Utilizing Routine Care Data of Rare Diseases: Challenges, Chances and Call for Collaboration.
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| Title: | Utilizing Routine Care Data of Rare Diseases: Challenges, Chances and Call for Collaboration. |
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| Authors: | Hübner M; Berlin Institute of Health at Charité, Berlin, Germany.; Charité - Universitätsmedizin Berlin, Berlin, Germany., Schaarschmidt M; Berlin Institute of Health at Charité, Berlin, Germany.; Charité - Universitätsmedizin Berlin, Berlin, Germany., Muratovic H; University of Southern Denmark, Odense, Denmark., Finis C; Berlin Institute of Health at Charité, Berlin, Germany.; Charité - Universitätsmedizin Berlin, Berlin, Germany., Nyoungui E; University Medical Center Goettingen, Goettingen, Germany., Krefting D; University Medical Center Goettingen, Goettingen, Germany., Zschüntzsch J; University Medical Center Goettingen, Goettingen, Germany., Schepers J; Charité - Universitätsmedizin Berlin, Berlin, Germany.; University Medical Center Goettingen, Goettingen, Germany.; University of Southern Denmark, Odense, Denmark., Röttger R; University of Southern Denmark, Odense, Denmark. |
| Source: | Studies in health technology and informatics [Stud Health Technol Inform] 2026 May 21; Vol. 336, pp. 2489-2490. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: IOS Press Country of Publication: Netherlands NLM ID: 9214582 Publication Model: Print Cited Medium: Internet ISSN: 1879-8365 (Electronic) Linking ISSN: 09269630 NLM ISO Abbreviation: Stud Health Technol Inform Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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