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Shared decision-making for preventive sports cardiology in youth with heart disease: a pilot study.

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Title: Shared decision-making for preventive sports cardiology in youth with heart disease: a pilot study.
Authors: Petrault M; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France., Andrianoely M; INSERM U1045, IHU Liryc, Electrophysiology and Heart Modelling Institute, University of Bordeaux, Pessac, France.; Just Coaching, Paris, France., Audie M; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.; Le Hillot Cardiac Rehabilitation Center, Pessac, France., Werner O; INSERM U1045, IHU Liryc, Electrophysiology and Heart Modelling Institute, University of Bordeaux, Pessac, France.; Department of Pediatric Cardiology and Pediatric Cardiac Surgery, FHU PRECICARE, Nantes University Hospital, Nantes, France., Lagorce S; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France., Froger S; Siel Bleu Organization, Bordeaux, France., Chabaneix J; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.; ATENA Registry, Bordeaux University Hospital, Bordeaux, France., Hasselot J; Patient Advocacy Organization 'Les Liens Du Cœur', Pessac, France., Jouenne Y; Patient Advocacy Organization 'Les Liens Du Cœur', Pessac, France., Jore C; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France., Viton Le Mao L; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France., Apheceixborde M; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France., Iriart X; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France., Mouton JB; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France., Gotchac J; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.; INSERM U1045, IHU Liryc, Electrophysiology and Heart Modelling Institute, University of Bordeaux, Pessac, France., Ferrer-Sargues FJ; Regeneration and Heart Transplant Research Group (RETRACAR), Health Research Institute La Fe (IISLAFE), Valencia, Spain.; Department of Physiotherapy, Universidad Cardenal Herrera CEU, CEU Universities, Valencia, Spain., Thambo JB; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.; INSERM U1045, IHU Liryc, Electrophysiology and Heart Modelling Institute, University of Bordeaux, Pessac, France., Amedro P; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France. pascal.amedro@gmail.com.; INSERM U1045, IHU Liryc, Electrophysiology and Heart Modelling Institute, University of Bordeaux, Pessac, France. pascal.amedro@gmail.com.; Heart & Lung Center, Heart Research Institute, Children's National Hospital, Washington, DC, USA. pascal.amedro@gmail.com.; Department of Pediatrics, The George Washington University School of Medicine & Health Sciences, Washington, DC, USA. pascal.amedro@gmail.com.
Corporate Authors: QUALIREHAB study group
Source: Pediatric research [Pediatr Res] 2026 May 07. Date of Electronic Publication: 2026 May 07.
Publication Type: Journal Article
Journal Info: Publisher: Nature Publishing Group Country of Publication: United States NLM ID: 0100714 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1530-0447 (Electronic) Linking ISSN: 00313998 NLM ISO Abbreviation: Pediatr Res Subsets: MEDLINE
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  Data: Shared decision-making for preventive sports cardiology in youth with heart disease: a pilot study.
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  Data: <searchLink fieldCode="AU" term="%22Petrault+M%22">Petrault M</searchLink>; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.<br /><searchLink fieldCode="AU" term="%22Andrianoely+M%22">Andrianoely M</searchLink>; INSERM U1045, IHU Liryc, Electrophysiology and Heart Modelling Institute, University of Bordeaux, Pessac, France.; Just Coaching, Paris, France.<br /><searchLink fieldCode="AU" term="%22Audie+M%22">Audie M</searchLink>; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.; Le Hillot Cardiac Rehabilitation Center, Pessac, France.<br /><searchLink fieldCode="AU" term="%22Werner+O%22">Werner O</searchLink>; INSERM U1045, IHU Liryc, Electrophysiology and Heart Modelling Institute, University of Bordeaux, Pessac, France.; Department of Pediatric Cardiology and Pediatric Cardiac Surgery, FHU PRECICARE, Nantes University Hospital, Nantes, France.<br /><searchLink fieldCode="AU" term="%22Lagorce+S%22">Lagorce S</searchLink>; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.<br /><searchLink fieldCode="AU" term="%22Froger+S%22">Froger S</searchLink>; Siel Bleu Organization, Bordeaux, France.<br /><searchLink fieldCode="AU" term="%22Chabaneix+J%22">Chabaneix J</searchLink>; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.; ATENA Registry, Bordeaux University Hospital, Bordeaux, France.<br /><searchLink fieldCode="AU" term="%22Hasselot+J%22">Hasselot J</searchLink>; Patient Advocacy Organization 'Les Liens Du Cœur', Pessac, France.<br /><searchLink fieldCode="AU" term="%22Jouenne+Y%22">Jouenne Y</searchLink>; Patient Advocacy Organization 'Les Liens Du Cœur', Pessac, France.<br /><searchLink fieldCode="AU" term="%22Jore+C%22">Jore C</searchLink>; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.<br /><searchLink fieldCode="AU" term="%22Viton+Le+Mao+L%22">Viton Le Mao L</searchLink>; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.<br /><searchLink fieldCode="AU" term="%22Apheceixborde+M%22">Apheceixborde M</searchLink>; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.<br /><searchLink fieldCode="AU" term="%22Iriart+X%22">Iriart X</searchLink>; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.<br /><searchLink fieldCode="AU" term="%22Mouton+JB%22">Mouton JB</searchLink>; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.<br /><searchLink fieldCode="AU" term="%22Gotchac+J%22">Gotchac J</searchLink>; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.; INSERM U1045, IHU Liryc, Electrophysiology and Heart Modelling Institute, University of Bordeaux, Pessac, France.<br /><searchLink fieldCode="AU" term="%22Ferrer-Sargues+FJ%22">Ferrer-Sargues FJ</searchLink>; Regeneration and Heart Transplant Research Group (RETRACAR), Health Research Institute La Fe (IISLAFE), Valencia, Spain.; Department of Physiotherapy, Universidad Cardenal Herrera CEU, CEU Universities, Valencia, Spain.<br /><searchLink fieldCode="AU" term="%22Thambo+JB%22">Thambo JB</searchLink>; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France.; INSERM U1045, IHU Liryc, Electrophysiology and Heart Modelling Institute, University of Bordeaux, Pessac, France.<br /><searchLink fieldCode="AU" term="%22Amedro+P%22">Amedro P</searchLink>; Department of Pediatric and Congenital Cardiology, National M3C Reference Center for Complex Congenital Heart Disease, Bordeaux University Hospital, Pessac, France. pascal.amedro@gmail.com.; INSERM U1045, IHU Liryc, Electrophysiology and Heart Modelling Institute, University of Bordeaux, Pessac, France. pascal.amedro@gmail.com.; Heart & Lung Center, Heart Research Institute, Children's National Hospital, Washington, DC, USA. pascal.amedro@gmail.com.; Department of Pediatrics, The George Washington University School of Medicine & Health Sciences, Washington, DC, USA. pascal.amedro@gmail.com.
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