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Labour of Love: A Sequential Exploratory Mixed-Methods Study on the Impact of Caring for a Child With Dravet Syndrome.

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Title: Labour of Love: A Sequential Exploratory Mixed-Methods Study on the Impact of Caring for a Child With Dravet Syndrome.
Authors: Postma A; Department of Psychiatry and Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands., Milota M; Department of Bioethics and Health Humanities, Julius Centre, University Medical Centre Utrecht, Utrecht, The Netherlands., Jongmans MJ; Department of Pedagogical and Educational Sciences, Faculty of Social and Behavioural Sciences, Utrecht University, Utrecht, The Netherlands.; Department of Neonatology, Wilhelmina Children's Hospital, University Medical Centre Utrecht, Utrecht, The Netherlands., Brilstra EH; Department of Genetics and UMC Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands., Zinkstok JR; Department of Psychiatry and Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands.; Department of Psychiatry, Radboud University Medical Centre, Nijmegen, The Netherlands.; Karakter Child- and Adolescent Psychiatry Nijmegen, Nijmegen, The Netherlands.
Source: Journal of intellectual disability research : JIDR [J Intellect Disabil Res] 2026 Jul; Vol. 70 (7), pp. 746-757. Date of Electronic Publication: 2026 Apr 30.
Publication Type: Journal Article
Journal Info: Publisher: Blackwell Scientific Publications on behalf of the Royal Society for Mentally Handicapped Children and Adults Country of Publication: England NLM ID: 9206090 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1365-2788 (Electronic) Linking ISSN: 09642633 NLM ISO Abbreviation: J Intellect Disabil Res Subsets: MEDLINE
Database: MEDLINE Ultimate
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PubType: Academic Journal
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  Data: Labour of Love: A Sequential Exploratory Mixed-Methods Study on the Impact of Caring for a Child With Dravet Syndrome.
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  Data: <searchLink fieldCode="AU" term="%22Postma+A%22">Postma A</searchLink>; Department of Psychiatry and Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Milota+M%22">Milota M</searchLink>; Department of Bioethics and Health Humanities, Julius Centre, University Medical Centre Utrecht, Utrecht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Jongmans+MJ%22">Jongmans MJ</searchLink>; Department of Pedagogical and Educational Sciences, Faculty of Social and Behavioural Sciences, Utrecht University, Utrecht, The Netherlands.; Department of Neonatology, Wilhelmina Children's Hospital, University Medical Centre Utrecht, Utrecht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Brilstra+EH%22">Brilstra EH</searchLink>; Department of Genetics and UMC Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Zinkstok+JR%22">Zinkstok JR</searchLink>; Department of Psychiatry and Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands.; Department of Psychiatry, Radboud University Medical Centre, Nijmegen, The Netherlands.; Karakter Child- and Adolescent Psychiatry Nijmegen, Nijmegen, The Netherlands.
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  Data: <searchLink fieldCode="JN" term="%229206090%22">Journal of intellectual disability research : JIDR</searchLink> [J Intellect Disabil Res] 2026 Jul; Vol. 70 (7), pp. 746-757. <i>Date of Electronic Publication: </i>2026 Apr 30.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Blackwell+Scientific+Publications+on+behalf+of+the+Royal+Society+for+Mentally+Handicapped+Children+and+Adults%22">Blackwell Scientific Publications on behalf of the Royal Society for Mentally Handicapped Children and Adults </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>9206090 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1365-2788 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2209642633%22">09642633 </searchLink><i>NLM ISO Abbreviation: </i>J Intellect Disabil Res <i>Subsets: </i>MEDLINE
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      – Type: doi
        Value: 10.1111/jir.70113
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      – Code: eng
        Text: English
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        StartPage: 746
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      – TitleFull: Labour of Love: A Sequential Exploratory Mixed-Methods Study on the Impact of Caring for a Child With Dravet Syndrome.
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            NameFull: Postma A
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            NameFull: Milota M
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            NameFull: Jongmans MJ
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            NameFull: Brilstra EH
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              Text: 2026 Jul
              Type: published
              Y: 2026
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              Value: 1365-2788
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              Value: 70
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              Value: 7
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            – TitleFull: Journal of intellectual disability research : JIDR
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