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Person-centred care in congenital heart disease: Intercountry variation in patient-reported experiences across 32 countries.

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Title: Person-centred care in congenital heart disease: Intercountry variation in patient-reported experiences across 32 countries.
Authors: Lykkeberg B; Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark; AHEPA University Hospital, Aristotle University of Thessaloniki, Greece. Electronic address: Birgitte.lykkeberg.01@regionh.dk., Christensen AV; University of Southern Denmark, Odense, Denmark., Berg SK; Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark., Larsen SH; Novo Nordisk A/S, Søborg, Denmark., Van Bulck L; KU Leuven - University of Leuven, Leuven, Belgium; Research Foundation Flanders (FWO), Brussels, Belgium., Goossens E; KU Leuven - University of Leuven, Leuven, Belgium; Center for Research and Innovation in Care, Faculty of Medicine and Health Sciences, University of Antwerp, Antwerp, Belgium., Kovacs AH; Equilibria Psychological Health, Toronto, (ON), Canada., Luyckx K; KU Leuven - University of Leuven, Leuven, Belgium; University of the Free State, Bloemfontein, South Africa., Ladak LA; Aga Khan University, Karachi, Pakistan., Leye M; Université Iba Der Thiam de Thiés,Thiés, Senegal., Van De Bruaene A; KU Leuven - University of Leuven, Leuven, Belgium; University Hospitals Leuven, Leuven, Belgium., Leong MC; IJN(National Heart Institute), Kuala Lumpur, Malaysia., Kaneva A; National Heart Hospital, Sofia, Bulgaria., Amaral F; University Hospital, Ribeirão Preto Medical School, Brazil., Araujo JJ; Meintegral-Clinic, Manizales, Colombia., Sasikumar N; Amrita Institute of Medical Sciences, Kochi, Kerala, India., Gabriel H; Medical University of Vienna, Vienna, Austria., Goshu DY; Addis Ababa University, Addis Ababa, Ethiopia., Wang JK; National Taiwan University Hospital, Taipei City, Taiwan., Enomoto J; Tokyo University, Tokyo, Japan; Chiba Cerebral and Cardiovascular Center, Chiba, Japan., Areias ME; UnIC@RISE, Faculty of Medicine, University of Porto, Portugal., Kosmidis D; Freeman Hospital, Newcastle upon Tyne, United Kingdom., Coats L; Newcastle University, Newcastle upon Tyne, United Kingdom., Valente AM; Boston Children's Hospital, Brigham and Women's Hospital, Harvard Medical School, Boston, Massachusetts, USA., Moon JR; Samsung Medical Center, Seoul, South Korea., Ladouceur M; Hôpital Européen Georges Pompidou, AP-HP, Paris, France; Hôpitaux Universitaires de Genève, Genève, Switzerland., Thomet C; Lindenhofgruppe Bern, Bern, Switzerland., Jackson JL; Nationwide Children's Hospital, Columbus, Ohio, USA., Sandberg C; Department of Community Medicine and Rehabilitation, Umeå University Umeå, Sweden., Callus E; Clinical Psychology Service, IRCCS Policlinico San Donato, San Donato Milanese, Milan, Italy; Department of Biomedical Sciences for Health, University of Milan, Milan, Italy., Kim YY; Hospital of the University of Pennsylvania and Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA., Alday L; Hospital de Niños, Cordoba, Argentina., Bredy C; Montpellier University Hospital, Montpellier, France., Saidi A; University of Florida Health, Gainesville, FL, USA., Reyes FB; Pontificia Universidad Católica de Chile and Instituto Nacional Del Torax, Santiago, Chile., Menahem S; Monash University, Melbourne, Australia., de Hosson M; Ghent University Hospital, Ghent, Belgium., Hlebowicz J; Lund University, Skåne University Hospital, Lund, Sweden., Christersson C; Department of Medical Sciences, Uppsala University, Uppsala, Sweden., Zaidi A; Mount Sinai Heart, New York, New York, USA., Johansson B; Department of Diagnostics and Intervention, Umeå University, Umeå, Sweden., Andresen B; Oslo University Hospital, Rikshospitalet, Oslo, Norway., Ambassa JC; Clinique Medical Le Jourdain, Yaoundé, Cameroon., Mandalenakis