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From urban NPOs to rural knowledge networks: applying benefit-sharing models to African genomics research.

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Title: From urban NPOs to rural knowledge networks: applying benefit-sharing models to African genomics research.
Authors: Ngwarai N; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa. ngonidzashe.ngwarai@wits.ac.za., Tluway F; Sydney Brenner Institute for Molecular Bioscience, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Mayindi N; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Mabasa J; SAMRC/Wits Developmental Pathways for Health Research Unit, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Mashaba G; DIMAMO Population Health Research Center, Polokwane, Limpopo, South Africa., Khoza S; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Hove J; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Khoza D; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Wafawanaka F; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Chipungu S; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Ndlovu D; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Mdaka B; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Ngobeni T; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Phiri A; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Tibane J; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Gómez-Olivé FX; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Tollman S; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Mkansi VN; SAMRC/Wits Developmental Pathways for Health Research Unit, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Micklesfield LK; SAMRC/Wits Developmental Pathways for Health Research Unit, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Manabile MM; DIMAMO Population Health Research Center, Polokwane, Limpopo, South Africa., Choma SSR; Department of Pathology and Medical Sciences, University of Limpopo, Polokwane, South Africa., Kasina P; Variant Bio, Seattle, WA, USA., Burke E; Variant Bio, Seattle, WA, USA., Ramsay M; Sydney Brenner Institute for Molecular Bioscience, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.; Wits Donald Gordon Medical Research Institute, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., Fabian J; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.; Wits Donald Gordon Medical Research Institute, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa., LeBaron von Baeyer S; Variant Bio, Seattle, WA, USA. sarah@variantbio.com.
Source: Nature communications [Nat Commun] 2026 Feb 19; Vol. 17 (1). Date of Electronic Publication: 2026 Feb 19.
Publication Type: Journal Article; Review
Journal Info: Publisher: Nature Pub. Group Country of Publication: England NLM ID: 101528555 Publication Model: Electronic Cited Medium: Internet ISSN: 2041-1723 (Electronic) Linking ISSN: 20411723 NLM ISO Abbreviation: Nat Commun Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: From urban NPOs to rural knowledge networks: applying benefit-sharing models to African genomics research.
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  Data: <searchLink fieldCode="AU" term="%22Ngwarai+N%22">Ngwarai N</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa. ngonidzashe.ngwarai@wits.ac.za.<br /><searchLink fieldCode="AU" term="%22Tluway+F%22">Tluway F</searchLink>; Sydney Brenner Institute for Molecular Bioscience, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Mayindi+N%22">Mayindi N</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Mabasa+J%22">Mabasa J</searchLink>; SAMRC/Wits Developmental Pathways for Health Research Unit, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Mashaba+G%22">Mashaba G</searchLink>; DIMAMO Population Health Research Center, Polokwane, Limpopo, South Africa.<br /><searchLink fieldCode="AU" term="%22Khoza+S%22">Khoza S</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Hove+J%22">Hove J</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Khoza+D%22">Khoza D</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Wafawanaka+F%22">Wafawanaka F</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Chipungu+S%22">Chipungu S</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Ndlovu+D%22">Ndlovu D</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Mdaka+B%22">Mdaka B</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Ngobeni+T%22">Ngobeni T</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Phiri+A%22">Phiri A</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Tibane+J%22">Tibane J</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Gómez-Olivé+FX%22">Gómez-Olivé FX</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Tollman+S%22">Tollman S</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Mkansi+VN%22">Mkansi VN</searchLink>; SAMRC/Wits Developmental Pathways for Health Research Unit, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Micklesfield+LK%22">Micklesfield LK</searchLink>; SAMRC/Wits Developmental Pathways for Health Research Unit, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Manabile+MM%22">Manabile MM</searchLink>; DIMAMO Population Health Research Center, Polokwane, Limpopo, South Africa.<br /><searchLink fieldCode="AU" term="%22Choma+SSR%22">Choma SSR</searchLink>; Department of Pathology and Medical Sciences, University of Limpopo, Polokwane, South Africa.<br /><searchLink fieldCode="AU" term="%22Kasina+P%22">Kasina P</searchLink>; Variant Bio, Seattle, WA, USA.<br /><searchLink fieldCode="AU" term="%22Burke+E%22">Burke E</searchLink>; Variant Bio, Seattle, WA, USA.<br /><searchLink fieldCode="AU" term="%22Ramsay+M%22">Ramsay M</searchLink>; Sydney Brenner Institute for Molecular Bioscience, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.; Wits Donald Gordon Medical Research Institute, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22Fabian+J%22">Fabian J</searchLink>; Medical Research Council/Wits Rural Public Health and Health Transitions Research Unit, School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.; Wits Donald Gordon Medical Research Institute, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.<br /><searchLink fieldCode="AU" term="%22LeBaron+von+Baeyer+S%22">LeBaron von Baeyer S</searchLink>; Variant Bio, Seattle, WA, USA. sarah@variantbio.com.
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