Parent and professional experiences of a clinical trial of prenatal and postnatal stem cell therapy for severe osteogenesis imperfecta.

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Title: Parent and professional experiences of a clinical trial of prenatal and postnatal stem cell therapy for severe osteogenesis imperfecta.
Authors: Behera B; BSc Paediatrics and Child Health, UCL Great Ormond Street Institute of Child Health, London, UK., Ingvoldstad Malmgren C; Center for Research Ethics and Bioethics, Uppsala University, Uppsala, Sweden.; Center for Fetal Medicine, Karolinska University Hospital, Stockholm, Sweden.; Department of Molecular Medicine and Surgery, Karolinska Institutet, Stockholm, Sweden., Åström E; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.; Astrid Lindgren Children's Hospital, Karolinska University Hospital, Stockholm, Sweden., Chitty LS; North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK., Crowe B; Department of Neurosciences, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK., David AL; Elizabeth Garrett Anderson Institute for Women's Health, University College London, London, UK.; NIHR University College London Hospitals Biomedical Research Centre, London, UK., DeVile C; Department of Neurosciences, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK., Semler O; Department of Pediatrics, University Hospital Cologne, Koln, Nordrhein-Westfalen, Germany., Westgren M; Department of Clinical Science, Intervention and Technology, Karolinska Institutet, Stockholm, Sweden., Götherström C; Department of Clinical Science, Intervention and Technology, Karolinska Institutet, Stockholm, Sweden.; Department of Gynecology and Reproductive Medicine, Karolinska University Hospital, Stockholm, Sweden., Hill M; North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK. Melissa.hill@ucl.ac.uk.; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK. Melissa.hill@ucl.ac.uk.
Source: European journal of human genetics : EJHG [Eur J Hum Genet] 2026 Jun 30. Date of Electronic Publication: 2026 Jun 30.
Publication Type: Journal Article
Journal Info: Publisher: Nature Publishing Group Country of Publication: England NLM ID: 9302235 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1476-5438 (Electronic) Linking ISSN: 10184813 NLM ISO Abbreviation: Eur J Hum Genet Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Parent and professional experiences of a clinical trial of prenatal and postnatal stem cell therapy for severe osteogenesis imperfecta.
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  Data: <searchLink fieldCode="AU" term="%22Behera+B%22">Behera B</searchLink>; BSc Paediatrics and Child Health, UCL Great Ormond Street Institute of Child Health, London, UK.<br /><searchLink fieldCode="AU" term="%22Ingvoldstad+Malmgren+C%22">Ingvoldstad Malmgren C</searchLink>; Center for Research Ethics and Bioethics, Uppsala University, Uppsala, Sweden.; Center for Fetal Medicine, Karolinska University Hospital, Stockholm, Sweden.; Department of Molecular Medicine and Surgery, Karolinska Institutet, Stockholm, Sweden.<br /><searchLink fieldCode="AU" term="%22Åström+E%22">Åström E</searchLink>; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.; Astrid Lindgren Children's Hospital, Karolinska University Hospital, Stockholm, Sweden.<br /><searchLink fieldCode="AU" term="%22Chitty+LS%22">Chitty LS</searchLink>; North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK.<br /><searchLink fieldCode="AU" term="%22Crowe+B%22">Crowe B</searchLink>; Department of Neurosciences, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22David+AL%22">David AL</searchLink>; Elizabeth Garrett Anderson Institute for Women's Health, University College London, London, UK.; NIHR University College London Hospitals Biomedical Research Centre, London, UK.<br /><searchLink fieldCode="AU" term="%22DeVile+C%22">DeVile C</searchLink>; Department of Neurosciences, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22Semler+O%22">Semler O</searchLink>; Department of Pediatrics, University Hospital Cologne, Koln, Nordrhein-Westfalen, Germany.<br /><searchLink fieldCode="AU" term="%22Westgren+M%22">Westgren M</searchLink>; Department of Clinical Science, Intervention and Technology, Karolinska Institutet, Stockholm, Sweden.<br /><searchLink fieldCode="AU" term="%22Götherström+C%22">Götherström C</searchLink>; Department of Clinical Science, Intervention and Technology, Karolinska Institutet, Stockholm, Sweden.; Department of Gynecology and Reproductive Medicine, Karolinska University Hospital, Stockholm, Sweden.<br /><searchLink fieldCode="AU" term="%22Hill+M%22">Hill M</searchLink>; North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK. Melissa.hill@ucl.ac.uk.; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK. Melissa.hill@ucl.ac.uk.
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  Data: <searchLink fieldCode="JN" term="%229302235%22">European journal of human genetics : EJHG</searchLink> [Eur J Hum Genet] 2026 Jun 30. <i>Date of Electronic Publication: </i>2026 Jun 30.
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        Value: 10.1038/s41431-026-02164-0
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              Text: 2026 Jun 30
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