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A Cross-sectional Study on Quality of Life in EB: Validation of the Italian QOLEB and Assessment in Italian Patients.

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Title: A Cross-sectional Study on Quality of Life in EB: Validation of the Italian QOLEB and Assessment in Italian Patients.
Authors: Zambruno G; Dermatology Unit and Genodermatosis Research Unit, Translational Pediatrics and Clinical Genetics Research Division, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy., Samela T; Laboratory of Clinical Epidemiology, IDI-IRCCS, Rome, Italy., Diociaiuti A; Dermatology Unit and Genodermatosis Research Unit, Translational Pediatrics and Clinical Genetics Research Division, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy., Salamon G; HEALTH Lab, Competence Center for Medical and Health Psychology, Faculty of Psychology, Sigmund Freud University Vienna, Vienna, Austria., Strobl S; HEALTH Lab, Competence Center for Medical and Health Psychology, Faculty of Psychology, Sigmund Freud University Vienna, Vienna, Austria; Department of Dermatology, Medical Centre, Faculty of Medicine, University of Freiburg, Freiburg, Germany., Pilo C; DEBRA Italy ETS, Milan, Italy., Abeni D; Laboratory of Clinical Epidemiology, IDI-IRCCS, Rome, Italy., Linertová R; Servicio de Evaluación del Servicio Canario de la Salud (SESCS), Instituto de Investigación Sanitaria de Canarias (IISC), Santa Cruz de Tenerife, Spain., Murrell DF; Department of Dermatology, St George Hospital, Sydney and Faculty of Medicine, University of NSW, Sydney, Australia., El Hachem M; Dermatology Unit and Genodermatosis Research Unit, Translational Pediatrics and Clinical Genetics Research Division, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy. may.elhachem@opbg.net.
Corporate Authors: BUR-EB Study Group
Source: Acta dermato-venereologica [Acta Derm Venereol] 2026 Jun 29; Vol. 106. Date of Electronic Publication: 2026 Jun 29.
Publication Type: Journal Article; Validation Study
Journal Info: Publisher: MJS Publishing Country of Publication: Sweden NLM ID: 0370310 Publication Model: Electronic Cited Medium: Internet ISSN: 1651-2057 (Electronic) Linking ISSN: 00015555 NLM ISO Abbreviation: Acta Derm Venereol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: A Cross-sectional Study on Quality of Life in EB: Validation of the Italian QOLEB and Assessment in Italian Patients.
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  Data: <searchLink fieldCode="AU" term="%22Zambruno+G%22">Zambruno G</searchLink>; Dermatology Unit and Genodermatosis Research Unit, Translational Pediatrics and Clinical Genetics Research Division, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Samela+T%22">Samela T</searchLink>; Laboratory of Clinical Epidemiology, IDI-IRCCS, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Diociaiuti+A%22">Diociaiuti A</searchLink>; Dermatology Unit and Genodermatosis Research Unit, Translational Pediatrics and Clinical Genetics Research Division, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Salamon+G%22">Salamon G</searchLink>; HEALTH Lab, Competence Center for Medical and Health Psychology, Faculty of Psychology, Sigmund Freud University Vienna, Vienna, Austria.<br /><searchLink fieldCode="AU" term="%22Strobl+S%22">Strobl S</searchLink>; HEALTH Lab, Competence Center for Medical and Health Psychology, Faculty of Psychology, Sigmund Freud University Vienna, Vienna, Austria; Department of Dermatology, Medical Centre, Faculty of Medicine, University of Freiburg, Freiburg, Germany.<br /><searchLink fieldCode="AU" term="%22Pilo+C%22">Pilo C</searchLink>; DEBRA Italy ETS, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Abeni+D%22">Abeni D</searchLink>; Laboratory of Clinical Epidemiology, IDI-IRCCS, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Linertová+R%22">Linertová R</searchLink>; Servicio de Evaluación del Servicio Canario de la Salud (SESCS), Instituto de Investigación Sanitaria de Canarias (IISC), Santa Cruz de Tenerife, Spain.<br /><searchLink fieldCode="AU" term="%22Murrell+DF%22">Murrell DF</searchLink>; Department of Dermatology, St George Hospital, Sydney and Faculty of Medicine, University of NSW, Sydney, Australia.<br /><searchLink fieldCode="AU" term="%22El+Hachem+M%22">El Hachem M</searchLink>; Dermatology Unit and Genodermatosis Research Unit, Translational Pediatrics and Clinical Genetics Research Division, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy. may.elhachem@opbg.net.
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  Data: <searchLink fieldCode="CA" term="%22BUR-EB+Study+Group%22">BUR-EB Study Group</searchLink>
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  Data: <searchLink fieldCode="JN" term="%220370310%22">Acta dermato-venereologica</searchLink> [Acta Derm Venereol] 2026 Jun 29; Vol. 106. <i>Date of Electronic Publication: </i>2026 Jun 29.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22MJS+Publishing%22">MJS Publishing </searchLink><i>Country of Publication: </i>Sweden <i>NLM ID: </i>0370310 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1651-2057 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2200015555%22">00015555 </searchLink><i>NLM ISO Abbreviation: </i>Acta Derm Venereol <i>Subsets: </i>MEDLINE
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              Text: 2026 Jun 29
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