New SMA era: A broad-range tiered assessment of function for the evolving SMA phenotype (EVOLVE-SMA).

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Title: New SMA era: A broad-range tiered assessment of function for the evolving SMA phenotype (EVOLVE-SMA).
Authors: Moore Burk M; Department of Physical Medicine and Rehabilitation, University of Colorado School of Medicine, Children's Hospital Colorado, Aurora, CO, USA.; College of Health Sciences, Rocky Mountain University of Health Professions, Provo, UT, USA., Crawford TO; Departments of Neurology and Pediatrics, The Johns Hopkins Hospital, Baltimore, MD, USA., Johnson K; College of Health Sciences, Rocky Mountain University of Health Professions, Provo, UT, USA.; Graduate College of Health Sciences, Hawai'i Pacific University, Honolulu, HI, USA., Apkon S; Department of Physical Medicine and Rehabilitation, University of Colorado School of Medicine, Children's Hospital Colorado, Aurora, CO, USA., Brown L; Department of Rehabilitation Services, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.; Division of Neurology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA., Carry T; Department of Physical Medicine and Rehabilitation, Children's Hospital Colorado, Aurora, CO, USA., Hoffman K; Department of Rehabilitation Services, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.; Division of Neurology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA., Kelley C; Department of Physical Medicine and Rehabilitation, Children's Hospital Colorado, Aurora, CO, USA., Kuntz NL; Department of Rehabilitation Services, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, USA., Miller J; Department of Physical Medicine and Rehabilitation, The Johns Hopkins Hospital, Baltimore, MD, USA., Nance J; Departments of Neurology, The Johns Hopkins Hospital, Baltimore, MD, USA., Patel R; Departments of Neurology, The Johns Hopkins Hospital, Baltimore, MD, USA.; Neuromuscular and Neurogenetic Disorders of Childhood Section, National Institute of Neurological Disorders and Stroke, National Institutes of Health, Bethesda, MD, USA., Rao V; Department of Rehabilitation Services, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, USA., Rothman C; Department of Physical Medicine and Rehabilitation, University of Colorado School of Medicine, Children's Hospital Colorado, Aurora, CO, USA.; Department of Pediatric Physical Medicine and Rehabilitation, Joseph M. Sanzari Hospital at Hackensack University, Hackensack, NJ, USA., Schwaede A; Department of Rehabilitation Services, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, USA., Stratton A; Department of Physical Medicine and Rehabilitation, University of Colorado School of Medicine, Children's Hospital Colorado, Aurora, CO, USA., Thinger S; Department of Physical Medicine and Rehabilitation, Children's Hospital Colorado, Aurora, CO, USA., Trenkle J; Department of Rehabilitation Services, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA., Van Os M; Neuroscience Administration Research Team, Research Institute, Children's Hospital Colorado, Aurora, CO, USA., Vela K; Department of Physical Medicine and Rehabilitation, The Johns Hopkins Hospital, Baltimore, MD, USA., Duong T; Department of Neurology, Stanford University Palo Alto, Stanford, CA, USA., Krosschell KJ; Department of Physical Therapy and Human Movement Sciences, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA.; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
Source: Journal of neuromuscular diseases [J Neuromuscul Dis] 2026 Jul; Vol. 13 (4), pp. 748-768. Date of Electronic Publication: 2025 Dec 30.
Publication Type: Journal Article
Journal Info: Publisher: IOS Press Country of Publication: United States NLM ID: 101649948 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2214-3602 (Electronic) Linking ISSN: 22143599 NLM ISO Abbreviation: J Neuromuscul Dis Subsets: MEDLINE
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  Data: New SMA era: A broad-range tiered assessment of function for the evolving SMA phenotype (EVOLVE-SMA).
