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Congruence Between Child Self-Reported and Caregiver-Proxy-Reported Health-Related Quality of Life in Children With Juvenile Idiopathic Arthritis and Systemic Lupus Erythematosus.

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Title: Congruence Between Child Self-Reported and Caregiver-Proxy-Reported Health-Related Quality of Life in Children With Juvenile Idiopathic Arthritis and Systemic Lupus Erythematosus.
Authors: Chan YN; Y.N. Chan, PhD, RN, L. Lin, MS, Department of Population Health Sciences, Duke University, Durham, North Carolina; yaningchan90@gmail.com., Ardalan K; K. Ardalan, MD, MS, Department of Pediatrics, Division of Pediatric Rheumatology, Duke University, Durham, North Carolina., Lin L; Y.N. Chan, PhD, RN, L. Lin, MS, Department of Population Health Sciences, Duke University, Durham, North Carolina., Chen D; D. Chen, PhD, Department of Surgery, Massachusetts General Hospital, Boston, Massachusetts., Weitzman ER; E.R. Weitzman, ScD, MSc, Department of Pediatrics, Harvard Medical School, and Division of Adolescent/Young Adult Medicine, Boston Children's Hospital, Boston, Massachusetts., Dedeoglu F; F. Dedeoglu, MD, Department of Pediatrics, Harvard Medical School, Division of Immunology, Boston Children's Hospital, Boston, Massachusetts., Vehe RK; R.K. Vehe, MD, Department of Pediatrics, Division of Pediatric Rheumatology, University of Minnesota, Minneapolis, Minnesota., von Scheven E; E. von Scheven, MD, MAS, Department of Pediatrics, University of California San Francisco, San Francisco, California., Kimura Y; Y. Kimura, MD, Pediatric Rheumatology, Joseph M. Sanzari Children's Hospital, Hackensack Meridian School of Medicine, Nutley, New Jersey., Schanberg LE; L.E. Schanberg, MD, Department of Pediatrics, Duke University, and Duke Clinical Research Institute, Durham, North Carolina., Reeve BB; B.B. Reeve, PhD, Department of Population Health Sciences, Duke University, and Department of Pediatrics, Duke University, and Duke Clinical Research Institute, Durham, North Carolina, USA.
Corporate Authors: CARRA Registry Investigators
Source: The Journal of rheumatology [J Rheumatol] 2026 May 01; Vol. 53 (5), pp. 537-546. Date of Electronic Publication: 2026 May 01.
Publication Type: Journal Article; Observational Study
Journal Info: Publisher: Journal Of Rheumatology Publishing Co Country of Publication: Canada NLM ID: 7501984 Publication Model: Electronic Cited Medium: Internet ISSN: 1499-2752 (Electronic) Linking ISSN: 0315162X NLM ISO Abbreviation: J Rheumatol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Congruence Between Child Self-Reported and Caregiver-Proxy-Reported Health-Related Quality of Life in Children With Juvenile Idiopathic Arthritis and Systemic Lupus Erythematosus.
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  Data: <searchLink fieldCode="AU" term="%22Chan+YN%22">Chan YN</searchLink>; Y.N. Chan, PhD, RN, L. Lin, MS, Department of Population Health Sciences, Duke University, Durham, North Carolina; yaningchan90@gmail.com.<br /><searchLink fieldCode="AU" term="%22Ardalan+K%22">Ardalan K</searchLink>; K. Ardalan, MD, MS, Department of Pediatrics, Division of Pediatric Rheumatology, Duke University, Durham, North Carolina.<br /><searchLink fieldCode="AU" term="%22Lin+L%22">Lin L</searchLink>; Y.N. Chan, PhD, RN, L. Lin, MS, Department of Population Health Sciences, Duke University, Durham, North Carolina.<br /><searchLink fieldCode="AU" term="%22Chen+D%22">Chen D</searchLink>; D. Chen, PhD, Department of Surgery, Massachusetts General Hospital, Boston, Massachusetts.<br /><searchLink fieldCode="AU" term="%22Weitzman+ER%22">Weitzman ER</searchLink>; E.R. Weitzman, ScD, MSc, Department of Pediatrics, Harvard Medical School, and Division of Adolescent/Young Adult Medicine, Boston Children's Hospital, Boston, Massachusetts.<br /><searchLink fieldCode="AU" term="%22Dedeoglu+F%22">Dedeoglu F</searchLink>; F. Dedeoglu, MD, Department of Pediatrics, Harvard Medical School, Division of Immunology, Boston Children's Hospital, Boston, Massachusetts.<br /><searchLink fieldCode="AU" term="%22Vehe+RK%22">Vehe RK</searchLink>; R.K. Vehe, MD, Department of Pediatrics, Division of Pediatric Rheumatology, University of Minnesota, Minneapolis, Minnesota.<br /><searchLink fieldCode="AU" term="%22von+Scheven+E%22">von Scheven E</searchLink>; E. von Scheven, MD, MAS, Department of Pediatrics, University of California San Francisco, San Francisco, California.<br /><searchLink fieldCode="AU" term="%22Kimura+Y%22">Kimura Y</searchLink>; Y. Kimura, MD, Pediatric Rheumatology, Joseph M. Sanzari Children's Hospital, Hackensack Meridian School of Medicine, Nutley, New Jersey.<br /><searchLink fieldCode="AU" term="%22Schanberg+LE%22">Schanberg LE</searchLink>; L.E. Schanberg, MD, Department of Pediatrics, Duke University, and Duke Clinical Research Institute, Durham, North Carolina.<br /><searchLink fieldCode="AU" term="%22Reeve+BB%22">Reeve BB</searchLink>; B.B. Reeve, PhD, Department of Population Health Sciences, Duke University, and Department of Pediatrics, Duke University, and Duke Clinical Research Institute, Durham, North Carolina, USA.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Journal+Of+Rheumatology+Publishing+Co%22">Journal Of Rheumatology Publishing Co </searchLink><i>Country of Publication: </i>Canada <i>NLM ID: </i>7501984 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1499-2752 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%220315162X%22">0315162X </searchLink><i>NLM ISO Abbreviation: </i>J Rheumatol <i>Subsets: </i>MEDLINE
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      – TitleFull: Congruence Between Child Self-Reported and Caregiver-Proxy-Reported Health-Related Quality of Life in Children With Juvenile Idiopathic Arthritis and Systemic Lupus Erythematosus.
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