wales, Australia eden.robertson@unsw.edu.au.; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospitals Network Randwick, Randwick, New South Wales, Australia.; Stem Cell Medicine Group, Children's Medical Research Institute, Westmead, New South Wales, Australia., Hetherington K; School of Clinical Medicine, UNSW Medicine and Health, University of New South Wales, Sydney, New South Wales, Australia.; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospitals Network Randwick, Randwick, New South Wales, Australia., Prain M; Able Australia Services, Melbourne, Victoria, Australia.; University of School of Health Sciences, Audiology and Speech Pathology, The University of Melbourne, Parkville Campus, Melbourne, Victoria, Australia., Ma A; Eye Genetics Research Unit, Children's Medical Research Institute, The University of Sydney, Sydney, New South Wales, Australia.; The Sydney Children's Hospitals Network, Westmead, New South Wales, Australia.; Specialty of Genomic Medicine, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia., Ayton LN; Departments of Optometry and Vision Sciences, and Surgery (Ophthalmology), The University of Melbourne, Parkville Campus, Melbourne, Victoria, Australia.; Centre for Eye Research Australia, Royal Victorian Eye and Ear Hospital, East Melbourne, Victoria, Australia., Jamieson RV; Specialty of Genomic Medicine, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.; Department of Clinical Genetics, The Sydney Children's Hospitals Network, Westmead, New South Wales, Australia.; Eye Genetics Research Unit, Children's Medical Research Institute, Westmead, New South Wales, Australia., Shepard E; Departments of Optometry and Vision Sciences, and Surgery (Ophthalmology), The University of Melbourne, Parkville Campus, Melbourne, Victoria, Australia.; UsherKids Australia, Melbourne, Victoria, Australia.; Murdoch Children's Research Institute, Parkville, Victoria, Australia., Boyd L; Retina Australia, Melbourne, Victoria, Australia., Hall J; Retina Australia, Melbourne, Victoria, Australia., Boyd R; Retina Australia, Melbourne, Victoria, Australia., Karandrews S; Blind Citizens Australia, Sydney, New South Wales, Australia., Feller H; UsherKids Australia, Melbourne, Victoria, Australia., Simunovic MP; The Sydney Children's Hospitals Network, Westmead, New South Wales, Australia.; Save Sight Institute, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.; Sydney Hospital and Sydney Eye Hospital, Sydney, New South Wales, Australia., Grigg JR; The Sydney Children's Hospitals Network, Westmead, New South Wales, Australia.; Eye Genetics Research Unit, Children's Medical Research Institute, Westmead, New South Wales, Australia.; Save Sight Institute, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.; Sydney Hospital and Sydney Eye Hospital, Sydney, New South Wales, Australia., Yamamoto K; N/A, N/A, N/A, Australia., Wakefield CE; School of Clinical Medicine, UNSW Medicine and Health, University of New South Wales, Sydney, New South Wales, Australia.; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospitals Network Randwick, Randwick, New South Wales, Australia., Gonzalez-Cordero A; Stem Cell Medicine Group, Children's Medical Research Institute, Westmead, New South Wales, Australia.; School of Medical Sciences, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
Source: BMJ open [BMJ Open] 2025 Sep 30; Vol. 15 (9), pp. e100301. Date of Electronic Publication: 2025 Sep 30.
Publication Type: Journal Article
Journal Info: Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN: 2044-6055 (Electronic) Linking ISSN: 20446055 NLM ISO Abbreviation: BMJ Open Subsets: MEDLINE
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  Data: Australian research priorities for inherited retinal diseases: a James Lind Alliance priority setting partnership.
