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Measuring disease-specific quality of life in pediatric intestinal failure: Development and validation of the PIF-QoL.

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Title: Measuring disease-specific quality of life in pediatric intestinal failure: Development and validation of the PIF-QoL.
Authors: Neumann ML; Department of Surgery, Division of Transplant Surgery, University of Nebraska Medical Center, Omaha, NE, USA.; The Gutsy Perspective, Huntsville, AL, USA., Ladner A; The Gutsy Perspective, Huntsville, AL, USA., Allen JY; The Gutsy Perspective, Huntsville, AL, USA.; Department of Behavioral Sciences, Athens State University, Athens, AL, USA., Kakani S; The Gutsy Perspective, Huntsville, AL, USA., Rauen MH; The Gutsy Perspective, Huntsville, AL, USA.; The Global Gastroschisis Foundation, Raleigh, NC, USA., Mercer DF; Department of Surgery, Division of Transplant Surgery, University of Nebraska Medical Center, Omaha, NE, USA.
Source: Intestinal Failure (New York, N.Y.) [Intest Fail] 2025 Nov 13; Vol. 8, pp. 100324. Date of Electronic Publication: 2025 Nov 13 (Print Publication: 2025).
Publication Type: Journal Article
Journal Info: Publisher: Elsevier Inc. on behalf of International Intestinal Rehabilitation & Transplant Association Country of Publication: United States NLM ID: 9919013695706676 Publication Model: eCollection Cited Medium: Internet ISSN: 2950-4562 (Electronic) Linking ISSN: 29504562 NLM ISO Abbreviation: Intest Fail Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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PubType: Academic Journal
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  Data: <searchLink fieldCode="AU" term="%22Neumann+ML%22">Neumann ML</searchLink>; Department of Surgery, Division of Transplant Surgery, University of Nebraska Medical Center, Omaha, NE, USA.; The Gutsy Perspective, Huntsville, AL, USA.<br /><searchLink fieldCode="AU" term="%22Ladner+A%22">Ladner A</searchLink>; The Gutsy Perspective, Huntsville, AL, USA.<br /><searchLink fieldCode="AU" term="%22Allen+JY%22">Allen JY</searchLink>; The Gutsy Perspective, Huntsville, AL, USA.; Department of Behavioral Sciences, Athens State University, Athens, AL, USA.<br /><searchLink fieldCode="AU" term="%22Kakani+S%22">Kakani S</searchLink>; The Gutsy Perspective, Huntsville, AL, USA.<br /><searchLink fieldCode="AU" term="%22Rauen+MH%22">Rauen MH</searchLink>; The Gutsy Perspective, Huntsville, AL, USA.; The Global Gastroschisis Foundation, Raleigh, NC, USA.<br /><searchLink fieldCode="AU" term="%22Mercer+DF%22">Mercer DF</searchLink>; Department of Surgery, Division of Transplant Surgery, University of Nebraska Medical Center, Omaha, NE, USA.
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  Data: <searchLink fieldCode="JN" term="%229919013695706676%22">Intestinal Failure (New York, N.Y.)</searchLink> [Intest Fail] 2025 Nov 13; Vol. 8, pp. 100324. <i>Date of Electronic Publication: </i>2025 Nov 13 (<i>Print Publication: </i>2025).
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Elsevier+Inc%2E+on+behalf+of+International+Intestinal+Rehabilitation+%26+Transplant+Association%22">Elsevier Inc. on behalf of International Intestinal Rehabilitation & Transplant Association </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>9919013695706676 <i>Publication Model: </i>eCollection <i>Cited Medium: </i>Internet <i>ISSN: </i>2950-4562 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2229504562%22">29504562 </searchLink><i>NLM ISO Abbreviation: </i>Intest Fail <i>Subsets: </i>PubMed not MEDLINE
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        Value: 10.1016/j.intf.2025.100324
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              Text: 2025 Nov 13
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            – TitleFull: Intestinal Failure (New York, N.Y.)
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