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Can the Development of Orphan Drugs Include Wider Patient Engagement? A Citizens' Jury to Explore a Promissory Notion.

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Title: Can the Development of Orphan Drugs Include Wider Patient Engagement? A Citizens' Jury to Explore a Promissory Notion.
Authors: Frost J; Health and Community Sciences, South Cloisters, University of Exeter Medical School, University of Exeter, Exeter, UK., Mandizha J; Royal Devon University Healthcare NHS Foundation Trust, G18, Bowmoor House, Royal Devon and Exeter Hospital (Wonford), Exeter, UK., van den Dungen C; ABFFP Association Belge Francophone contre La Fibrose Pulmoniare, Avenue Cantelaube, Rebecq, Belgium., Asare L; Patient and Public Involvement, NIHR Applied Research Collaboration South West Peninsula (PenARC), University of Exeter, Exeter, UK., Pope C; Nuffield Department of Primary Care Health Sciences, Oxford, UK.
Corporate Authors: Widening Engagement Patient Advisory Group; Health and Community Sciences, South Cloisters, University of Exeter Medical School, University of Exeter, Exeter, UK.
Source: Health expectations : an international journal of public participation in health care and health policy [Health Expect] 2025 Dec; Vol. 28 (6), pp. e70524.
Publication Type: Journal Article; Research Support, Non-U.S. Gov't
Journal Info: Publisher: Wiley Country of Publication: England NLM ID: 9815926 Publication Model: Print Cited Medium: Internet ISSN: 1369-7625 (Electronic) Linking ISSN: 13696513 NLM ISO Abbreviation: Health Expect Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Can the Development of Orphan Drugs Include Wider Patient Engagement? A Citizens' Jury to Explore a Promissory Notion.
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        Value: 10.1111/hex.70524
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        Text: English
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              M: 12
              Text: 2025 Dec
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