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"I don't think I even thought of myself" A mixed-methods study of family experiences of trio germline whole genome sequencing in newly diagnosed childhood cancer.

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Title: "I don't think I even thought of myself" A mixed-methods study of family experiences of trio germline whole genome sequencing in newly diagnosed childhood cancer.
Authors: Hunter JD; Department of Obstetrics, Gynaecology and Newborn Health, Royal Women's Hospital, Melbourne Medical School, Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, Victoria, Australia. Jacqueline.hunter@unsw.edu.au.; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia. Jacqueline.hunter@unsw.edu.au.; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia. Jacqueline.hunter@unsw.edu.au., Hetherington K; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia.; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia., McGillycuddy M; Stats Central, Mark Wain Wright Analytical Centre, UNSW Sydney, Sydney, NSW, Australia., Wakefield CE; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia.; Division of Quality of Life and Pediatric Palliative Care, Department of Pediatrics, Stanford University and Stanford Medicine Children's Health, Palo Alto, CA, USA., Tucker KM; Hereditary Cancer Centre, Department of Medical Oncology, Prince of Wales Hospital Randwick, Sydney, NSW, Australia.; Prince of Wales Clinical School, UNSW Sydney, Sydney, NSW, Australia.; Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia., O'Brien TA; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia.; Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia., McGill BC; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia.; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia., Fuentes-Bolanos NA; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia.; Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia.; Children's Cancer Institute, Lowy Cancer Research Centre, UNSW Sydney, Sydney, NSW, Australia., Bhatia K; Children's Cancer Centre, Royal Children's Hospital Melbourne, Victoria, Australia., Padhye B; Cancer Centre for Children, The Children's Hospital at Westmead, Sydney, NSW, Australia.; Kids Research, Children's Cancer Research Unit, The Children's Hospital at Westmead, Sydney, NSW, Australia., Grant A; Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia.; School of Nursing and Midwifery, Faculty of Health, University of Technology Sydney, Sydney, NSW, Australia., Barlow-Stewart K; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia.; Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia.; Children's Cancer Institute, Lowy Cancer Research Centre, UNSW Sydney, Sydney, NSW, Australia., Warby M; Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia.; Children's Cancer Institute, Lowy Cancer Research Centre, UNSW Sydney, Sydney, NSW, Australia., Courtney EK; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia.; Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia.; Children's Cancer Institute, Lowy Cancer Research Centre, UNSW Sydney, Sydney, NSW, Australia., Peate M; Department of Obstetrics, Gynaecology and Newborn Health, Royal Women's Hospital, Melbourne Medical School, Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, Victoria, Australia.
Source: British journal of cancer [Br J Cancer] 2026 May; Vol. 134 (9), pp. 1336-1351. Date of Electronic Publication: 2026 Mar 05.
Publication Type: Journal Article
Journal Info: Publisher: Nature Publishing Group on behalf of Cancer Research UK Country of Publication: England NLM ID: 0370635 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1532-1827 (Electronic) Linking ISSN: 00070920 NLM ISO Abbreviation: Br J Cancer Subsets: MEDLINE
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  Data: "I don't think I even thought of myself" A mixed-methods study of family experiences of trio germline whole genome sequencing in newly diagnosed childhood cancer.
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  Data: <searchLink fieldCode="AU" term="%22Hunter+JD%22">Hunter JD</searchLink>; Department of Obstetrics, Gynaecology and Newborn Health, Royal Women's Hospital, Melbourne Medical School, Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, Victoria, Australia. Jacqueline.hunter@unsw.edu.au.; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia. Jacqueline.hunter@unsw.edu.au.; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia. Jacqueline.hunter@unsw.edu.au.<br /><searchLink fieldCode="AU" term="%22Hetherington+K%22">Hetherington K</searchLink>; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia.; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia.<br /><searchLink fieldCode="AU" term="%22McGillycuddy+M%22">McGillycuddy M</searchLink>; Stats Central, Mark Wain Wright Analytical Centre, UNSW Sydney, Sydney, NSW, Australia.<br /><searchLink fieldCode="AU" term="%22Wakefield+CE%22">Wakefield CE</searchLink>; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia.; Division of Quality of Life and Pediatric Palliative Care, Department of Pediatrics, Stanford University and Stanford Medicine Children's Health, Palo Alto, CA, USA.<br /><searchLink fieldCode="AU" term="%22Tucker+KM%22">Tucker KM</searchLink>; Hereditary Cancer Centre, Department of Medical Oncology, Prince of Wales Hospital Randwick, Sydney, NSW, Australia.; Prince of Wales Clinical School, UNSW Sydney, Sydney, NSW, Australia.; Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia.<br /><searchLink fieldCode="AU" term="%22O'Brien+TA%22">O'Brien TA</searchLink>; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia.; Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia.<br /><searchLink fieldCode="AU" term="%22McGill+BC%22">McGill BC</searchLink>; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia.; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia.<br /><searchLink fieldCode="AU" term="%22Fuentes-Bolanos+NA%22">Fuentes-Bolanos NA</searchLink>; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia.; Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia.; Children's Cancer Institute, Lowy Cancer Research Centre, UNSW Sydney, Sydney, NSW, Australia.<br /><searchLink fieldCode="AU" term="%22Bhatia+K%22">Bhatia K</searchLink>; Children's Cancer Centre, Royal Children's Hospital Melbourne, Victoria, Australia.<br /><searchLink fieldCode="AU" term="%22Padhye+B%22">Padhye B</searchLink>; Cancer Centre for Children, The Children's Hospital at Westmead, Sydney, NSW, Australia.; Kids Research, Children's Cancer Research Unit, The Children's Hospital at Westmead, Sydney, NSW, Australia.<br /><searchLink fieldCode="AU" term="%22Grant+A%22">Grant A</searchLink>; Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia.; School of Nursing and Midwifery, Faculty of Health, University of Technology Sydney, Sydney, NSW, Australia.<br /><searchLink fieldCode="AU" term="%22Barlow-Stewart+K%22">Barlow-Stewart K</searchLink>; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia.; Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia.; Children's Cancer Institute, Lowy Cancer Research Centre, UNSW Sydney, Sydney, NSW, Australia.<br /><searchLink fieldCode="AU" term="%22Warby+M%22">Warby M</searchLink>; Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia.; Children's Cancer Institute, Lowy Cancer Research Centre, UNSW Sydney, Sydney, NSW, Australia.<br /><searchLink fieldCode="AU" term="%22Courtney+EK%22">Courtney EK</searchLink>; School of Clinical Medicine, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, UNSW Sydney, Sydney, NSW, Australia.; Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, Australia.; Children's Cancer Institute, Lowy Cancer Research Centre, UNSW Sydney, Sydney, NSW, Australia.<br /><searchLink fieldCode="AU" term="%22Peate+M%22">Peate M</searchLink>; Department of Obstetrics, Gynaecology and Newborn Health, Royal Women's Hospital, Melbourne Medical School, Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, Victoria, Australia.
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  Data: <searchLink fieldCode="JN" term="%220370635%22">British journal of cancer</searchLink> [Br J Cancer] 2026 May; Vol. 134 (9), pp. 1336-1351. <i>Date of Electronic Publication: </i>2026 Mar 05.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Nature+Publishing+Group+on+behalf+of+Cancer+Research+UK%22">Nature Publishing Group on behalf of Cancer Research UK </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>0370635 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1532-1827 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2200070920%22">00070920 </searchLink><i>NLM ISO Abbreviation: </i>Br J Cancer <i>Subsets: </i>MEDLINE
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