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The Healthcare Amyloidosis European Registry (HEAR): design of a national registry with a European extension strategy, and foundation of the F-CRIN GRACE network.

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Title: The Healthcare Amyloidosis European Registry (HEAR): design of a national registry with a European extension strategy, and foundation of the F-CRIN GRACE network.
Authors: Réant P; Bordeaux University Medical Center, Bordeaux University, CIC-P 1401, Bordeaux, France.; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France., Kharoubi M; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Referral Center for Cardiac Amyloidosis, Filiere Cardiogen, GRC Amyloid Research Institute, APHP CHU Henri Mondor, Créteil, France.; Heart's Foundation, Vincennes, France.; Institut National de la Santé et de la Recherche Médicale (INSERM) U955, Clinical Epidemiology and Ageing (CEpiA) at Henri Mondor University Hospital and Institut Henri Mondor University Hospital, F-Créteil, France., Donal E; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Université de Rennes, CHU Rennes, Service de Cardiologie Inserm, LTSI - UMR 1099, Rennes, France., Bauer F; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHRU Charles Nicolle, Rouen, France., Bézard M; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Referral Center for Cardiac Amyloidosis, Filiere Cardiogen, GRC Amyloid Research Institute, APHP CHU Henri Mondor, Créteil, France.; Heart's Foundation, Vincennes, France., Bisson A; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHRU de Tours, Tours, France.; Department of Cardiology, CHU Orleans, Orleans, France., Bodez D; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Centre Cardiologique du Nord, Saint Denis, France., Bouchot O; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Centre Hospitalier Annecy Genevois, Epagny-Metz-Tessy, France., Cariou E; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Cardiac Imaging Centre, University Hospital of Toulouse, Toulouse, France., Charron P; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; APHP, Department of Cardiology & Department of Genetics, Sorbonne Université, IHU ICAN, CHU Pitié Salpêtrière, Paris, France., Costa J; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU Robert Debré, Reims, France., Courand PY; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Hôpital de la Croix Rousse et Lyon Sud, Hospice Civil de Lyon, Lyon, France., Dagrenat C; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Centre Hospitalier Haguenau, Hagueneau, France., Delelis F; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, GHICL Hôpital St Vincent et St Philibert, Lille, France., Duval AJ; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Hôpital Louis Pradel, Bron, Hospice Civil de Lyon, Lyon, 69008, France., Eicher JC; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU de Dijon Bourgogne, Hôpital François Mitterrand, Dijon, France., Fraix A; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHRU de Nancy - Hôpitaux Brabois, Vandoeuvre lès Nancy, France., Gellen B; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Polyclinique de Poitiers Elsan, Poitiers, France., Gueffet JP; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Hôpital Privé Confluent, Nantes, France., Guijarro D; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Groupe Hospitalier Mutualiste, Grenoble, France., Habib G; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Assistance Publique Hôpitaux de Marseille, CHU de La Timone, Marseille, France., Hagège A; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, APHP Centre Hospitalier Georges Pompidou, Paris, France.; Faculty of Medicine, Paris Descartes University, Sorbonne Paris Cité, Paris, France.; Paris Cardiovascular Research Center, INSERM, UMR-970, Paris, France., Huttin O; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHRU de Nancy - Hôpitaux Brabois, Vandoeuvre lès Nancy, France., Jaccard A; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU Dupuytren, Limoges, France., Jeanneteau J; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Clinique Saint Joseph, Trelazé, France., Legallois D; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU de Caen, Caen, France., Logeart D; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Groupe Hospitalier Mutualiste, Grenoble, France.; Department of Cardiology, APHP, CHU Lariboisière, Paris, France., Legrand L; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, APHP CHU Pitié Salpétrière, Paris, France., Inamo J; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU de Martinique, Fort de France, France., Marguerit L; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Groupe Hospitalier Mutualiste, Grenoble, France., Mirailles R; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, APHP, CHU Lariboisière, Paris, France.; MIRACL.ai Laboratory, Multimodality Imaging for Research and Analysis Core Laboratory and Artificial Intelligence, Lariboisiere University Hospital (AP-HP), Paris, France., Pezel T; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, APHP, CHU Lariboisière, Paris, France.; MIRACL.ai Laboratory, Multimodality Imaging for Research and Analysis Core Laboratory and Artificial Intelligence, Lariboisiere University Hospital (AP-HP), Paris, France., Piriou N; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Nantes Université, CHU Nantes, INSERM, Cardiology Department, CIC 1413, Institut du Thorax, Nantes, France., Roubille F; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU de Montpellier, Montpellier, France., Mouhat B; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU de Besancon, Besancon Cedex, France., Trésorier R; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU de Clermont Ferrand, Clermont Ferrand, France., Von Hunolstein JJ; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Nouvel Hôpital Civil - Hôpitaux Universitaires de Strasbourg, Strasbourg, France., Taieb C; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Heart's Foundation, Vincennes, France.; European Market Maintenance Assessment, Fontenay sous-Bois, France., Salvat M; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU Grenoble-Alpes, La Tronche, France., Zaroui A; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Referral Center for Cardiac Amyloidosis, Filiere Cardiogen, GRC Amyloid Research Institute, APHP CHU Henri Mondor, Créteil, France.; Heart's Foundation, Vincennes, France.; Institut National de la Santé et de la Recherche Médicale (INSERM) U955, Clinical Epidemiology and Ageing (CEpiA) at Henri Mondor University Hospital and Institut Henri Mondor University Hospital, F-Créteil, France., Lairez O; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Centre Hospitalier Annecy Genevois, Epagny-Metz-Tessy, France., Damy T; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France. thibaud.damy@aphp.fr.; Department of Cardiology, Referral Center for Cardiac Amyloidosis, Filiere Cardiogen, GRC Amyloid Research Institute, APHP CHU Henri Mondor, Créteil, France. thibaud.damy@aphp.fr.; Heart's Foundation, Vincennes, France. thibaud.damy@aphp.fr.; Institut National de la Santé et de la Recherche Médicale (INSERM) U955, Clinical Epidemiology and Ageing (CEpiA) at Henri Mondor University Hospital and Institut Henri Mondor University Hospital, F-Créteil, France. thibaud.damy@aphp.fr.
Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2025 Oct 27; Vol. 20 (1), pp. 534. Date of Electronic Publication: 2025 Oct 27.
Publication Type: Journal Article; Research Support, Non-U.S. Gov't
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: The Healthcare Amyloidosis European Registry (HEAR): design of a national registry with a European extension strategy, and foundation of the F-CRIN GRACE network.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AU" term="%22Réant+P%22">Réant P</searchLink>; Bordeaux University Medical Center, Bordeaux University, CIC-P 1401, Bordeaux, France.; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.<br /><searchLink fieldCode="AU" term="%22Kharoubi+M%22">Kharoubi M</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Referral Center for Cardiac Amyloidosis, Filiere Cardiogen, GRC Amyloid Research Institute, APHP CHU Henri Mondor, Créteil, France.; Heart's Foundation, Vincennes, France.; Institut National de la Santé et de la Recherche Médicale (INSERM) U955, Clinical Epidemiology and Ageing (CEpiA) at Henri Mondor University Hospital and Institut Henri Mondor University Hospital, F-Créteil, France.<br /><searchLink fieldCode="AU" term="%22Donal+E%22">Donal E</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Université de Rennes, CHU Rennes, Service de Cardiologie Inserm, LTSI - UMR 1099, Rennes, France.<br /><searchLink fieldCode="AU" term="%22Bauer+F%22">Bauer F</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHRU Charles Nicolle, Rouen, France.<br /><searchLink fieldCode="AU" term="%22Bézard+M%22">Bézard M</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Referral Center for Cardiac Amyloidosis, Filiere Cardiogen, GRC Amyloid Research Institute, APHP CHU Henri Mondor, Créteil, France.; Heart's Foundation, Vincennes, France.