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Patient Perspectives and Demographic Factors Influencing Non-Participation in a Large Genomics Study.

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Title: Patient Perspectives and Demographic Factors Influencing Non-Participation in a Large Genomics Study.
Authors: Presutti RJ; Center for Individualized Medicine, Mayo Clinic, Jacksonville, FL.; Department of Family Medicine, College of Medicine, Mayo Clinic, Jacksonville, FL., Clapp AD; Department of Family Medicine, College of Medicine, Mayo Clinic, Jacksonville, FL., Vierkant RA; Department of Quantitative Health Sciences, College of Medicine, Mayo Clinic, Rochester, MN., Armasu SM; Department of Quantitative Health Sciences, College of Medicine, Mayo Clinic, Rochester, MN., Kahrizi MS; Center for Individualized Medicine, Mayo Clinic, Jacksonville, FL., Bublitz ML; Center for Individualized Medicine, Mayo Clinic, Rochester, MN., Houwink EJ; Department of Family Medicine, College of Medicine, Mayo Clinic, Rochester, MN., Samadder NJ; Division of Gastroenterology and Hepatology, College of Medicine, Mayo Clinic, Scottsdale, AZ., Sharp RR; Biomedical Ethics Research Program, College of Medicine, Mayo Clinic, Rochester, MN., Barnhorst M; Center for Individualized Medicine, Mayo Clinic, Rochester, MN.; Georgetown University School of Medicine, Washington, DC., Boeff DJ; Department of Family Medicine, College of Medicine, Mayo Clinic, Jacksonville, FL., Befus SM; Jacksonville University, Jacksonville, FL., Kruisselbrink T; Helix Inc, San Mateo, CA., Lazaridis KN; Center for Individualized Medicine, Mayo Clinic, Rochester, MN.; Division of Gastroenterology and Hepatology, College of Medicine, Mayo Clinic, Rochester, MN.
Source: Mayo Clinic proceedings. Innovations, quality & outcomes [Mayo Clin Proc Innov Qual Outcomes] 2026 Jun 01; Vol. 10 (4), pp. 100723. Date of Electronic Publication: 2026 Jun 01 (Print Publication: 2026).
Publication Type: Journal Article
Journal Info: Publisher: Elsevier Inc Country of Publication: Netherlands NLM ID: 101728275 Publication Model: eCollection Cited Medium: Internet ISSN: 2542-4548 (Electronic) Linking ISSN: 25424548 NLM ISO Abbreviation: Mayo Clin Proc Innov Qual Outcomes Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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  Data: Patient Perspectives and Demographic Factors Influencing Non-Participation in a Large Genomics Study.
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  Data: <searchLink fieldCode="AU" term="%22Presutti+RJ%22">Presutti RJ</searchLink>; Center for Individualized Medicine, Mayo Clinic, Jacksonville, FL.; Department of Family Medicine, College of Medicine, Mayo Clinic, Jacksonville, FL.<br /><searchLink fieldCode="AU" term="%22Clapp+AD%22">Clapp AD</searchLink>; Department of Family Medicine, College of Medicine, Mayo Clinic, Jacksonville, FL.<br /><searchLink fieldCode="AU" term="%22Vierkant+RA%22">Vierkant RA</searchLink>; Department of Quantitative Health Sciences, College of Medicine, Mayo Clinic, Rochester, MN.<br /><searchLink fieldCode="AU" term="%22Armasu+SM%22">Armasu SM</searchLink>; Department of Quantitative Health Sciences, College of Medicine, Mayo Clinic, Rochester, MN.<br /><searchLink fieldCode="AU" term="%22Kahrizi+MS%22">Kahrizi MS</searchLink>; Center for Individualized Medicine, Mayo Clinic, Jacksonville, FL.<br /><searchLink fieldCode="AU" term="%22Bublitz+ML%22">Bublitz ML</searchLink>; Center for Individualized Medicine, Mayo Clinic, Rochester, MN.<br /><searchLink fieldCode="AU" term="%22Houwink+EJ%22">Houwink EJ</searchLink>; Department of Family Medicine, College of Medicine, Mayo Clinic, Rochester, MN.<br /><searchLink fieldCode="AU" term="%22Samadder+NJ%22">Samadder NJ</searchLink>; Division of Gastroenterology and Hepatology, College of Medicine, Mayo Clinic, Scottsdale, AZ.<br /><searchLink fieldCode="AU" term="%22Sharp+RR%22">Sharp RR</searchLink>; Biomedical Ethics Research Program, College of Medicine, Mayo Clinic, Rochester, MN.<br /><searchLink fieldCode="AU" term="%22Barnhorst+M%22">Barnhorst M</searchLink>; Center for Individualized Medicine, Mayo Clinic, Rochester, MN.; Georgetown University School of Medicine, Washington, DC.<br /><searchLink fieldCode="AU" term="%22Boeff+DJ%22">Boeff DJ</searchLink>; Department of Family Medicine, College of Medicine, Mayo Clinic, Jacksonville, FL.<br /><searchLink fieldCode="AU" term="%22Befus+SM%22">Befus SM</searchLink>; Jacksonville University, Jacksonville, FL.<br /><searchLink fieldCode="AU" term="%22Kruisselbrink+T%22">Kruisselbrink T</searchLink>; Helix Inc, San Mateo, CA.<br /><searchLink fieldCode="AU" term="%22Lazaridis+KN%22">Lazaridis KN</searchLink>; Center for Individualized Medicine, Mayo Clinic, Rochester, MN.; Division of Gastroenterology and Hepatology, College of Medicine, Mayo Clinic, Rochester, MN.
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  Data: <searchLink fieldCode="JN" term="%22101728275%22">Mayo Clinic proceedings. Innovations, quality & outcomes</searchLink> [Mayo Clin Proc Innov Qual Outcomes] 2026 Jun 01; Vol. 10 (4), pp. 100723. <i>Date of Electronic Publication: </i>2026 Jun 01 (<i>Print Publication: </i>2026).
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Elsevier+Inc%22">Elsevier Inc </searchLink><i>Country of Publication: </i>Netherlands <i>NLM ID: </i>101728275 <i>Publication Model: </i>eCollection <i>Cited Medium: </i>Internet <i>ISSN: </i>2542-4548 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2225424548%22">25424548 </searchLink><i>NLM ISO Abbreviation: </i>Mayo Clin Proc Innov Qual Outcomes <i>Subsets: </i>PubMed not MEDLINE
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              Text: 2026 Jun 01
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