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Core outcome domain sets for clinical trials in epidermolysis bullosa - a COSEB protocol to achieve consensus on "what" to measure.

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Title: Core outcome domain sets for clinical trials in epidermolysis bullosa - a COSEB protocol to achieve consensus on "what" to measure.
Authors: Korte EWH; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands., van den Akker PC; Department of Genetics, UMCG Center of Expertise for Blistering Diseases, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands., Kiritsi D; Department of Dermatology, Medical Center, Faculty of Medicine, University of Freiburg, Freiburg, Germany.; First Department of Dermatology, Faculty of Medicine, Aristotle University of Thessaloniki, Thessaloniki, Greece., Kottner J; Charité-Universitätsmedizin Berlin, Institute of Clinical Nursing Science, Berlin, Germany., Pasmooij AMG; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.; Dutch Medicines Evaluation Board, Utrecht, The Netherlands.; Division of Pharmacoepidemiology and Clinical Pharmacology, Utrecht Institute for Pharmaceutical Sciences (UIPS), Utrecht University, Utrecht, The Netherlands., Prinsen CAC; CHORD COUSIN Collaboration, Amsterdam Public Health, Infection and Immunity, Department of Dermatology, Academic Medical Center, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands., Wally V; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria., Welponer T; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria., Spuls PI; Department of Dermatology, Academic Medical Center, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.; Amsterdam Public Health, Infection and Immunity, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands., Laimer M; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria., Bolling MC; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands. m.c.bolling@umcg.nl.
Corporate Authors: COSEB Consortium
Source: Trials [Trials] 2025 Oct 09; Vol. 26 (1), pp. 399. Date of Electronic Publication: 2025 Oct 09.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101263253 Publication Model: Electronic Cited Medium: Internet ISSN: 1745-6215 (Electronic) Linking ISSN: 17456215 NLM ISO Abbreviation: Trials Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Korte+EWH%22">Korte EWH</searchLink>; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.<br /><searchLink fieldCode="AU" term="%22van+den+Akker+PC%22">van den Akker PC</searchLink>; Department of Genetics, UMCG Center of Expertise for Blistering Diseases, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Kiritsi+D%22">Kiritsi D</searchLink>; Department of Dermatology, Medical Center, Faculty of Medicine, University of Freiburg, Freiburg, Germany.; First Department of Dermatology, Faculty of Medicine, Aristotle University of Thessaloniki, Thessaloniki, Greece.<br /><searchLink fieldCode="AU" term="%22Kottner+J%22">Kottner J</searchLink>; Charité-Universitätsmedizin Berlin, Institute of Clinical Nursing Science, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Pasmooij+AMG%22">Pasmooij AMG</searchLink>; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.; Dutch Medicines Evaluation Board, Utrecht, The Netherlands.; Division of Pharmacoepidemiology and Clinical Pharmacology, Utrecht Institute for Pharmaceutical Sciences (UIPS), Utrecht University, Utrecht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Prinsen+CAC%22">Prinsen CAC</searchLink>; CHORD COUSIN Collaboration, Amsterdam Public Health, Infection and Immunity, Department of Dermatology, Academic Medical Center, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Wally+V%22">Wally V</searchLink>; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria.<br /><searchLink fieldCode="AU" term="%22Welponer+T%22">Welponer T</searchLink>; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria.<br /><searchLink fieldCode="AU" term="%22Spuls+PI%22">Spuls PI</searchLink>; Department of Dermatology, Academic Medical Center, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.; Amsterdam Public Health, Infection and Immunity, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Laimer+M%22">Laimer M</searchLink>; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria.<br /><searchLink fieldCode="AU" term="%22Bolling+MC%22">Bolling MC</searchLink>; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands. m.c.bolling@umcg.nl.
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              Text: 2025 Oct 09
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