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Transition to adulthood in Duchenne Muscular Dystrophy: a systematic review with narrative synthesis on health systems, policies, and the role of health care providers.

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Title: Transition to adulthood in Duchenne Muscular Dystrophy: a systematic review with narrative synthesis on health systems, policies, and the role of health care providers.
Authors: Friedrich S; Department of Neuropediatrics and Muscle Disorders, Faculty of Medicine, Medical Center, University of Freiburg, Freiburg, Germany., Willems J; Section of Health Care Research and Rehabilitation Research, Institute of Medical Biometry and Statistics, Faculty of Medicine, Medical Center, University of Freiburg, Freiburg, Germany., Rodger S; Department of Neuropediatrics and Muscle Disorders, Faculty of Medicine, Medical Center, University of Freiburg, Freiburg, Germany., Petropoulos JA; McMaster University, Hamilton, ON, Canada., Ringer D; McMaster University, Hamilton, ON, Canada., Wang E; McMaster University, Hamilton, ON, Canada., Frei J; McMaster University, Hamilton, ON, Canada., Pozniak K; CanChild Center for Childhood-Onset Disability Research, McMaster University, Hamilton, ON, Canada., Swain A; CanChild Center for Childhood-Onset Disability Research, McMaster University, Hamilton, ON, Canada., Guastafierro E; Neurology, Public Health, and Disability Unit, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Marcassoli A; Neurology, Public Health, and Disability Unit, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Trucco G; Department of Pediatric Neurosciences, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Mazzilli A; Neurology, Public Health, and Disability Unit, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Reeskau G; German Association for Patients Affected by Muscle Diseases, DGM, Freiburg, Germany., De Angelis F; Parent Project aps, Rome, Italy., Osman H; Muscular Dystrophy Canada, Toronto, ON, Canada., Fournier A; Centre de Recherche du Center Hospitalier Universitaire Sainte-Justine, Montreal, QC, Canada., Gutierrez Rojas RG; Centre de Recherche du Center Hospitalier Universitaire Sainte-Justine, Montreal, QC, Canada., Gorter JW; CanChild Center for Childhood-Onset Disability Research, McMaster University, Hamilton, ON, Canada., Moroni I; Department of Pediatric Neurosciences, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Leonardi M; Neurology, Public Health, and Disability Unit, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Nardocci N; Department of Pediatric Neurosciences, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Kraus de Camargo O; CanChild Center for Childhood-Onset Disability Research, McMaster University, Hamilton, ON, Canada., Langer T; Department of Neuropediatrics and Muscle Disorders, Faculty of Medicine, Medical Center, University of Freiburg, Freiburg, Germany.; CanChild Center for Childhood-Onset Disability Research, McMaster University, Hamilton, ON, Canada.
Source: Frontiers in public health [Front Public Health] 2026 May 29; Vol. 14, pp. 1771855. Date of Electronic Publication: 2026 May 29 (Print Publication: 2026).
Publication Type: Journal Article; Systematic Review
Journal Info: Publisher: Frontiers Editorial Office Country of Publication: Switzerland NLM ID: 101616579 Publication Model: eCollection Cited Medium: Internet ISSN: 2296-2565 (Electronic) Linking ISSN: 22962565 NLM ISO Abbreviation: Front Public Health Subsets: MEDLINE
Database: MEDLINE Ultimate
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