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Palliative care symptoms of people living with rapidly progressive prion diseases: a systematic review.

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Title: Palliative care symptoms of people living with rapidly progressive prion diseases: a systematic review.
Authors: Williams RT; MRC Prion Unit at UCL, Institute of Prion Disease, Courtauld Building, 33 Cleveland Street, London, W1W 7FF, UK.; National Prion Clinic, University College London Hospitals NHS Foundation Trust, London, UK., White N; Marie Curie Palliative Care Research Department, Division of Psychiatry, UCL, London, W1T 7NF, UK., Kearns J; School of Social Sciences, Education and Social Work, Queen's University Belfast, Belfast, BT71NN, UK., McNiven K; MRC Prion Unit at UCL, Institute of Prion Disease, Courtauld Building, 33 Cleveland Street, London, W1W 7FF, UK.; National Prion Clinic, University College London Hospitals NHS Foundation Trust, London, UK., Marasigan AR; MRC Prion Unit at UCL, Institute of Prion Disease, Courtauld Building, 33 Cleveland Street, London, W1W 7FF, UK.; National Prion Clinic, University College London Hospitals NHS Foundation Trust, London, UK., Sampson EL; Centre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University of London, Yvonne Carter Building, Turner Street, London, E1 2AB, UK.; Academic Centre for Healthy Ageing (ACHA), Whipps Cross University Hospital, Barts Health NHS Trust, Whipps Cross Road, London, E11 1NR, UK., Evans CJ; Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, Cicely Saunders Institute, King's College London, Bessemer Road, London, SE5 9PJ, UK., Mead S; MRC Prion Unit at UCL, Institute of Prion Disease, Courtauld Building, 33 Cleveland Street, London, W1W 7FF, UK. s.mead@ucl.ac.uk.; National Prion Clinic, University College London Hospitals NHS Foundation Trust, London, UK. s.mead@ucl.ac.uk., Kupeli N; Marie Curie Palliative Care Research Department, Division of Psychiatry, UCL, London, W1T 7NF, UK.; Centre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University of London, Yvonne Carter Building, Turner Street, London, E1 2AB, UK.
Corporate Authors: EMBED‐Care Programme
Source: BMC palliative care [BMC Palliat Care] 2026 Apr 27; Vol. 25 (1). Date of Electronic Publication: 2026 Apr 27.
Publication Type: Systematic Review; Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101088685 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-684X (Electronic) Linking ISSN: 1472684X NLM ISO Abbreviation: BMC Palliat Care Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Williams+RT%22">Williams RT</searchLink>; MRC Prion Unit at UCL, Institute of Prion Disease, Courtauld Building, 33 Cleveland Street, London, W1W 7FF, UK.; National Prion Clinic, University College London Hospitals NHS Foundation Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22White+N%22">White N</searchLink>; Marie Curie Palliative Care Research Department, Division of Psychiatry, UCL, London, W1T 7NF, UK.<br /><searchLink fieldCode="AU" term="%22Kearns+J%22">Kearns J</searchLink>; School of Social Sciences, Education and Social Work, Queen's University Belfast, Belfast, BT71NN, UK.<br /><searchLink fieldCode="AU" term="%22McNiven+K%22">McNiven K</searchLink>; MRC Prion Unit at UCL, Institute of Prion Disease, Courtauld Building, 33 Cleveland Street, London, W1W 7FF, UK.; National Prion Clinic, University College London Hospitals NHS Foundation Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22Marasigan+AR%22">Marasigan AR</searchLink>; MRC Prion Unit at UCL, Institute of Prion Disease, Courtauld Building, 33 Cleveland Street, London, W1W 7FF, UK.; National Prion Clinic, University College London Hospitals NHS Foundation Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22Sampson+EL%22">Sampson EL</searchLink>; Centre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University of London, Yvonne Carter Building, Turner Street, London, E1 2AB, UK.; Academic Centre for Healthy Ageing (ACHA), Whipps Cross University Hospital, Barts Health NHS Trust, Whipps Cross Road, London, E11 1NR, UK.<br /><searchLink fieldCode="AU" term="%22Evans+CJ%22">Evans CJ</searchLink>; Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, Cicely Saunders Institute, King's College London, Bessemer Road, London, SE5 9PJ, UK.<br /><searchLink fieldCode="AU" term="%22Mead+S%22">Mead S</searchLink>; MRC Prion Unit at UCL, Institute of Prion Disease, Courtauld Building, 33 Cleveland Street, London, W1W 7FF, UK. s.mead@ucl.ac.uk.; National Prion Clinic, University College London Hospitals NHS Foundation Trust, London, UK. s.mead@ucl.ac.uk.<br /><searchLink fieldCode="AU" term="%22Kupeli+N%22">Kupeli N</searchLink>; Marie Curie Palliative Care Research Department, Division of Psychiatry, UCL, London, W1T 7NF, UK.; Centre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University of London, Yvonne Carter Building, Turner Street, London, E1 2AB, UK.
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  Data: <searchLink fieldCode="JN" term="%22101088685%22">BMC palliative care</searchLink> [BMC Palliat Care] 2026 Apr 27; Vol. 25 (1). <i>Date of Electronic Publication: </i>2026 Apr 27.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101088685 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1472-684X (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%221472684X%22">1472684X </searchLink><i>NLM ISO Abbreviation: </i>BMC Palliat Care <i>Subsets: </i>MEDLINE
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              Text: 2026 Apr 27
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