Best practices in demographic data collection for equity, diversity, and inclusion in rare disease research: A systematic review.
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| Title: | Best practices in demographic data collection for equity, diversity, and inclusion in rare disease research: A systematic review. |
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| Authors: | Sinan I; Department of Medical Genetics, University of Calgary, Calgary, Alberta, Canada. Electronic address: 19is14@queensu.ca., Johnston M; Department of Medical Genetics, University of Calgary, Calgary, Alberta, Canada., Marwaha A; Department of Medical Genetics, University of Calgary, Calgary, Alberta, Canada. |
| Source: | Genetics in medicine : official journal of the American College of Medical Genetics [Genet Med] 2026 Jul; Vol. 28 (7), pp. 102592. Date of Electronic Publication: 2026 May 01. |
| Publication Type: | Journal Article; Systematic Review; Review |
| Journal Info: | Publisher: Elsevier Country of Publication: United States NLM ID: 9815831 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1530-0366 (Electronic) Linking ISSN: 10983600 NLM ISO Abbreviation: Genet Med Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
| ISSN: | 1530-0366 |
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| DOI: | 10.1016/j.gim.2026.102592 |
