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Health-related quality of life experiences in children with bladder exstrophy-epispadias complex: a Swedish focus group study.

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Title: Health-related quality of life experiences in children with bladder exstrophy-epispadias complex: a Swedish focus group study.
Authors: Svenninghed U; Department of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden. ulrika.svenninghed@gu.se.; Department of Pediatric Surgery, the Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden. ulrika.svenninghed@gu.se., Öst E; Department of Pediatric Surgery, Astrid Lindgren's Children's Hospital, Karolinska University Hospital, Stockholm, Sweden.; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden., Holmdahl G; Department of Pediatric Surgery, Astrid Lindgren's Children's Hospital, Karolinska University Hospital, Stockholm, Sweden.; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden., Örtqvist L; Department of Pediatric Surgery, Astrid Lindgren's Children's Hospital, Karolinska University Hospital, Stockholm, Sweden.; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden., Boije M; Department of Pediatric Surgery, Astrid Lindgren's Children's Hospital, Karolinska University Hospital, Stockholm, Sweden.; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden., Sjöström S; Department of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.; Department of Pediatric Surgery, the Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden., Blom MD; Department of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.; Department of Pediatric Surgery, the Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.
Source: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2026 Jun 19; Vol. 35 (8). Date of Electronic Publication: 2026 Jun 19.
Publication Type: Journal Article
Journal Info: Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Health-related quality of life experiences in children with bladder exstrophy-epispadias complex: a Swedish focus group study.
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  Data: <searchLink fieldCode="AU" term="%22Svenninghed+U%22">Svenninghed U</searchLink>; Department of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden. ulrika.svenninghed@gu.se.; Department of Pediatric Surgery, the Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden. ulrika.svenninghed@gu.se.<br /><searchLink fieldCode="AU" term="%22Öst+E%22">Öst E</searchLink>; Department of Pediatric Surgery, Astrid Lindgren's Children's Hospital, Karolinska University Hospital, Stockholm, Sweden.; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.<br /><searchLink fieldCode="AU" term="%22Holmdahl+G%22">Holmdahl G</searchLink>; Department of Pediatric Surgery, Astrid Lindgren's Children's Hospital, Karolinska University Hospital, Stockholm, Sweden.; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.<br /><searchLink fieldCode="AU" term="%22Örtqvist+L%22">Örtqvist L</searchLink>; Department of Pediatric Surgery, Astrid Lindgren's Children's Hospital, Karolinska University Hospital, Stockholm, Sweden.; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.<br /><searchLink fieldCode="AU" term="%22Boije+M%22">Boije M</searchLink>; Department of Pediatric Surgery, Astrid Lindgren's Children's Hospital, Karolinska University Hospital, Stockholm, Sweden.; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.<br /><searchLink fieldCode="AU" term="%22Sjöström+S%22">Sjöström S</searchLink>; Department of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.; Department of Pediatric Surgery, the Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.<br /><searchLink fieldCode="AU" term="%22Blom+MD%22">Blom MD</searchLink>; Department of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.; Department of Pediatric Surgery, the Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.
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  Data: <searchLink fieldCode="JN" term="%229210257%22">Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation</searchLink> [Qual Life Res] 2026 Jun 19; Vol. 35 (8). <i>Date of Electronic Publication: </i>2026 Jun 19.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Springer+Netherlands%22">Springer Netherlands </searchLink><i>Country of Publication: </i>Netherlands <i>NLM ID: </i>9210257 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1573-2649 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2209629343%22">09629343 </searchLink><i>NLM ISO Abbreviation: </i>Qual Life Res <i>Subsets: </i>MEDLINE
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        Value: 10.1007/s11136-026-04316-7
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        Text: English
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              Text: 2026 Jun 19
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