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Angioedema due to acquired C1 inhibitor deficiency: patient experience, conceptual disease model, and assessment of patient-reported outcome measures.

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Title: Angioedema due to acquired C1 inhibitor deficiency: patient experience, conceptual disease model, and assessment of patient-reported outcome measures.
Authors: de Lange M; Department of Vascular Medicine, Amsterdam Cardiovascular Sciences, Amsterdam UMC, University of Amsterdam, Amsterdam, Netherlands., Cohn DM; Department of Vascular Medicine, Amsterdam Cardiovascular Sciences, Amsterdam UMC, University of Amsterdam, Amsterdam, Netherlands., Gobert D; Sorbonne Université, Médecine Interne, AP-HP, Centre de référence des angioedèmes à kinines, Hôpital Saint-Antoine, Paris, France., Riedl MA; Division of Allergy and Immunology, University of California, San Diego, La Jolla, CA, United States., Zanichelli A; Dipartimento di Scienze Biomediche per la Salute, Universita degli Studi di Milano, Milan, Italy.; Operative Unit of Medicine, Angioedema Center, IRCCS Policlinico San Donato, Milan, Italy., Brewer K; Sprout Health Solutions, Los Angeles, CA, United States., Clifford S; Sprout Health Solutions, Los Angeles, CA, United States., Pattanaik S; Sprout Health Solutions, Los Angeles, CA, United States., Romero B; Sprout Health Solutions, Los Angeles, CA, United States., Chen M; Pharvaris Inc., Lexington, MA, United States., Mendivil J; Pharvaris GmbH, Zug, Switzerland.
Source: Frontiers in immunology [Front Immunol] 2026 May 14; Vol. 17, pp. 1810851. Date of Electronic Publication: 2026 May 14 (Print Publication: 2026).
Publication Type: Journal Article
Journal Info: Publisher: Frontiers Research Foundation] Country of Publication: Switzerland NLM ID: 101560960 Publication Model: eCollection Cited Medium: Internet ISSN: 1664-3224 (Electronic) Linking ISSN: 16643224 NLM ISO Abbreviation: Front Immunol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Angioedema due to acquired C1 inhibitor deficiency: patient experience, conceptual disease model, and assessment of patient-reported outcome measures.
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  Data: <searchLink fieldCode="AU" term="%22de+Lange+M%22">de Lange M</searchLink>; Department of Vascular Medicine, Amsterdam Cardiovascular Sciences, Amsterdam UMC, University of Amsterdam, Amsterdam, Netherlands.<br /><searchLink fieldCode="AU" term="%22Cohn+DM%22">Cohn DM</searchLink>; Department of Vascular Medicine, Amsterdam Cardiovascular Sciences, Amsterdam UMC, University of Amsterdam, Amsterdam, Netherlands.<br /><searchLink fieldCode="AU" term="%22Gobert+D%22">Gobert D</searchLink>; Sorbonne Université, Médecine Interne, AP-HP, Centre de référence des angioedèmes à kinines, Hôpital Saint-Antoine, Paris, France.<br /><searchLink fieldCode="AU" term="%22Riedl+MA%22">Riedl MA</searchLink>; Division of Allergy and Immunology, University of California, San Diego, La Jolla, CA, United States.<br /><searchLink fieldCode="AU" term="%22Zanichelli+A%22">Zanichelli A</searchLink>; Dipartimento di Scienze Biomediche per la Salute, Universita degli Studi di Milano, Milan, Italy.; Operative Unit of Medicine, Angioedema Center, IRCCS Policlinico San Donato, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Brewer+K%22">Brewer K</searchLink>; Sprout Health Solutions, Los Angeles, CA, United States.<br /><searchLink fieldCode="AU" term="%22Clifford+S%22">Clifford S</searchLink>; Sprout Health Solutions, Los Angeles, CA, United States.<br /><searchLink fieldCode="AU" term="%22Pattanaik+S%22">Pattanaik S</searchLink>; Sprout Health Solutions, Los Angeles, CA, United States.<br /><searchLink fieldCode="AU" term="%22Romero+B%22">Romero B</searchLink>; Sprout Health Solutions, Los Angeles, CA, United States.<br /><searchLink fieldCode="AU" term="%22Chen+M%22">Chen M</searchLink>; Pharvaris Inc., Lexington, MA, United States.<br /><searchLink fieldCode="AU" term="%22Mendivil+J%22">Mendivil J</searchLink>; Pharvaris GmbH, Zug, Switzerland.
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