Current state and demographic trends of medically underserved populations in rare disease research in the United States: a systematic review.
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| Title: | Current state and demographic trends of medically underserved populations in rare disease research in the United States: a systematic review. |
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| Authors: | Manjunatha L; Indo US Organization for Rare Diseases (IndoUSrare), Herndon, VA, 20171, USA., Ms S; Indo US Organization for Rare Diseases (IndoUSrare), Herndon, VA, 20171, USA., Dokuru D; Indo US Organization for Rare Diseases (IndoUSrare), Herndon, VA, 20171, USA., Venugopal N; Indo US Organization for Rare Diseases (IndoUSrare), Herndon, VA, 20171, USA., Waldrop JN; Rare Disease Diversity Coalition (RDDC), Black Women's Health Imperative (BWHI), Atlanta, GA, 3013, USA., Blount LG; Rare Disease Diversity Coalition (RDDC), Black Women's Health Imperative (BWHI), Atlanta, GA, 3013, USA., Kartha RV; Indo US Organization for Rare Diseases (IndoUSrare), Herndon, VA, 20171, USA.; Center for Orphan Drug Research, Department of Experimental and Clinical Pharmacology, University of Minnesota Twin Cities, Minneapolis, MN, USA., Rajasimha HK; Indo US Organization for Rare Diseases (IndoUSrare), Herndon, VA, 20171, USA. harshakarur@gmail.com.; Jeeva Clinical Trials, Inc, Manassas, VA, 20109, USA. harshakarur@gmail.com.; School of Systems Biology, George Mason University, Fairfax, VA, 22030, USA. harshakarur@gmail.com. |
| Source: | BMC health services research [BMC Health Serv Res] 2026 May 18. Date of Electronic Publication: 2026 May 18. |
| Publication Type: | Journal Article; Systematic Review |
| Journal Info: | Publisher: BioMed Central Country of Publication: England NLM ID: 101088677 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1472-6963 (Electronic) Linking ISSN: 14726963 NLM ISO Abbreviation: BMC Health Serv Res Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
| FullText | Text: Availability: 0 |
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| Header | DbId: mdl DbLabel: MEDLINE Ultimate An: 42151939 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Current state and demographic trends of medically underserved populations in rare disease research in the United States: a systematic review. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AU" term="%22Manjunatha+L%22">Manjunatha L</searchLink>; Indo US Organization for Rare Diseases (IndoUSrare), Herndon, VA, 20171, USA.<br /><searchLink fieldCode="AU" term="%22Ms+S%22">Ms S</searchLink>; Indo US Organization for Rare Diseases (IndoUSrare), Herndon, VA, 20171, USA.<br /><searchLink fieldCode="AU" term="%22Dokuru+D%22">Dokuru D</searchLink>; Indo US Organization for Rare Diseases (IndoUSrare), Herndon, VA, 20171, USA.<br /><searchLink fieldCode="AU" term="%22Venugopal+N%22">Venugopal N</searchLink>; Indo US Organization for Rare Diseases (IndoUSrare), Herndon, VA, 20171, USA.<br /><searchLink fieldCode="AU" term="%22Waldrop+JN%22">Waldrop JN</searchLink>; Rare Disease Diversity Coalition (RDDC), Black Women's Health Imperative (BWHI), Atlanta, GA, 3013, USA.<br /><searchLink fieldCode="AU" term="%22Blount+LG%22">Blount LG</searchLink>; Rare Disease Diversity Coalition (RDDC), Black Women's Health Imperative (BWHI), Atlanta, GA, 3013, USA.<br /><searchLink fieldCode="AU" term="%22Kartha+RV%22">Kartha RV</searchLink>; Indo US Organization for Rare Diseases (IndoUSrare), Herndon, VA, 20171, USA.; Center for Orphan Drug Research, Department of Experimental and Clinical Pharmacology, University of Minnesota Twin Cities, Minneapolis, MN, USA.<br /><searchLink fieldCode="AU" term="%22Rajasimha+HK%22">Rajasimha HK</searchLink>; Indo US Organization for Rare Diseases (IndoUSrare), Herndon, VA, 20171, USA. harshakarur@gmail.com.; Jeeva Clinical Trials, Inc, Manassas, VA, 20109, USA. harshakarur@gmail.com.; School of Systems Biology, George Mason University, Fairfax, VA, 22030, USA. harshakarur@gmail.com. – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22101088677%22">BMC health services research</searchLink> [BMC Health Serv Res] 2026 May 18. <i>Date of Electronic Publication: </i>2026 May 18. – Name: TypePub Label: Publication Type Group: TypPub Data: Journal Article; Systematic Review – Name: TitleSource Label: Journal Info Group: Src Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101088677 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1472-6963 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2214726963%22">14726963 </searchLink><i>NLM ISO Abbreviation: </i>BMC Health Serv Res <i>Subsets: </i>MEDLINE |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=42151939 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1186/s12913-026-14281-z Languages: – Code: eng Text: English Titles: – TitleFull: Current state and demographic trends of medically underserved populations in rare disease research in the United States: a systematic review. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Manjunatha L – PersonEntity: Name: NameFull: Ms S – PersonEntity: Name: NameFull: Dokuru D – PersonEntity: Name: NameFull: Venugopal N – PersonEntity: Name: NameFull: Waldrop JN – PersonEntity: Name: NameFull: Blount LG – PersonEntity: Name: NameFull: Kartha RV – PersonEntity: Name: NameFull: Rajasimha HK IsPartOfRelationships: – BibEntity: Dates: – D: 18 M: 05 Text: 2026 May 18 Type: published Y: 2026 Identifiers: – Type: issn-electronic Value: 1472-6963 Titles: – TitleFull: BMC health services research Type: main |
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