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  Data: <searchLink fieldCode="AU" term="%22Robertson+EG%22">Robertson EG</searchLink>; School of Clinical Medicine, UNSW Medicine and Health, University of New South Wales, Sydney, New South Wales, Australia eden.robertson@unsw.edu.au.; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospitals Network Randwick, Randwick, New South Wales, Australia.; Stem Cell Medicine Group, Children's Medical Research Institute, Westmead, New South Wales, Australia.<br /><searchLink fieldCode="AU" term="%22Hetherington+K%22">Hetherington K</searchLink>; School of Clinical Medicine, UNSW Medicine and Health, University of New South Wales, Sydney, New South Wales, Australia.; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospitals Network Randwick, Randwick, New South Wales, Australia.<br /><searchLink fieldCode="AU" term="%22Prain+M%22">Prain M</searchLink>; Able Australia Services, Melbourne, Victoria, Australia.; University of School of Health Sciences, Audiology and Speech Pathology, The University of Melbourne, Parkville Campus, Melbourne, Victoria, Australia.<br /><searchLink fieldCode="AU" term="%22Ma+A%22">Ma A</searchLink>; Eye Genetics Research Unit, Children's Medical Research Institute, The University of Sydney, Sydney, New South Wales, Australia.; The Sydney Children's Hospitals Network, Westmead, New South Wales, Australia.; Specialty of Genomic Medicine, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.<br /><searchLink fieldCode="AU" term="%22Ayton+LN%22">Ayton LN</searchLink>; Departments of Optometry and Vision Sciences, and Surgery (Ophthalmology), The University of Melbourne, Parkville Campus, Melbourne, Victoria, Australia.; Centre for Eye Research Australia, Royal Victorian Eye and Ear Hospital, East Melbourne, Victoria, Australia.<br /><searchLink fieldCode="AU" term="%22Jamieson+RV%22">Jamieson RV</searchLink>; Specialty of Genomic Medicine, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.; Department of Clinical Genetics, The Sydney Children's Hospitals Network, Westmead, New South Wales, Australia.; Eye Genetics Research Unit, Children's Medical Research Institute, Westmead, New South Wales, Australia.<br /><searchLink fieldCode="AU" term="%22Shepard+E%22">Shepard E</searchLink>; Departments of Optometry and Vision Sciences, and Surgery (Ophthalmology), The University of Melbourne, Parkville Campus, Melbourne, Victoria, Australia.; UsherKids Australia, Melbourne, Victoria, Australia.; Murdoch Children's Research Institute, Parkville, Victoria, Australia.<br /><searchLink fieldCode="AU" term="%22Boyd+L%22">Boyd L</searchLink>; Retina Australia, Melbourne, Victoria, Australia.<br /><searchLink fieldCode="AU" term="%22Hall+J%22">Hall J</searchLink>; Retina Australia, Melbourne, Victoria, Australia.<br /><searchLink fieldCode="AU" term="%22Boyd+R%22">Boyd R</searchLink>; Retina Australia, Melbourne, Victoria, Australia.<br /><searchLink fieldCode="AU" term="%22Karandrews+S%22">Karandrews S</searchLink>; Blind Citizens Australia, Sydney, New South Wales, Australia.<br /><searchLink fieldCode="AU" term="%22Feller+H%22">Feller H</searchLink>; UsherKids Australia, Melbourne, Victoria, Australia.<br /><searchLink fieldCode="AU" term="%22Simunovic+MP%22">Simunovic MP</searchLink>; The Sydney Children's Hospitals Network, Westmead, New South Wales, Australia.; Save Sight Institute, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.; Sydney Hospital and Sydney Eye Hospital, Sydney, New South Wales, Australia.<br /><searchLink fieldCode="AU" term="%22Grigg+JR%22">Grigg JR</searchLink>; The Sydney Children's Hospitals Network, Westmead, New South Wales, Australia.; Eye Genetics Research Unit, Children's Medical Research Institute, Westmead, New South Wales, Australia.; Save Sight Institute, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.; Sydney Hospital and Sydney Eye Hospital, Sydney, New South Wales, Australia.<br /><searchLink fieldCode="AU" term="%22Yamamoto+K%22">Yamamoto K</searchLink>; N/A, N/A, N/A, Australia.<br /><searchLink fieldCode="AU" term="%22Wakefield+CE%22">Wakefield CE</searchLink>; School of Clinical Medicine, UNSW Medicine and Health, University of New South Wales, Sydney, New South Wales, Australia.; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospitals Network Randwick, Randwick, New South Wales, Australia.<br /><searchLink fieldCode="AU" term="%22Gonzalez-Cordero+A%22">Gonzalez-Cordero A</searchLink>; Stem Cell Medicine Group, Children's Medical Research Institute, Westmead, New South Wales, Australia.; School of Medical Sciences, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
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