Z; University of Gothenburg, Gothenburg, Sweden., Constantine A; Royal Brompton Hospital, Royal Brompton & Harefield Hospitals, Guy's and St Thomas' NHS Foundation Trust, London, UK., Amedro P; Hôpital cardiologique Haut-Leveque, Bordeaux, France., Van Melle JP; University Medical Center Groningen, Groningen, the Netherlands., Cedars A; John Hopkins Hospital, Baltimore, MD, USA., Ortiz L; Hospital San Juan De Dios De La Plata, Buenos Aires, Argentina., Demir F; Ege University, Faculty of Nursing, Bornova/Izmir, Turkey., Khairy P; Montreal Heart Institute, Université de Montréal, Montreal, Canada., Windram J; Mazankowski Alberta Heart Institute, University of Alberta, Edmonton, Canada., Bouchardy J; Lindenhofgruppe Bern, Bern, Switzerland; Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland., Caruana M; Mater Dei Hospital, L-Imsida, Malta., Jameson SM; Stanford University, School of Medicine, Stanford, California, USA., Mahadevan VS; University of California San Francisco (UCSF), San Francisco, California, USA; University of Of Massachusetts Chan School of Medicine, USA., McGrath LB; Oregon Health & Science University, Portland, Oregon, USA., Mwita JC; University of Botswana and Princess Marina Hospital, Gaborone, Botswana., Moons P; KU Leuven - University of Leuven, Leuven, Belgium; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
Corporate Authors: APPROACH-IS II consortium, on behalf of the International Society for Adults Congenital Heart Disease (ISACHD)
Source: International journal of cardiology [Int J Cardiol] 2026 Feb 01; Vol. 444, pp. 133958. Date of Electronic Publication: 2025 Oct 08.
Publication Type: Journal Article; Multicenter Study
Journal Info: Publisher: Elsevier Country of Publication: Netherlands NLM ID: 8200291 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1874-1754 (Electronic) Linking ISSN: 01675273 NLM ISO Abbreviation: Int J Cardiol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Person-centred care in congenital heart disease: Intercountry variation in patient-reported experiences across 32 countries.
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  Data: <searchLink fieldCode="AU" term="%22Lykkeberg+B%22">Lykkeberg B</searchLink>; Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark; AHEPA University Hospital, Aristotle University of Thessaloniki, Greece. 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KU Leuven - University of Leuven, Leuven, Belgium; University of the Free State, Bloemfontein, South Africa.<br /><searchLink fieldCode="AU" term="%22Ladak+LA%22">Ladak LA</searchLink>; Aga Khan University, Karachi, Pakistan.<br /><searchLink fieldCode="AU" term="%22Leye+M%22">Leye M</searchLink>; Université Iba Der Thiam de Thiés,Thiés, Senegal.<br /><searchLink fieldCode="AU" term="%22Van+De+Bruaene+A%22">Van De Bruaene A</searchLink>; KU Leuven - University of Leuven, Leuven, Belgium; University Hospitals Leuven, Leuven, Belgium.<br /><searchLink fieldCode="AU" term="%22Leong+MC%22">Leong MC</searchLink>; IJN(National Heart Institute), Kuala Lumpur, Malaysia.<br /><searchLink fieldCode="AU" term="%22Kaneva+A%22">Kaneva A</searchLink>; National Heart Hospital, Sofia, Bulgaria.<br /><searchLink fieldCode="AU" term="%22Amaral+F%22">Amaral F</searchLink>; University Hospital, Ribeirão Preto Medical School, Brazil.<br /><searchLink fieldCode="AU" term="%22Araujo+JJ%22">Araujo JJ</searchLink>; 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KU Leuven - University of Leuven, Leuven, Belgium; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
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              Type: published
              Y: 2026
          Identifiers:
            – Type: issn-electronic
              Value: 1874-1754
          Numbering:
            – Type: volume
              Value: 444
          Titles:
            – TitleFull: International journal of cardiology
              Type: main
ResultId 1