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What is it like living with X-linked hypophosphatemia?: results from an Australian consumer survey.

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Title: What is it like living with X-linked hypophosphatemia?: results from an Australian consumer survey.
Authors: Sandy JL; Institute of Endocrinology and Diabetes, The Children's Hospital at Westmead, Westmead, NSW 2145, Australia.; Faculty of Medicine and Health, Children's Hospital Westmead Clinical School, University of Sydney, Westmead, NSW, 2145, Australia., Ford N; XLH Australia, Australia., Bevc S; XLH Australia, Australia., Rodda C; Western Clinical School, University of Melbourne, Sunshine Hospital, St Albans, 3021, Victoria, Australia.; Melbourne Medical School, University of Melbourne, Parkville, Victoria, Australia., Siafarikas A; Kids Research Institute Australia, Nedlands, WA 6009, Australia.; Department of Endocrinology and Diabetes, Perth Children's Hospital, Nedlands, WA, 6009, Australia.; Institute for Health Research, University of Notre Dame, Fremantle, WA, 6160, Australia.; Medical School, Paediatrics, University of Western Australia, Perth, WA, 6009, Australia., Simm PJ; Centre for Hormone Research, Murdoch Children's Research Institute, Melbourne, VIC, Australia.; Department of Paediatrics, University of Melbourne, Melbourne, VIC, 3010, Australia.; Department of Endocrinology and Diabetes, Royal Children's Hospital, Melbourne, VIC, 3052, Australia., Collins L; Department of Endocrinology and Diabetes, Royal Children's Hospital, Melbourne, VIC, 3052, Australia., Wall CL; Institute of Endocrinology and Diabetes, The Children's Hospital at Westmead, Westmead, NSW 2145, Australia., Biggin A; Institute of Endocrinology and Diabetes, The Children's Hospital at Westmead, Westmead, NSW 2145, Australia.; Faculty of Medicine and Health, Children's Hospital Westmead Clinical School, University of Sydney%, Westmead, NSW, 2145, Australia., Munns CF; Faculty of Medicine, Child Health Research Centre, The University of Queensland, Brisbane, QLD, 4072, Australia.; Department of Endocrinology and Diabetes, Queensland Children's Hospital, Brisbane, QLD, 4101, Australia.
Source: JBMR plus [JBMR Plus] 2025 Dec 06; Vol. 9 (Suppl 5), pp. v3-v13. Date of Electronic Publication: 2025 Dec 06 (Print Publication: 2025).
Publication Type: Journal Article
Journal Info: Publisher: Oxford University Press Country of Publication: England NLM ID: 101707013 Publication Model: eCollection Cited Medium: Internet ISSN: 2473-4039 (Electronic) Linking ISSN: 24734039 NLM ISO Abbreviation: JBMR Plus Subsets: PubMed not MEDLINE
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  Data: What is it like living with X-linked hypophosphatemia?: results from an Australian consumer survey.
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  Data: <searchLink fieldCode="AU" term="%22Sandy+JL%22">Sandy JL</searchLink>; Institute of Endocrinology and Diabetes, The Children's Hospital at Westmead, Westmead, NSW 2145, Australia.; Faculty of Medicine and Health, Children's Hospital Westmead Clinical School, University of Sydney, Westmead, NSW, 2145, Australia.<br /><searchLink fieldCode="AU" term="%22Ford+N%22">Ford N</searchLink>; XLH Australia, Australia.<br /><searchLink fieldCode="AU" term="%22Bevc+S%22">Bevc S</searchLink>; XLH Australia, Australia.<br /><searchLink fieldCode="AU" term="%22Rodda+C%22">Rodda C</searchLink>; Western Clinical School, University of Melbourne, Sunshine Hospital, St Albans, 3021, Victoria, Australia.; Melbourne Medical School, University of Melbourne, Parkville, Victoria, Australia.<br /><searchLink fieldCode="AU" term="%22Siafarikas+A%22">Siafarikas A</searchLink>; Kids Research Institute Australia, Nedlands, WA 6009, Australia.; Department of Endocrinology and Diabetes, Perth Children's Hospital, Nedlands, WA, 6009, Australia.; Institute for Health Research, University of Notre Dame, Fremantle, WA, 6160, Australia.; Medical School, Paediatrics, University of Western Australia, Perth, WA, 6009, Australia.<br /><searchLink fieldCode="AU" term="%22Simm+PJ%22">Simm PJ</searchLink>; Centre for Hormone Research, Murdoch Children's Research Institute, Melbourne, VIC, Australia.; Department of Paediatrics, University of Melbourne, Melbourne, VIC, 3010, Australia.; Department of Endocrinology and Diabetes, Royal Children's Hospital, Melbourne, VIC, 3052, Australia.<br /><searchLink fieldCode="AU" term="%22Collins+L%22">Collins L</searchLink>; Department of Endocrinology and Diabetes, Royal Children's Hospital, Melbourne, VIC, 3052, Australia.<br /><searchLink fieldCode="AU" term="%22Wall+CL%22">Wall CL</searchLink>; Institute of Endocrinology and Diabetes, The Children's Hospital at Westmead, Westmead, NSW 2145, Australia.<br /><searchLink fieldCode="AU" term="%22Biggin+A%22">Biggin A</searchLink>; Institute of Endocrinology and Diabetes, The Children's Hospital at Westmead, Westmead, NSW 2145, Australia.; Faculty of Medicine and Health, Children's Hospital Westmead Clinical School, University of Sydney%, Westmead, NSW, 2145, Australia.<br /><searchLink fieldCode="AU" term="%22Munns+CF%22">Munns CF</searchLink>; Faculty of Medicine, Child Health Research Centre, The University of Queensland, Brisbane, QLD, 4072, Australia.; Department of Endocrinology and Diabetes, Queensland Children's Hospital, Brisbane, QLD, 4101, Australia.
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  Data: <searchLink fieldCode="JN" term="%22101707013%22">JBMR plus</searchLink> [JBMR Plus] 2025 Dec 06; Vol. 9 (Suppl 5), pp. v3-v13. <i>Date of Electronic Publication: </i>2025 Dec 06 (<i>Print Publication: </i>2025).
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Oxford+University+Press%22">Oxford University Press </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101707013 <i>Publication Model: </i>eCollection <i>Cited Medium: </i>Internet <i>ISSN: </i>2473-4039 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2224734039%22">24734039 </searchLink><i>NLM ISO Abbreviation: </i>JBMR Plus <i>Subsets: </i>PubMed not MEDLINE
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        Value: 10.1093/jbmrpl/ziaf027
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            – D: 06
              M: 12
              Text: 2025 Dec 06
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