Leveraging the PEDSnet clinical research network and electronic health record data to enhance efficiency of trial enrollment for a rare pediatric rheumatic disease.

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Title: Leveraging the PEDSnet clinical research network and electronic health record data to enhance efficiency of trial enrollment for a rare pediatric rheumatic disease.
Authors: Weiss PF; Division of Rheumatology, Department of Pediatrics, Roberts Center for Pediatric Research, Children's Hospital of Philadelphia, 2716 South Street, Room 11123, Philadelphia, PA, 19104, USA. weisspa@chop.edu.; Clinical Futures, Children's Hospital of Philadelphia, Philadelphia, PA, USA. weisspa@chop.edu.; Center for Clinical Epidemiology and Biostatistics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA. weisspa@chop.edu., Utidjian L; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Department of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA, USA., Maltenfort M; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Department of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA, USA., Razzaghi H; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Department of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA, USA., Brandon TG; Division of Rheumatology, Department of Pediatrics, Roberts Center for Pediatric Research, Children's Hospital of Philadelphia, 2716 South Street, Room 11123, Philadelphia, PA, 19104, USA.; Clinical Futures, Children's Hospital of Philadelphia, Philadelphia, PA, USA., Muir C; Division of Rheumatology, Department of Pediatrics, Roberts Center for Pediatric Research, Children's Hospital of Philadelphia, 2716 South Street, Room 11123, Philadelphia, PA, 19104, USA.; Clinical Futures, Children's Hospital of Philadelphia, Philadelphia, PA, USA., Sears C; Division of Rheumatology, Department of Pediatrics, Roberts Center for Pediatric Research, Children's Hospital of Philadelphia, 2716 South Street, Room 11123, Philadelphia, PA, 19104, USA.; Clinical Futures, Children's Hospital of Philadelphia, Philadelphia, PA, USA., Oberle EJ; Division of Rheumatology, Department of Pediatrics, The Ohio State University College of Medicine, Nationwide Children's Hospital, Columbus, OH, USA., Cooper J; Division of Rheumatology, Department of Pediatrics, Colorado Children's Hospital, Denver, CO, USA., Baszis K; Division of Rheumatology, Department of Pediatrics, Washington University School of Medicine, St. Louis Children's Hospital, St. Louis, MO, USA., Toth MB; Division of Rheumatology, Nemours Children's Hospital- Florida, Orlando, FL, USA., Morgan EM; Division of Rheumatology, Department of Pediatrics, University of Washington, Seattle Children's, Seattle, WA, USA., Forrest CB; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Department of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Source: Pediatric rheumatology online journal [Pediatr Rheumatol Online J] 2026 Jan 31; Vol. 24 (1). Date of Electronic Publication: 2026 Jan 31.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101248897 Publication Model: Electronic Cited Medium: Internet ISSN: 1546-0096 (Electronic) Linking ISSN: 15460096 NLM ISO Abbreviation: Pediatr Rheumatol Online J Subsets: MEDLINE
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  Data: Leveraging the PEDSnet clinical research network and electronic health record data to enhance efficiency of trial enrollment for a rare pediatric rheumatic disease.
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  Data: <searchLink fieldCode="AU" term="%22Weiss+PF%22">Weiss PF</searchLink>; Division of Rheumatology, Department of Pediatrics, Roberts Center for Pediatric Research, Children's Hospital of Philadelphia, 2716 South Street, Room 11123, Philadelphia, PA, 19104, USA. weisspa@chop.edu.; Clinical Futures, Children's Hospital of Philadelphia, Philadelphia, PA, USA. weisspa@chop.edu.; Center for Clinical Epidemiology and Biostatistics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA. weisspa@chop.edu.<br /><searchLink fieldCode="AU" term="%22Utidjian+L%22">Utidjian L</searchLink>; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Department of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Maltenfort+M%22">Maltenfort M</searchLink>; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Department of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Razzaghi+H%22">Razzaghi H</searchLink>; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Department of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Brandon+TG%22">Brandon TG</searchLink>; Division of Rheumatology, Department of Pediatrics, Roberts Center for Pediatric Research, Children's Hospital of Philadelphia, 2716 South Street, Room 11123, Philadelphia, PA, 19104, USA.; Clinical Futures, Children's Hospital of Philadelphia, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Muir+C%22">Muir C</searchLink>; Division of Rheumatology, Department of Pediatrics, Roberts Center for Pediatric Research, Children's Hospital of Philadelphia, 2716 South Street, Room 11123, Philadelphia, PA, 19104, USA.; Clinical Futures, Children's Hospital of Philadelphia, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Sears+C%22">Sears C</searchLink>; Division of Rheumatology, Department of Pediatrics, Roberts Center for Pediatric Research, Children's Hospital of Philadelphia, 2716 South Street, Room 11123, Philadelphia, PA, 19104, USA.; Clinical Futures, Children's Hospital of Philadelphia, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Oberle+EJ%22">Oberle EJ</searchLink>; Division of Rheumatology, Department of Pediatrics, The Ohio State University College of Medicine, Nationwide Children's Hospital, Columbus, OH, USA.<br /><searchLink fieldCode="AU" term="%22Cooper+J%22">Cooper J</searchLink>; Division of Rheumatology, Department of Pediatrics, Colorado Children's Hospital, Denver, CO, USA.<br /><searchLink fieldCode="AU" term="%22Baszis+K%22">Baszis K</searchLink>; Division of Rheumatology, Department of Pediatrics, Washington University School of Medicine, St. Louis Children's Hospital, St. Louis, MO, USA.<br /><searchLink fieldCode="AU" term="%22Toth+MB%22">Toth MB</searchLink>; Division of Rheumatology, Nemours Children's Hospital- Florida, Orlando, FL, USA.<br /><searchLink fieldCode="AU" term="%22Morgan+EM%22">Morgan EM</searchLink>; Division of Rheumatology, Department of Pediatrics, University of Washington, Seattle Children's, Seattle, WA, USA.<br /><searchLink fieldCode="AU" term="%22Forrest+CB%22">Forrest CB</searchLink>; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Department of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
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  Data: <searchLink fieldCode="JN" term="%22101248897%22">Pediatric rheumatology online journal</searchLink> [Pediatr Rheumatol Online J] 2026 Jan 31; Vol. 24 (1). <i>Date of Electronic Publication: </i>2026 Jan 31.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101248897 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1546-0096 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2215460096%22">15460096 </searchLink><i>NLM ISO Abbreviation: </i>Pediatr Rheumatol Online J <i>Subsets: </i>MEDLINE
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