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Connect, pause and reflect: Multidisciplinary clinicians' shared challenges and sustaining strategies caring for children with severe neurological impairment.

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Title: Connect, pause and reflect: Multidisciplinary clinicians' shared challenges and sustaining strategies caring for children with severe neurological impairment.
Authors: Nevin SM; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospitals Network, Randwick, Australia. Electronic address: s.nevin@unsw.edu.au., Le Marne FA; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Department of Neurology, Sydney Children's Hospitals Network, Randwick, Australia., Kelada L; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospitals Network, Randwick, Australia., Wakefield CE; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Division of Quality of Life and Pediatric Palliative Care, Department of Pediatrics, Stanford University and Stanford Medicine Children's Health, Palo Alto, CA, USA., Beavis E; Department of Neurology, Sydney Children's Hospitals Network, Randwick, Australia., Macintosh R; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Centre for Clinical Genetics, Sydney Children's Hospitals Network, Randwick, Australia., Palmer EE; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Centre for Clinical Genetics, Sydney Children's Hospitals Network, Randwick, Australia., McLoughlin R; Department of Neurology, Sydney Children's Hospitals Network, Randwick, Australia., Sachdev R; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Centre for Clinical Genetics, Sydney Children's Hospitals Network, Randwick, Australia., Nunn K; Department of Psychological Medicine, Sydney Children's Hospitals Network, Westmead, Australia., Bye A; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Department of Neurology, Sydney Children's Hospitals Network, Randwick, Australia.
Corporate Authors: ClinEquip Advisory group
Source: European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society [Eur J Paediatr Neurol] 2026 Jan; Vol. 60, pp. 15-23. Date of Electronic Publication: 2025 Nov 01.
Publication Type: Journal Article
Journal Info: Publisher: Saunders Country of Publication: England NLM ID: 9715169 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1532-2130 (Electronic) Linking ISSN: 10903798 NLM ISO Abbreviation: Eur J Paediatr Neurol Subsets: MEDLINE
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  Data: <searchLink fieldCode="AU" term="%22Nevin+SM%22">Nevin SM</searchLink>; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospitals Network, Randwick, Australia. Electronic address: s.nevin@unsw.edu.au.<br /><searchLink fieldCode="AU" term="%22Le+Marne+FA%22">Le Marne FA</searchLink>; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Department of Neurology, Sydney Children's Hospitals Network, Randwick, Australia.<br /><searchLink fieldCode="AU" term="%22Kelada+L%22">Kelada L</searchLink>; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospitals Network, Randwick, Australia.<br /><searchLink fieldCode="AU" term="%22Wakefield+CE%22">Wakefield CE</searchLink>; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Division of Quality of Life and Pediatric Palliative Care, Department of Pediatrics, Stanford University and Stanford Medicine Children's Health, Palo Alto, CA, USA.<br /><searchLink fieldCode="AU" term="%22Beavis+E%22">Beavis E</searchLink>; Department of Neurology, Sydney Children's Hospitals Network, Randwick, Australia.<br /><searchLink fieldCode="AU" term="%22Macintosh+R%22">Macintosh R</searchLink>; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Centre for Clinical Genetics, Sydney Children's Hospitals Network, Randwick, Australia.<br /><searchLink fieldCode="AU" term="%22Palmer+EE%22">Palmer EE</searchLink>; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Centre for Clinical Genetics, Sydney Children's Hospitals Network, Randwick, Australia.<br /><searchLink fieldCode="AU" term="%22McLoughlin+R%22">McLoughlin R</searchLink>; Department of Neurology, Sydney Children's Hospitals Network, Randwick, Australia.<br /><searchLink fieldCode="AU" term="%22Sachdev+R%22">Sachdev R</searchLink>; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Centre for Clinical Genetics, Sydney Children's Hospitals Network, Randwick, Australia.<br /><searchLink fieldCode="AU" term="%22Nunn+K%22">Nunn K</searchLink>; Department of Psychological Medicine, Sydney Children's Hospitals Network, Westmead, Australia.<br /><searchLink fieldCode="AU" term="%22Bye+A%22">Bye A</searchLink>; Discipline of Paediatrics and Child Health, Randwick Clinical Campus, School of Clinical Medicine, Faculty of Medicine and Health, UNSW Sydney, Australia; Department of Neurology, Sydney Children's Hospitals Network, Randwick, Australia.
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              Text: 2026 Jan
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