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Nonneoplastic causes of death in neurofibromatosis 1: A cohort study with long-term follow-up.

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Title: Nonneoplastic causes of death in neurofibromatosis 1: A cohort study with long-term follow-up.
Authors: Doherty MA; Childhood Cancer Research Group, Danish Cancer Institute, Copenhagen, Denmark. Electronic address: mad@cancer.dk., Grell K; Statistics and Data Analysis, Danish Cancer Institute, Copenhagen, Denmark., Hove H; Centre for Rare Diseases, Department of Pediatrics and Adolescent Medicine, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark., Handrup MM; Centre for Rare Diseases, Department of Pediatric and Adolescent Medicine, Aarhus University Hospital, Aarhus, Denmark., Østergaard JR; Centre for Rare Diseases, Department of Pediatric and Adolescent Medicine, Aarhus University Hospital, Aarhus, Denmark., Krøyer A; Childhood Cancer Research Group, Danish Cancer Institute, Copenhagen, Denmark., Nielsen TT; Childhood Cancer Research Group, Danish Cancer Institute, Copenhagen, Denmark., Hjalgrim H; Hematology Research Group, Danish Cancer Institute, Copenhagen, Denmark., Mulvihill JJ; Department of Pediatrics, University of Oklahoma, Oklahoma City, OK., Hasle H; Department of Pediatrics and Adolescent Medicine, Aarhus University Hospital, Aarhus, Denmark., Ejerskov C; Centre for Rare Diseases, Department of Pediatric and Adolescent Medicine, Aarhus University Hospital, Aarhus, Denmark., Wohlfahrt J; Cancer Epidemiology and Surveillance, Danish Cancer Institute, Copenhagen, Denmark; Department of Clinical Medicine, Aalborg University, Aalborg, Denmark., Kenborg L; Childhood Cancer Research Group, Danish Cancer Institute, Copenhagen, Denmark.
Source: Genetics in medicine : official journal of the American College of Medical Genetics [Genet Med] 2026 Apr; Vol. 28 (4), pp. 101654. Date of Electronic Publication: 2025 Nov 26.
Publication Type: Journal Article
Journal Info: Publisher: Elsevier Country of Publication: United States NLM ID: 9815831 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1530-0366 (Electronic) Linking ISSN: 10983600 NLM ISO Abbreviation: Genet Med Subsets: MEDLINE
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  Data: Nonneoplastic causes of death in neurofibromatosis 1: A cohort study with long-term follow-up.
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  Data: <searchLink fieldCode="AU" term="%22Doherty+MA%22">Doherty MA</searchLink>; Childhood Cancer Research Group, Danish Cancer Institute, Copenhagen, Denmark. Electronic address: mad@cancer.dk.<br /><searchLink fieldCode="AU" term="%22Grell+K%22">Grell K</searchLink>; Statistics and Data Analysis, Danish Cancer Institute, Copenhagen, Denmark.<br /><searchLink fieldCode="AU" term="%22Hove+H%22">Hove H</searchLink>; Centre for Rare Diseases, Department of Pediatrics and Adolescent Medicine, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark.<br /><searchLink fieldCode="AU" term="%22Handrup+MM%22">Handrup MM</searchLink>; Centre for Rare Diseases, Department of Pediatric and Adolescent Medicine, Aarhus University Hospital, Aarhus, Denmark.<br /><searchLink fieldCode="AU" term="%22Østergaard+JR%22">Østergaard JR</searchLink>; Centre for Rare Diseases, Department of Pediatric and Adolescent Medicine, Aarhus University Hospital, Aarhus, Denmark.<br /><searchLink fieldCode="AU" term="%22Krøyer+A%22">Krøyer A</searchLink>; Childhood Cancer Research Group, Danish Cancer Institute, Copenhagen, Denmark.<br /><searchLink fieldCode="AU" term="%22Nielsen+TT%22">Nielsen TT</searchLink>; Childhood Cancer Research Group, Danish Cancer Institute, Copenhagen, Denmark.<br /><searchLink fieldCode="AU" term="%22Hjalgrim+H%22">Hjalgrim H</searchLink>; Hematology Research Group, Danish Cancer Institute, Copenhagen, Denmark.<br /><searchLink fieldCode="AU" term="%22Mulvihill+JJ%22">Mulvihill JJ</searchLink>; Department of Pediatrics, University of Oklahoma, Oklahoma City, OK.<br /><searchLink fieldCode="AU" term="%22Hasle+H%22">Hasle H</searchLink>; Department of Pediatrics and Adolescent Medicine, Aarhus University Hospital, Aarhus, Denmark.<br /><searchLink fieldCode="AU" term="%22Ejerskov+C%22">Ejerskov C</searchLink>; Centre for Rare Diseases, Department of Pediatric and Adolescent Medicine, Aarhus University Hospital, Aarhus, Denmark.<br /><searchLink fieldCode="AU" term="%22Wohlfahrt+J%22">Wohlfahrt J</searchLink>; Cancer Epidemiology and Surveillance, Danish Cancer Institute, Copenhagen, Denmark; Department of Clinical Medicine, Aalborg University, Aalborg, Denmark.<br /><searchLink fieldCode="AU" term="%22Kenborg+L%22">Kenborg L</searchLink>; Childhood Cancer Research Group, Danish Cancer Institute, Copenhagen, Denmark.
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  Data: <searchLink fieldCode="JN" term="%229815831%22">Genetics in medicine : official journal of the American College of Medical Genetics</searchLink> [Genet Med] 2026 Apr; Vol. 28 (4), pp. 101654. <i>Date of Electronic Publication: </i>2025 Nov 26.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Elsevier%22">Elsevier </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>9815831 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1530-0366 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2210983600%22">10983600 </searchLink><i>NLM ISO Abbreviation: </i>Genet Med <i>Subsets: </i>MEDLINE
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