<br /><searchLink fieldCode="AU" term="%22Bisson+A%22">Bisson A</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHRU de Tours, Tours, France.; Department of Cardiology, CHU Orleans, Orleans, France.<br /><searchLink fieldCode="AU" term="%22Bodez+D%22">Bodez D</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Centre Cardiologique du Nord, Saint Denis, France.<br /><searchLink fieldCode="AU" term="%22Bouchot+O%22">Bouchot O</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Centre Hospitalier Annecy Genevois, Epagny-Metz-Tessy, France.<br /><searchLink fieldCode="AU" term="%22Cariou+E%22">Cariou E</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Cardiac Imaging Centre, University Hospital of Toulouse, Toulouse, France.<br /><searchLink fieldCode="AU" term="%22Charron+P%22">Charron P</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; APHP, Department of Cardiology & Department of Genetics, Sorbonne Université, IHU ICAN, CHU Pitié Salpêtrière, Paris, France.<br /><searchLink fieldCode="AU" term="%22Costa+J%22">Costa J</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU Robert Debré, Reims, France.<br /><searchLink fieldCode="AU" term="%22Courand+PY%22">Courand PY</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Hôpital de la Croix Rousse et Lyon Sud, Hospice Civil de Lyon, Lyon, France.<br /><searchLink fieldCode="AU" term="%22Dagrenat+C%22">Dagrenat C</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Centre Hospitalier Haguenau, Hagueneau, France.<br /><searchLink fieldCode="AU" term="%22Delelis+F%22">Delelis F</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, GHICL Hôpital St Vincent et St Philibert, Lille, France.<br /><searchLink fieldCode="AU" term="%22Duval+AJ%22">Duval AJ</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Hôpital Louis Pradel, Bron, Hospice Civil de Lyon, Lyon, 69008, France.<br /><searchLink fieldCode="AU" term="%22Eicher+JC%22">Eicher JC</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU de Dijon Bourgogne, Hôpital François Mitterrand, Dijon, France.<br /><searchLink fieldCode="AU" term="%22Fraix+A%22">Fraix A</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHRU de Nancy - Hôpitaux Brabois, Vandoeuvre lès Nancy, France.<br /><searchLink fieldCode="AU" term="%22Gellen+B%22">Gellen B</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Polyclinique de Poitiers Elsan, Poitiers, France.<br /><searchLink fieldCode="AU" term="%22Gueffet+JP%22">Gueffet JP</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Hôpital Privé Confluent, Nantes, France.<br /><searchLink fieldCode="AU" term="%22Guijarro+D%22">Guijarro D</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Groupe Hospitalier Mutualiste, Grenoble, France.<br /><searchLink fieldCode="AU" term="%22Habib+G%22">Habib G</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Assistance Publique Hôpitaux de Marseille, CHU de La Timone, Marseille, France.<br /><searchLink fieldCode="AU" term="%22Hagège+A%22">Hagège A</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, APHP Centre Hospitalier Georges Pompidou, Paris, France.; Faculty of Medicine, Paris Descartes University, Sorbonne Paris Cité, Paris, France.; Paris Cardiovascular Research Center, INSERM, UMR-970, Paris, France.<br /><searchLink fieldCode="AU" term="%22Huttin+O%22">Huttin O</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHRU de Nancy - Hôpitaux Brabois, Vandoeuvre lès Nancy, France.<br /><searchLink fieldCode="AU" term="%22Jaccard+A%22">Jaccard A</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU Dupuytren, Limoges, France.<br /><searchLink fieldCode="AU" term="%22Jeanneteau+J%22">Jeanneteau J</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Clinique Saint Joseph, Trelazé, France.<br /><searchLink fieldCode="AU" term="%22Legallois+D%22">Legallois D</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU de Caen, Caen, France.<br /><searchLink fieldCode="AU" term="%22Logeart+D%22">Logeart D</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Groupe Hospitalier Mutualiste, Grenoble, France.; Department of Cardiology, APHP, CHU Lariboisière, Paris, France.<br /><searchLink fieldCode="AU" term="%22Legrand+L%22">Legrand L</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, APHP CHU Pitié Salpétrière, Paris, France.<br /><searchLink fieldCode="AU" term="%22Inamo+J%22">Inamo J</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU de Martinique, Fort de France, France.