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Incidence and predictors of self-reported pulmonary exacerbations in primary ciliary dyskinesia: an international prospective cohort study.

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Title: Incidence and predictors of self-reported pulmonary exacerbations in primary ciliary dyskinesia: an international prospective cohort study.
Authors: Schreck LD; Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.; Graduate School for Health Sciences, University of Bern, Bern, Switzerland., Goutaki M; Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.; Division of Paediatric Respiratory Medicine and Allergology, Department of Paediatrics, Inselspital, University Hospital, University of Bern, Bern, Switzerland., Pedersen ESL; Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.; Department of Clinical Research, University of Bern, Bern, Switzerland., Copeland F; PCD Support UK, Buckingham, UK., López Fernández T; Asociación Española de Discinesia Ciliar Primaria/Síndrome de Kartagener, Santo Ángel, Murcia, Spain., Lucas JS; Primary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK.; University of Southampton Faculty of Medicine, School of Clinical and Experimental Medicine, Southampton, UK., Kuehni CE; Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.; Division of Paediatric Respiratory Medicine and Allergology, Department of Paediatrics, Inselspital, University Hospital, University of Bern, Bern, Switzerland.
Corporate Authors: Living with PCD patient advisory group
Source: ERJ open research [ERJ Open Res] 2026 Jan 19; Vol. 12 (1). Date of Electronic Publication: 2026 Jan 19 (Print Publication: 2026).
Publication Type: Journal Article
Journal Info: Publisher: European Respiratory Society Country of Publication: England NLM ID: 101671641 Publication Model: eCollection Cited Medium: Print ISSN: 2312-0541 (Print) Linking ISSN: 23120541 NLM ISO Abbreviation: ERJ Open Res Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Schreck+LD%22">Schreck LD</searchLink>; Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.; Graduate School for Health Sciences, University of Bern, Bern, Switzerland.<br /><searchLink fieldCode="AU" term="%22Goutaki+M%22">Goutaki M</searchLink>; Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.; Division of Paediatric Respiratory Medicine and Allergology, Department of Paediatrics, Inselspital, University Hospital, University of Bern, Bern, Switzerland.<br /><searchLink fieldCode="AU" term="%22Pedersen+ESL%22">Pedersen ESL</searchLink>; Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.; Department of Clinical Research, University of Bern, Bern, Switzerland.<br /><searchLink fieldCode="AU" term="%22Copeland+F%22">Copeland F</searchLink>; PCD Support UK, Buckingham, UK.<br /><searchLink fieldCode="AU" term="%22López+Fernández+T%22">López Fernández T</searchLink>; Asociación Española de Discinesia Ciliar Primaria/Síndrome de Kartagener, Santo Ángel, Murcia, Spain.<br /><searchLink fieldCode="AU" term="%22Lucas+JS%22">Lucas JS</searchLink>; Primary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK.; University of Southampton Faculty of Medicine, School of Clinical and Experimental Medicine, Southampton, UK.<br /><searchLink fieldCode="AU" term="%22Kuehni+CE%22">Kuehni CE</searchLink>; Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.; Division of Paediatric Respiratory Medicine and Allergology, Department of Paediatrics, Inselspital, University Hospital, University of Bern, Bern, Switzerland.
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              Text: 2026 Jan 19
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