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  Data: <searchLink fieldCode="AU" term="%22Moore+Burk+M%22">Moore Burk M</searchLink>; Department of Physical Medicine and Rehabilitation, University of Colorado School of Medicine, Children's Hospital Colorado, Aurora, CO, USA.; College of Health Sciences, Rocky Mountain University of Health Professions, Provo, UT, USA.<br /><searchLink fieldCode="AU" term="%22Crawford+TO%22">Crawford TO</searchLink>; Departments of Neurology and Pediatrics, The Johns Hopkins Hospital, Baltimore, MD, USA.<br /><searchLink fieldCode="AU" term="%22Johnson+K%22">Johnson K</searchLink>; College of Health Sciences, Rocky Mountain University of Health Professions, Provo, UT, USA.; Graduate College of Health Sciences, Hawai'i Pacific University, Honolulu, HI, USA.<br /><searchLink fieldCode="AU" term="%22Apkon+S%22">Apkon S</searchLink>; Department of Physical Medicine and Rehabilitation, University of Colorado School of Medicine, Children's Hospital Colorado, Aurora, CO, USA.<br /><searchLink fieldCode="AU" term="%22Brown+L%22">Brown L</searchLink>; Department of Rehabilitation Services, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.; Division of Neurology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.<br /><searchLink fieldCode="AU" term="%22Carry+T%22">Carry T</searchLink>; Department of Physical Medicine and Rehabilitation, Children's Hospital Colorado, Aurora, CO, USA.<br /><searchLink fieldCode="AU" term="%22Hoffman+K%22">Hoffman K</searchLink>; Department of Rehabilitation Services, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.; Division of Neurology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.<br /><searchLink fieldCode="AU" term="%22Kelley+C%22">Kelley C</searchLink>; Department of Physical Medicine and Rehabilitation, Children's Hospital Colorado, Aurora, CO, USA.<br /><searchLink fieldCode="AU" term="%22Kuntz+NL%22">Kuntz NL</searchLink>; Department of Rehabilitation Services, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.<br /><searchLink fieldCode="AU" term="%22Miller+J%22">Miller J</searchLink>; Department of Physical Medicine and Rehabilitation, The Johns Hopkins Hospital, Baltimore, MD, USA.<br /><searchLink fieldCode="AU" term="%22Nance+J%22">Nance J</searchLink>; Departments of Neurology, The Johns Hopkins Hospital, Baltimore, MD, USA.<br /><searchLink fieldCode="AU" term="%22Patel+R%22">Patel R</searchLink>; Departments of Neurology, The Johns Hopkins Hospital, Baltimore, MD, USA.; Neuromuscular and Neurogenetic Disorders of Childhood Section, National Institute of Neurological Disorders and Stroke, National Institutes of Health, Bethesda, MD, USA.<br /><searchLink fieldCode="AU" term="%22Rao+V%22">Rao V</searchLink>; Department of Rehabilitation Services, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.<br /><searchLink fieldCode="AU" term="%22Rothman+C%22">Rothman C</searchLink>; Department of Physical Medicine and Rehabilitation, University of Colorado School of Medicine, Children's Hospital Colorado, Aurora, CO, USA.; Department of Pediatric Physical Medicine and Rehabilitation, Joseph M. Sanzari Hospital at Hackensack University, Hackensack, NJ, USA.<br /><searchLink fieldCode="AU" term="%22Schwaede+A%22">Schwaede A</searchLink>; Department of Rehabilitation Services, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.<br /><searchLink fieldCode="AU" term="%22Stratton+A%22">Stratton A</searchLink>; Department of Physical Medicine and Rehabilitation, University of Colorado School of Medicine, Children's Hospital Colorado, Aurora, CO, USA.<br /><searchLink fieldCode="AU" term="%22Thinger+S%22">Thinger S</searchLink>; Department of Physical Medicine and Rehabilitation, Children's Hospital Colorado, Aurora, CO, USA.<br /><searchLink fieldCode="AU" term="%22Trenkle+J%22">Trenkle J</searchLink>; Department of Rehabilitation Services, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.<br /><searchLink fieldCode="AU" term="%22Van+Os+M%22">Van Os M</searchLink>; Neuroscience Administration Research Team, Research Institute, Children's Hospital Colorado, Aurora, CO, USA.<br /><searchLink fieldCode="AU" term="%22Vela+K%22">Vela K</searchLink>; Department of Physical Medicine and Rehabilitation, The Johns Hopkins Hospital, Baltimore, MD, USA.<br /><searchLink fieldCode="AU" term="%22Duong+T%22">Duong T</searchLink>; Department of Neurology, Stanford University Palo Alto, Stanford, CA, USA.<br /><searchLink fieldCode="AU" term="%22Krosschell+KJ%22">Krosschell KJ</searchLink>; Department of Physical Therapy and Human Movement Sciences, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA.; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
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