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Cross-cultural adaptation and pilot psychometric validation of a quality-of-life questionnaire for adults with Primary Ciliary Dyskinesia in Spain.

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Title: Cross-cultural adaptation and pilot psychometric validation of a quality-of-life questionnaire for adults with Primary Ciliary Dyskinesia in Spain.
Authors: Carretero-Vilarroig L; Cellular, Molecular and Genomics Biomedicine Group, La Fe Health Research Institute, Valencia, Spain; Biotechnology PhD Programme, Universidad Politécnica de Valencia, Spain. Electronic address: lidon_carretero@iislafe.es., Jaijo T; Cellular, Molecular and Genomics Biomedicine Group, La Fe Health Research Institute, Valencia, Spain; Unit of Genetics, La Fe University and Polytechnic Hospital, Valencia, Spain; Center for Biomedical Network Research on Rare Diseases (CIBERER), Instituto de Salud Carlos III, Madrid, Spain. Electronic address: jaijo_ter@gva.es., Lucas JS; Primary Ciliary Dyskinesia Centre, University of Southampton, Southampton, SO16 6YD, United Kingdom. Electronic address: jlucas1@soton.ac.uk., Behan L; School of Clinical and Experimental Medicine, Faculty of Medicine, University of Southampton, Southampton, United Kingdom. Electronic address: L.Behan@soton.ac.uk., Dasí F; Department of Physiology. University of Valencia, Valencian Community, Spain. Electronic address: Francisco.Dasi@uv.es., Sánchez-Thevenet P; GIRS Research Group, Department of Medicine and Surgery, School of Health Sciences, Universidad Cardenal Herrera-CEU, CEU Universities, Calle Grecia 31, Castellón de la Plana, 12006, Spain. Electronic address: paula.sanchez@uchceu.es., Armengot-Carceller M; Cellular, Molecular and Genomics Biomedicine Group, La Fe Health Research Institute, Valencia, Spain; ENT Department, La Fe University and Polytechnic Hospital, Valencia, Spain; Department of Surgery. University of Valencia, Valencian Community, Spain. Electronic address: miguel.armengot@uv.es., Reula A; GIRS Research Group, Department of Biomedical Sciences, School of Health Sciences, Universidad Cardenal Herrera-CEU, CEU Universities, Calle Grecia 31, Castellón de la Plana, 12006, Spain. Electronic address: ana.reula@uchceu.es.
Source: Respiratory medicine [Respir Med] 2026 Aug-Sep; Vol. 260, pp. 108932. Date of Electronic Publication: 2026 Jun 04.
Publication Type: Journal Article; Validation Study
Journal Info: Publisher: Elsevier Country of Publication: England NLM ID: 8908438 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1532-3064 (Electronic) Linking ISSN: 09546111 NLM ISO Abbreviation: Respir Med Subsets: MEDLINE
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  Data: <searchLink fieldCode="AU" term="%22Carretero-Vilarroig+L%22">Carretero-Vilarroig L</searchLink>; Cellular, Molecular and Genomics Biomedicine Group, La Fe Health Research Institute, Valencia, Spain; Biotechnology PhD Programme, Universidad Politécnica de Valencia, Spain. Electronic address: lidon_carretero@iislafe.es.<br /><searchLink fieldCode="AU" term="%22Jaijo+T%22">Jaijo T</searchLink>; Cellular, Molecular and Genomics Biomedicine Group, La Fe Health Research Institute, Valencia, Spain; Unit of Genetics, La Fe University and Polytechnic Hospital, Valencia, Spain; Center for Biomedical Network Research on Rare Diseases (CIBERER), Instituto de Salud Carlos III, Madrid, Spain. Electronic address: jaijo_ter@gva.es.<br /><searchLink fieldCode="AU" term="%22Lucas+JS%22">Lucas JS</searchLink>; Primary Ciliary Dyskinesia Centre, University of Southampton, Southampton, SO16 6YD, United Kingdom. Electronic address: jlucas1@soton.ac.uk.<br /><searchLink fieldCode="AU" term="%22Behan+L%22">Behan L</searchLink>; School of Clinical and Experimental Medicine, Faculty of Medicine, University of Southampton, Southampton, United Kingdom. Electronic address: L.Behan@soton.ac.uk.<br /><searchLink fieldCode="AU" term="%22Dasí+F%22">Dasí F</searchLink>; Department of Physiology. University of Valencia, Valencian Community, Spain. Electronic address: Francisco.Dasi@uv.es.<br /><searchLink fieldCode="AU" term="%22Sánchez-Thevenet+P%22">Sánchez-Thevenet P</searchLink>; GIRS Research Group, Department of Medicine and Surgery, School of Health Sciences, Universidad Cardenal Herrera-CEU, CEU Universities, Calle Grecia 31, Castellón de la Plana, 12006, Spain. Electronic address: paula.sanchez@uchceu.es.<br /><searchLink fieldCode="AU" term="%22Armengot-Carceller+M%22">Armengot-Carceller M</searchLink>; Cellular, Molecular and Genomics Biomedicine Group, La Fe Health Research Institute, Valencia, Spain; ENT Department, La Fe University and Polytechnic Hospital, Valencia, Spain; Department of Surgery. University of Valencia, Valencian Community, Spain. Electronic address: miguel.armengot@uv.es.<br /><searchLink fieldCode="AU" term="%22Reula+A%22">Reula A</searchLink>; GIRS Research Group, Department of Biomedical Sciences, School of Health Sciences, Universidad Cardenal Herrera-CEU, CEU Universities, Calle Grecia 31, Castellón de la Plana, 12006, Spain. Electronic address: ana.reula@uchceu.es.
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  Data: <searchLink fieldCode="JN" term="%228908438%22">Respiratory medicine</searchLink> [Respir Med] 2026 Aug-Sep; Vol. 260, pp. 108932. <i>Date of Electronic Publication: </i>2026 Jun 04.
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              Text: 2026 Aug-Sep
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