View in EDS

Patient-reported clinical characteristics and healthcare utilization in Spinal Muscular Atrophy (SMA): a cross-sectional study from Iran.

Saved in:
Bibliographic Details
Title: Patient-reported clinical characteristics and healthcare utilization in Spinal Muscular Atrophy (SMA): a cross-sectional study from Iran.
Authors: Montazeri B; Department of Pharmacoeconomics, Faculty of Pharmacy, Tehran Medical Sciences, Islamic Azad University, Tehran, Iran., Daroudi R; Department of Health Management, Policy and Economics, School of Public Health, Tehran University of Medical Sciences, Tehran, Iran., Darvishi A; Workplace Health Promotion Research Center, Research Institute for Health Sciences and Environment, Shahid Beheshti University of Medical Sciences, Tehran, Iran.; Department of Health Policy and Management, School of Public Health and Safety, Shahid Beheshti University of Medical Sciences, Tehran, Iran., Heidari M; Department of Pediatrics, Children's Medical Center, Tehran University of Medical Sciences (TUMS), Tehran, Iran., Anabi M; Department of Pharmacoeconomics, Faculty of Pharmacy, Tehran Medical Sciences, Islamic Azad University, Tehran, Iran., Heshmat R; Chronic Disease Research Center (CDRC), Endocrinology Metabolism Research Institute (EMRI), Tehran University of Medical Sciences (TUMS), Tehran, Iran. rheshmat@tums.ac.ir.
Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2026 May 11; Vol. 21 (1). Date of Electronic Publication: 2026 May 11.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
FullText Text:
  Availability: 0
Header DbId: mdl
DbLabel: MEDLINE Ultimate
An: 42116195
AccessLevel: 2
PubType: Academic Journal
PubTypeId: academicJournal
PreciseRelevancyScore: 0
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: Patient-reported clinical characteristics and healthcare utilization in Spinal Muscular Atrophy (SMA): a cross-sectional study from Iran.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AU" term="%22Montazeri+B%22">Montazeri B</searchLink>; Department of Pharmacoeconomics, Faculty of Pharmacy, Tehran Medical Sciences, Islamic Azad University, Tehran, Iran.<br /><searchLink fieldCode="AU" term="%22Daroudi+R%22">Daroudi R</searchLink>; Department of Health Management, Policy and Economics, School of Public Health, Tehran University of Medical Sciences, Tehran, Iran.<br /><searchLink fieldCode="AU" term="%22Darvishi+A%22">Darvishi A</searchLink>; Workplace Health Promotion Research Center, Research Institute for Health Sciences and Environment, Shahid Beheshti University of Medical Sciences, Tehran, Iran.; Department of Health Policy and Management, School of Public Health and Safety, Shahid Beheshti University of Medical Sciences, Tehran, Iran.<br /><searchLink fieldCode="AU" term="%22Heidari+M%22">Heidari M</searchLink>; Department of Pediatrics, Children's Medical Center, Tehran University of Medical Sciences (TUMS), Tehran, Iran.<br /><searchLink fieldCode="AU" term="%22Anabi+M%22">Anabi M</searchLink>; Department of Pharmacoeconomics, Faculty of Pharmacy, Tehran Medical Sciences, Islamic Azad University, Tehran, Iran.<br /><searchLink fieldCode="AU" term="%22Heshmat+R%22">Heshmat R</searchLink>; Chronic Disease Research Center (CDRC), Endocrinology Metabolism Research Institute (EMRI), Tehran University of Medical Sciences (TUMS), Tehran, Iran. rheshmat@tums.ac.ir.
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%22101266602%22">Orphanet journal of rare diseases</searchLink> [Orphanet J Rare Dis] 2026 May 11; Vol. 21 (1). <i>Date of Electronic Publication: </i>2026 May 11.
– Name: TypePub
  Label: Publication Type
  Group: TypPub
  Data: Journal Article
– Name: TitleSource
  Label: Journal Info
  Group: Src
  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101266602 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1750-1172 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2217501172%22">17501172 </searchLink><i>NLM ISO Abbreviation: </i>Orphanet J Rare Dis <i>Subsets: </i>MEDLINE
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=42116195
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1186/s13023-026-04366-7
    Languages:
      – Code: eng
        Text: English
    Titles:
      – TitleFull: Patient-reported clinical characteristics and healthcare utilization in Spinal Muscular Atrophy (SMA): a cross-sectional study from Iran.
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: Montazeri B
      – PersonEntity:
          Name:
            NameFull: Daroudi R
      – PersonEntity:
          Name:
            NameFull: Darvishi A
      – PersonEntity:
          Name:
            NameFull: Heidari M
      – PersonEntity:
          Name:
            NameFull: Anabi M
      – PersonEntity:
          Name:
            NameFull: Heshmat R
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 11
              M: 05
              Text: 2026 May 11
              Type: published
              Y: 2026
          Identifiers:
            – Type: issn-electronic
              Value: 1750-1172
          Numbering:
            – Type: volume
              Value: 21
            – Type: issue
              Value: 1
          Titles:
            – TitleFull: Orphanet journal of rare diseases
              Type: main
ResultId 1