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A toolkit for new facioscapulohumeral muscular dystrophy trial sites.

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Title: A toolkit for new facioscapulohumeral muscular dystrophy trial sites.
Authors: Kools J; Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, the Netherlands., Korngut L; Department of Clinical Neurosciences, Hotchkiss Brain Institute, University of Calgary, Calgary, Canada., Petrillo Ballantyne J; Department of Clinical Neurosciences, Hotchkiss Brain Institute, University of Calgary, Calgary, Canada., Roozen I; Department of Rehabilitation, Donders Institute for Brain, Cognition and Behaviour, Amalia Children's Hospital, Radboud University Medical Center, Nijmegen, the Netherlands., de Haas R; Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, the Netherlands.; FSHD Europe - The European Voice for People with FSHD, the Netherlands., Hill A; FSHD Society - Empowering FSHD Patients, Accelerating FSHD Progress, USA., Evangelista T; Institute of Myology, Nord/Est/Ile-de-France Neuromuscular Reference Center, Pitié-Salpêtrière Hospital, APHP, Sorbonne University, Paris, France., Sansone VA; The NEMO Clinical Center, Neurorehabilitation Unit, University of Milan, Milan, Italy., Roxburgh R; Neurology Department, Auckland City Hospital, Te Toka Tumai, Te Whatu Ora Health New Zealand, Auckland, New Zealand., Lochmuller H; Children's Hospital of Eastern Ontario Research Institute, Division of Neurology, Department of Medicine, The Ottawa Hospital, Brain and Mind Research Institute, University of Ottawa, Ottawa., Statland J; Department of Neurology, University of Kansas Medical Center, Kansas City, Kansas, USA., Johnson NE; Department of Neurology, Virginia Commonwealth University, Richmond, VA, USA., Voermans N; Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, the Netherlands.
Source: Journal of neuromuscular diseases [J Neuromuscul Dis] 2026 Jul; Vol. 13 (4), pp. 621-637. Date of Electronic Publication: 2025 Dec 26.
Publication Type: Journal Article; Review
Journal Info: Publisher: IOS Press Country of Publication: United States NLM ID: 101649948 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2214-3602 (Electronic) Linking ISSN: 22143599 NLM ISO Abbreviation: J Neuromuscul Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: A toolkit for new facioscapulohumeral muscular dystrophy trial sites.
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  Data: <searchLink fieldCode="AU" term="%22Kools+J%22">Kools J</searchLink>; Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Korngut+L%22">Korngut L</searchLink>; Department of Clinical Neurosciences, Hotchkiss Brain Institute, University of Calgary, Calgary, Canada.<br /><searchLink fieldCode="AU" term="%22Petrillo+Ballantyne+J%22">Petrillo Ballantyne J</searchLink>; Department of Clinical Neurosciences, Hotchkiss Brain Institute, University of Calgary, Calgary, Canada.<br /><searchLink fieldCode="AU" term="%22Roozen+I%22">Roozen I</searchLink>; Department of Rehabilitation, Donders Institute for Brain, Cognition and Behaviour, Amalia Children's Hospital, Radboud University Medical Center, Nijmegen, the Netherlands.<br /><searchLink fieldCode="AU" term="%22de+Haas+R%22">de Haas R</searchLink>; Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, the Netherlands.; FSHD Europe - The European Voice for People with FSHD, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Hill+A%22">Hill A</searchLink>; FSHD Society - Empowering FSHD Patients, Accelerating FSHD Progress, USA.<br /><searchLink fieldCode="AU" term="%22Evangelista+T%22">Evangelista T</searchLink>; Institute of Myology, Nord/Est/Ile-de-France Neuromuscular Reference Center, Pitié-Salpêtrière Hospital, APHP, Sorbonne University, Paris, France.<br /><searchLink fieldCode="AU" term="%22Sansone+VA%22">Sansone VA</searchLink>; The NEMO Clinical Center, Neurorehabilitation Unit, University of Milan, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Roxburgh+R%22">Roxburgh R</searchLink>; Neurology Department, Auckland City Hospital, Te Toka Tumai, Te Whatu Ora Health New Zealand, Auckland, New Zealand.<br /><searchLink fieldCode="AU" term="%22Lochmuller+H%22">Lochmuller H</searchLink>; Children's Hospital of Eastern Ontario Research Institute, Division of Neurology, Department of Medicine, The Ottawa Hospital, Brain and Mind Research Institute, University of Ottawa, Ottawa.<br /><searchLink fieldCode="AU" term="%22Statland+J%22">Statland J</searchLink>; Department of Neurology, University of Kansas Medical Center, Kansas City, Kansas, USA.<br /><searchLink fieldCode="AU" term="%22Johnson+NE%22">Johnson NE</searchLink>; Department of Neurology, Virginia Commonwealth University, Richmond, VA, USA.<br /><searchLink fieldCode="AU" term="%22Voermans+N%22">Voermans N</searchLink>; Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, the Netherlands.
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  Data: <searchLink fieldCode="JN" term="%22101649948%22">Journal of neuromuscular diseases</searchLink> [J Neuromuscul Dis] 2026 Jul; Vol. 13 (4), pp. 621-637. <i>Date of Electronic Publication: </i>2025 Dec 26.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22IOS+Press%22">IOS Press </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>101649948 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>2214-3602 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2222143599%22">22143599 </searchLink><i>NLM ISO Abbreviation: </i>J Neuromuscul Dis <i>Subsets: </i>MEDLINE
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