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"You think everything's fine and then it starts not being fine": a qualitative descriptive study exploring the prenatal testing experiences of Black women living in England.

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Title: "You think everything's fine and then it starts not being fine": a qualitative descriptive study exploring the prenatal testing experiences of Black women living in England.
Authors: Peter M; North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children, NHS Foundation Trust, Level 5, Barclay House, 37 Queen Square, London, WC1N 3BH, UK. michelle.peter@ucl.ac.uk.; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK. michelle.peter@ucl.ac.uk., Abe C; Five X More, London, UK., Agyepong A; Global Child and Maternal Health, London, UK., Awe A; Five X More, London, UK., Buabeng R; Mummy's Day Out, London, UK., Daniel M; North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children, NHS Foundation Trust, Level 5, Barclay House, 37 Queen Square, London, WC1N 3BH, UK.; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK., Dean M; Patient and Public Involvement Advisory Group Member, London, UK., Fisher J; Antenatal Results and Choices, London, UK., Henriques S; Wellcome Connecting Science, Cambridge, UK., Leeson-Beevers K; Alström Syndrome UK, Torquay, UK., Nelson C; Patient and Public Involvement Advisory Group Member, London, UK., Walters-Lawrence S; Patient and Public Involvement Advisory Group Member, London, UK., Gurney L; Birmingham Women and Children's NHS Foundation Trust, Birmingham, UK., Holt S; Liverpool Women's NHS Foundation Trust, Liverpool, UK., Lewis C; Population, Policy & Practice, University College London, London, UK., Shangaris P; Women and Children's Health, School of Life Course & Population Sciences, Kings College London, London, UK.; Harris Birthright Research Centre for Fetal Medicine, King's College Hospital, London, UK., Tapon D; Imperial College Hospital NHS Trust, London, UK., Chitty LS; North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children, NHS Foundation Trust, Level 5, Barclay House, 37 Queen Square, London, WC1N 3BH, UK.; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK., Hill M; North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children, NHS Foundation Trust, Level 5, Barclay House, 37 Queen Square, London, WC1N 3BH, UK.; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK.
Source: BMC pregnancy and childbirth [BMC Pregnancy Childbirth] 2026 Feb 11; Vol. 26 (1). Date of Electronic Publication: 2026 Feb 11.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 100967799 Publication Model: Electronic Cited Medium: Internet ISSN: 1471-2393 (Electronic) Linking ISSN: 14712393 NLM ISO Abbreviation: BMC Pregnancy Childbirth Subsets: MEDLINE
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  Data: "You think everything's fine and then it starts not being fine": a qualitative descriptive study exploring the prenatal testing experiences of Black women living in England.
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  Data: <searchLink fieldCode="AU" term="%22Peter+M%22">Peter M</searchLink>; North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children, NHS Foundation Trust, Level 5, Barclay House, 37 Queen Square, London, WC1N 3BH, UK. michelle.peter@ucl.ac.uk.; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK. michelle.peter@ucl.ac.uk.<br /><searchLink fieldCode="AU" term="%22Abe+C%22">Abe C</searchLink>; Five X More, London, UK.<br /><searchLink fieldCode="AU" term="%22Agyepong+A%22">Agyepong A</searchLink>; Global Child and Maternal Health, London, UK.<br /><searchLink fieldCode="AU" term="%22Awe+A%22">Awe A</searchLink>; Five X More, London, UK.<br /><searchLink fieldCode="AU" term="%22Buabeng+R%22">Buabeng R</searchLink>; Mummy's Day Out, London, UK.<br /><searchLink fieldCode="AU" term="%22Daniel+M%22">Daniel M</searchLink>; North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children, NHS Foundation Trust, Level 5, Barclay House, 37 Queen Square, London, WC1N 3BH, UK.; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK.<br /><searchLink fieldCode="AU" term="%22Dean+M%22">Dean M</searchLink>; Patient and Public Involvement Advisory Group Member, London, UK.<br /><searchLink fieldCode="AU" term="%22Fisher+J%22">Fisher J</searchLink>; Antenatal Results and Choices, London, UK.<br /><searchLink fieldCode="AU" term="%22Henriques+S%22">Henriques S</searchLink>; Wellcome Connecting Science, Cambridge, UK.<br /><searchLink fieldCode="AU" term="%22Leeson-Beevers+K%22">Leeson-Beevers K</searchLink>; Alström Syndrome UK, Torquay, UK.<br /><searchLink fieldCode="AU" term="%22Nelson+C%22">Nelson C</searchLink>; Patient and Public Involvement Advisory Group Member, London, UK.<br /><searchLink fieldCode="AU" term="%22Walters-Lawrence+S%22">Walters-Lawrence S</searchLink>; Patient and Public Involvement Advisory Group Member, London, UK.<br /><searchLink fieldCode="AU" term="%22Gurney+L%22">Gurney L</searchLink>; Birmingham Women and Children's NHS Foundation Trust, Birmingham, UK.<br /><searchLink fieldCode="AU" term="%22Holt+S%22">Holt S</searchLink>; Liverpool Women's NHS Foundation Trust, Liverpool, UK.<br /><searchLink fieldCode="AU" term="%22Lewis+C%22">Lewis C</searchLink>; Population, Policy & Practice, University College London, London, UK.<br /><searchLink fieldCode="AU" term="%22Shangaris+P%22">Shangaris P</searchLink>; Women and Children's Health, School of Life Course & Population Sciences, Kings College London, London, UK.; Harris Birthright Research Centre for Fetal Medicine, King's College Hospital, London, UK.<br /><searchLink fieldCode="AU" term="%22Tapon+D%22">Tapon D</searchLink>; Imperial College Hospital NHS Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22Chitty+LS%22">Chitty LS</searchLink>; North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children, NHS Foundation Trust, Level 5, Barclay House, 37 Queen Square, London, WC1N 3BH, UK.; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK.<br /><searchLink fieldCode="AU" term="%22Hill+M%22">Hill M</searchLink>; North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children, NHS Foundation Trust, Level 5, Barclay House, 37 Queen Square, London, WC1N 3BH, UK.; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK.
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