<br /><searchLink fieldCode="AU" term="%22Marguerit+L%22">Marguerit L</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Groupe Hospitalier Mutualiste, Grenoble, France.<br /><searchLink fieldCode="AU" term="%22Mirailles+R%22">Mirailles R</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, APHP, CHU Lariboisière, Paris, France.; MIRACL.ai Laboratory, Multimodality Imaging for Research and Analysis Core Laboratory and Artificial Intelligence, Lariboisiere University Hospital (AP-HP), Paris, France.<br /><searchLink fieldCode="AU" term="%22Pezel+T%22">Pezel T</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, APHP, CHU Lariboisière, Paris, France.; MIRACL.ai Laboratory, Multimodality Imaging for Research and Analysis Core Laboratory and Artificial Intelligence, Lariboisiere University Hospital (AP-HP), Paris, France.<br /><searchLink fieldCode="AU" term="%22Piriou+N%22">Piriou N</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Nantes Université, CHU Nantes, INSERM, Cardiology Department, CIC 1413, Institut du Thorax, Nantes, France.<br /><searchLink fieldCode="AU" term="%22Roubille+F%22">Roubille F</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU de Montpellier, Montpellier, France.<br /><searchLink fieldCode="AU" term="%22Mouhat+B%22">Mouhat B</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU de Besancon, Besancon Cedex, France.<br /><searchLink fieldCode="AU" term="%22Trésorier+R%22">Trésorier R</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU de Clermont Ferrand, Clermont Ferrand, France.<br /><searchLink fieldCode="AU" term="%22Von+Hunolstein+JJ%22">Von Hunolstein JJ</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Nouvel Hôpital Civil - Hôpitaux Universitaires de Strasbourg, Strasbourg, France.<br /><searchLink fieldCode="AU" term="%22Taieb+C%22">Taieb C</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Heart's Foundation, Vincennes, France.; European Market Maintenance Assessment, Fontenay sous-Bois, France.<br /><searchLink fieldCode="AU" term="%22Salvat+M%22">Salvat M</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, CHU Grenoble-Alpes, La Tronche, France.<br /><searchLink fieldCode="AU" term="%22Zaroui+A%22">Zaroui A</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Referral Center for Cardiac Amyloidosis, Filiere Cardiogen, GRC Amyloid Research Institute, APHP CHU Henri Mondor, Créteil, France.; Heart's Foundation, Vincennes, France.; Institut National de la Santé et de la Recherche Médicale (INSERM) U955, Clinical Epidemiology and Ageing (CEpiA) at Henri Mondor University Hospital and Institut Henri Mondor University Hospital, F-Créteil, France.<br /><searchLink fieldCode="AU" term="%22Lairez+O%22">Lairez O</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France.; Department of Cardiology, Centre Hospitalier Annecy Genevois, Epagny-Metz-Tessy, France.<br /><searchLink fieldCode="AU" term="%22Damy+T%22">Damy T</searchLink>; F-CRIN GRACE Network and Réseau Amylose, F-CRIN GRACE, 1 rue Gustave Eiffel, Creteil, F-94000, France. thibaud.damy@aphp.fr.; Department of Cardiology, Referral Center for Cardiac Amyloidosis, Filiere Cardiogen, GRC Amyloid Research Institute, APHP CHU Henri Mondor, Créteil, France. thibaud.damy@aphp.fr.; Heart's Foundation, Vincennes, France. thibaud.damy@aphp.fr.; Institut National de la Santé et de la Recherche Médicale (INSERM) U955, Clinical Epidemiology and Ageing (CEpiA) at Henri Mondor University Hospital and Institut Henri Mondor University Hospital, F-Créteil, France. thibaud.damy@aphp.fr.
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  Data: <searchLink fieldCode="JN" term="%22101266602%22">Orphanet journal of rare diseases</searchLink> [Orphanet J Rare Dis] 2025 Oct 27; Vol. 20 (1), pp. 534. <i>Date of Electronic Publication: </i>2025 Oct 27.
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  Data: Journal Article; Research Support, Non-U.S. Gov't
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101266602 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1750-1172 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2217501172%22">17501172 </searchLink><i>NLM ISO Abbreviation: </i>Orphanet J Rare Dis <i>Subsets: </i>MEDLINE
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        StartPage: 534
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      – TitleFull: The Healthcare Amyloidosis European Registry (HEAR): design of a national registry with a European extension strategy, and foundation of the F-CRIN GRACE network.
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              Text: 2025 Oct 27
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