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The lived experience of adolescents with X-linked hypophosphataemia treated with burosumab at end of skeletal growth: a mixed-methods analysis.

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Title: The lived experience of adolescents with X-linked hypophosphataemia treated with burosumab at end of skeletal growth: a mixed-methods analysis.
Authors: Saraff V; Birmingham Women's and Children's Hospital, Birmingham, United Kingdom., Sancho PA; Sant Joan de Déu Barcelona Hospital, Barcelona, Spain., Bacchetta J; Hospices Civils de Lyon, INSERM1033 Research Unit, Lyon, France., Boot AM; University Medical Center Groningen, University of Groningen, The Netherlands., Burren C; University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, United Kingdom., Chinoy A; Royal Manchester Children's Hospital, Manchester, United Kingdom., Dharmaraj P; Alder Hey Children's Hospital, Liverpool, United Kingdom., Llorente MAG; Hospital Virgen de Las Nieves, Granada, Spain., Rodríguez JDG; Department of Pediatric Nephrology, Santa Lucía General University Hospital, Cartagena, Spain., Gueorguieva I; Centre Hospitalier Universitaire de Lille, Lille, France., Davies EH; Aparito Ltd, a wholly owned subsidiary of Eli Lilly and Company, Wrexham, United Kingdom., Hayes W; Great Ormond Street Hospital, London, United Kingdom., Komarzynski S; Aparito Ltd, a wholly owned subsidiary of Eli Lilly and Company, Wrexham, United Kingdom., Duro HR; Pediatric Nephrology, Vall d'Hebron University Hospital, Barcelona, Spain., Rylands AJ; Kyowa Kirin International, Marlow, United Kingdom., Sandilands K; Kyowa Kirin International, Marlow, United Kingdom., Williams A; Kyowa Kirin International, Marlow, United Kingdom., Hardie E; Kyowa Kirin International, Marlow, United Kingdom., Ishii H; Kyowa Kirin Co., Ltd., Tokyo, Japan., Schnabel D; Center for Chronically Sick Children, Pediatric Endocrinology, Charité - University Medicine Berlin, Germany., Selveindran SM; Open Health Ltd, Marlow, United Kingdom., Linglart A; Paris-Saclay University, AP-HP, INSERM, Service d'Endocrinologie et Diabète de l'Enfant, Bicêtre Paris-Saclay Hospital, Le Kremlin-Bicêtre, France.
Source: PloS one [PLoS One] 2026 Mar 20; Vol. 21 (3), pp. e0344902. Date of Electronic Publication: 2026 Mar 20 (Print Publication: 2026).
Publication Type: Journal Article; Multicenter Study
Journal Info: Publisher: Public Library of Science Country of Publication: United States NLM ID: 101285081 Publication Model: eCollection Cited Medium: Internet ISSN: 1932-6203 (Electronic) Linking ISSN: 19326203 NLM ISO Abbreviation: PLoS One Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: The lived experience of adolescents with X-linked hypophosphataemia treated with burosumab at end of skeletal growth: a mixed-methods analysis.
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  Data: <searchLink fieldCode="AU" term="%22Saraff+V%22">Saraff V</searchLink>; Birmingham Women's and Children's Hospital, Birmingham, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Sancho+PA%22">Sancho PA</searchLink>; Sant Joan de Déu Barcelona Hospital, Barcelona, Spain.<br /><searchLink fieldCode="AU" term="%22Bacchetta+J%22">Bacchetta J</searchLink>; Hospices Civils de Lyon, INSERM1033 Research Unit, Lyon, France.<br /><searchLink fieldCode="AU" term="%22Boot+AM%22">Boot AM</searchLink>; University Medical Center Groningen, University of Groningen, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Burren+C%22">Burren C</searchLink>; University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Chinoy+A%22">Chinoy A</searchLink>; Royal Manchester Children's Hospital, Manchester, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Dharmaraj+P%22">Dharmaraj P</searchLink>; Alder Hey Children's Hospital, Liverpool, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Llorente+MAG%22">Llorente MAG</searchLink>; Hospital Virgen de Las Nieves, Granada, Spain.<br /><searchLink fieldCode="AU" term="%22Rodríguez+JDG%22">Rodríguez JDG</searchLink>; Department of Pediatric Nephrology, Santa Lucía General University Hospital, Cartagena, Spain.<br /><searchLink fieldCode="AU" term="%22Gueorguieva+I%22">Gueorguieva I</searchLink>; Centre Hospitalier Universitaire de Lille, Lille, France.<br /><searchLink fieldCode="AU" term="%22Davies+EH%22">Davies EH</searchLink>; Aparito Ltd, a wholly owned subsidiary of Eli Lilly and Company, Wrexham, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Hayes+W%22">Hayes W</searchLink>; Great Ormond Street Hospital, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Komarzynski+S%22">Komarzynski S</searchLink>; Aparito Ltd, a wholly owned subsidiary of Eli Lilly and Company, Wrexham, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Duro+HR%22">Duro HR</searchLink>; Pediatric Nephrology, Vall d'Hebron University Hospital, Barcelona, Spain.<br /><searchLink fieldCode="AU" term="%22Rylands+AJ%22">Rylands AJ</searchLink>; Kyowa Kirin International, Marlow, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Sandilands+K%22">Sandilands K</searchLink>; Kyowa Kirin International, Marlow, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Williams+A%22">Williams A</searchLink>; Kyowa Kirin International, Marlow, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Hardie+E%22">Hardie E</searchLink>; Kyowa Kirin International, Marlow, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Ishii+H%22">Ishii H</searchLink>; Kyowa Kirin Co., Ltd., Tokyo, Japan.<br /><searchLink fieldCode="AU" term="%22Schnabel+D%22">Schnabel D</searchLink>; Center for Chronically Sick Children, Pediatric Endocrinology, Charité - University Medicine Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Selveindran+SM%22">Selveindran SM</searchLink>; Open Health Ltd, Marlow, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Linglart+A%22">Linglart A</searchLink>; Paris-Saclay University, AP-HP, INSERM, Service d'Endocrinologie et Diabète de l'Enfant, Bicêtre Paris-Saclay Hospital, Le Kremlin-Bicêtre, France.
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  Data: <searchLink fieldCode="JN" term="%22101285081%22">PloS one</searchLink> [PLoS One] 2026 Mar 20; Vol. 21 (3), pp. e0344902. <i>Date of Electronic Publication: </i>2026 Mar 20 (<i>Print Publication: </i>2026).
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