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Co-designing a framework to communicate patient-centred outcomes in palliative care: involving patients and the public to reframe understanding.

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Title: Co-designing a framework to communicate patient-centred outcomes in palliative care: involving patients and the public to reframe understanding.
Authors: Hocaoglu MB; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK. Mevhibe.hocaoglu@kcl.ac.uk., Oluyase A; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK., Smith D; Cicely Saunders Institute Public Involvement Forum, London, UK., Kumar R; Cicely Saunders Institute Public Involvement Forum, London, UK., Perman S; Hertfordshire County Council, Hertfordshire, UK., Maddocks M; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK.; King's College Hospital NHS Foundation Trust, London, UK., Best S; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK., Nast C; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK., Bajwah S; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK.; King's College Hospital NHS Foundation Trust, London, UK., Sleeman KE; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK.; King's College Hospital NHS Foundation Trust, London, UK., Higginson IJ; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK.; King's College Hospital NHS Foundation Trust, London, UK.
Source: Journal of patient-reported outcomes [J Patient Rep Outcomes] 2026 Feb 21; Vol. 10 (1). Date of Electronic Publication: 2026 Feb 21.
Publication Type: Journal Article
Journal Info: Publisher: Springer International Publishing Country of Publication: Germany NLM ID: 101722688 Publication Model: Electronic Cited Medium: Internet ISSN: 2509-8020 (Electronic) Linking ISSN: 25098020 NLM ISO Abbreviation: J Patient Rep Outcomes Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Co-designing a framework to communicate patient-centred outcomes in palliative care: involving patients and the public to reframe understanding.
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  Data: <searchLink fieldCode="AU" term="%22Hocaoglu+MB%22">Hocaoglu MB</searchLink>; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK. Mevhibe.hocaoglu@kcl.ac.uk.<br /><searchLink fieldCode="AU" term="%22Oluyase+A%22">Oluyase A</searchLink>; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK.<br /><searchLink fieldCode="AU" term="%22Smith+D%22">Smith D</searchLink>; Cicely Saunders Institute Public Involvement Forum, London, UK.<br /><searchLink fieldCode="AU" term="%22Kumar+R%22">Kumar R</searchLink>; Cicely Saunders Institute Public Involvement Forum, London, UK.<br /><searchLink fieldCode="AU" term="%22Perman+S%22">Perman S</searchLink>; Hertfordshire County Council, Hertfordshire, UK.<br /><searchLink fieldCode="AU" term="%22Maddocks+M%22">Maddocks M</searchLink>; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK.; King's College Hospital NHS Foundation Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22Best+S%22">Best S</searchLink>; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK.<br /><searchLink fieldCode="AU" term="%22Nast+C%22">Nast C</searchLink>; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK.<br /><searchLink fieldCode="AU" term="%22Bajwah+S%22">Bajwah S</searchLink>; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK.; King's College Hospital NHS Foundation Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22Sleeman+KE%22">Sleeman KE</searchLink>; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK.; King's College Hospital NHS Foundation Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22Higginson+IJ%22">Higginson IJ</searchLink>; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK.; King's College Hospital NHS Foundation Trust, London, UK.
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  Data: <searchLink fieldCode="JN" term="%22101722688%22">Journal of patient-reported outcomes</searchLink> [J Patient Rep Outcomes] 2026 Feb 21; Vol. 10 (1). <i>Date of Electronic Publication: </i>2026 Feb 21.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Springer+International+Publishing%22">Springer International Publishing </searchLink><i>Country of Publication: </i>Germany <i>NLM ID: </i>101722688 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>2509-8020 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2225098020%22">25098020 </searchLink><i>NLM ISO Abbreviation: </i>J Patient Rep Outcomes <i>Subsets: </i>MEDLINE
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        Value: 10.1186/s41687-026-01019-y
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              Text: 2026 Feb 21
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