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Development and validation of a relapsing polychondritis disease-specific quality of life instrument (ERN ReCONNET RP-QoL).

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Title: Development and validation of a relapsing polychondritis disease-specific quality of life instrument (ERN ReCONNET RP-QoL).
Authors: Arnaud L; Department of Rheumatology, National Reference Center for Autoimmune diseases (RESO), INSERM UMR-S 1109, Hôpitaux Universitaires de Strasbourg, Strasbourg, France., Sander O; Department for Rheumatology and Hiller Research Centre for Rheumatology, University Hospital, Düsseldorf, Germany., Damian L; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania., Pamfil C; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania., Crisafulli F; Department of Clinical and Experimental Sciences, Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, University of Brescia, Brescia, Italy., Faria R; School of Medicine and Biomedical Sciences, Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal.; Unit for Multidisciplinary Research in Biomedicine, University of Porto, Porto, Portugal.; ITR-Laboratory for Integrative and Translational Research in Population Health, Portugal., Silva-Ribeiro S; Porto, Portugal., Piette JC; Service de Médecine Interne 2, Institut E3M, Sorbonne Université, AP-HP, Groupement Hospitalier Pitié-Salpêtrière, Centre national de référence du lupus systémique, du syndrome des antiphospholipides et autres maladies auto-immunes, Paris, France., Mathian A; Service de Médecine Interne 2, Centre de Référence des maladies auto-immunes et auto-inflammatoires systémiques rares de l'adulte d'Ile-de-France, Centre et Martinique, Institut E3M, Inserm UMRS, Centre d'Immunologie et des Maladies Infectieuses (CIMI-Paris), Sorbonne Université, Assistance Publique-Hôpitaux de Paris (APHP), Groupement Hospitalier Pitié-Salpêtrière (GHPS), Paris, France., Ferrada M; Department of Medicine, Division of Immunology & Rheumatology, University of Maryland, Baltimore, USA., Shimizu J; Department of Immunology and Parasitology, St. Marianna University of School of Medicine, Kawasaki, Japan., Sharma A; Post Graduate Institute of Medical Education and Research Department of Internal Medicine, Chandigarh, India., Kawka L; Department of Rheumatology, National Reference Center for Autoimmune diseases (RESO), INSERM UMR-S 1109, Hôpitaux Universitaires de Strasbourg, Strasbourg, France., Sztejkowski C; Department of Rheumatology, National Reference Center for Autoimmune diseases (RESO), INSERM UMR-S 1109, Hôpitaux Universitaires de Strasbourg, Strasbourg, France., Dusing C; Department of Rheumatology, University Hospital Düsseldorf, Medical Faculty of Heinrich-Heine University, Düsseldorf, Germany., Rose T; Department of Rheumatology and Clinical Immunology, Charité-Universitätsmedizin Berlin, Berlin, Germany., Lamas A; School of Medicine and Biomedical Sciences, Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal., Vasconcelos C; School of Medicine and Biomedical Sciences, Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal., Semeraro P; Department of Clinical and Experimental Sciences, Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, University of Brescia, Brescia, Italy., Pozzi AC; Department of Clinical and Experimental Sciences, Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, University of Brescia, Brescia, Italy., Neagu T; Rheumatology Department, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj Napoca, Romania., Resteu M; Rheumatology Department, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj Napoca, Romania., Armengou A; Department of Internal Medicine, Hospital Universitari Dr. Josep Trueta, Girona, Spain., Perez Jaen ADC; Department of Internal Medicine, Hospital Universitari Dr. Josep Trueta, Girona, Spain., Policarpo Torres G; Department of Internal Medicine, Hospital Universitari Dr. Josep Trueta, Girona, Spain., Devilliers H; Internal Medicine and Systemic Diseases Unit, University Hospital Centre Dijon, Dijon, France., Matthews L; Relapsing Polychondritis Awareness & Support (relapsingpolychondritis.org), Worcester, United Kingdom., Bucsa C; ASPOR Association of Romanian Relapsing Polychondritis Patients & Iuliu Hațieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania., Rednic S; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania., Mertz P; Sorbonne Université, Internal Medicine Department, DMU 3ID, FHU PACEMM, Hôpital Tenon, Assistance publique-hôpitaux de Paris (AP-HP), Paris, France.; Pediatric Department, Versailles Hospital, Le Chesnay, France.
Source: Rheumatology (Oxford, England) [Rheumatology (Oxford)] 2026 Jun 30; Vol. 65 (7).
Publication Type: Journal Article; Validation Study
Journal Info: Publisher: Oxford University Press Country of Publication: England NLM ID: 100883501 Publication Model: Print Cited Medium: Internet ISSN: 1462-0332 (Electronic) Linking ISSN: 14620324 NLM ISO Abbreviation: Rheumatology (Oxford) Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Development and validation of a relapsing polychondritis disease-specific quality of life instrument (ERN ReCONNET RP-QoL).
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  Data: <searchLink fieldCode="AU" term="%22Arnaud+L%22">Arnaud L</searchLink>; Department of Rheumatology, National Reference Center for Autoimmune diseases (RESO), INSERM UMR-S 1109, Hôpitaux Universitaires de Strasbourg, Strasbourg, France.<br /><searchLink fieldCode="AU" term="%22Sander+O%22">Sander O</searchLink>; Department for Rheumatology and Hiller Research Centre for Rheumatology, University Hospital, Düsseldorf, Germany.<br /><searchLink fieldCode="AU" term="%22Damian+L%22">Damian L</searchLink>; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania.<br /><searchLink fieldCode="AU" term="%22Pamfil+C%22">Pamfil C</searchLink>; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania.<br /><searchLink fieldCode="AU" term="%22Crisafulli+F%22">Crisafulli F</searchLink>; Department of Clinical and Experimental Sciences, Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, University of Brescia, Brescia, Italy.<br /><searchLink fieldCode="AU" term="%22Faria+R%22">Faria R</searchLink>; School of Medicine and Biomedical Sciences, Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal.; Unit for Multidisciplinary Research in Biomedicine, University of Porto, Porto, Portugal.; ITR-Laboratory for Integrative and Translational Research in Population Health, Portugal.<br /><searchLink fieldCode="AU" term="%22Silva-Ribeiro+S%22">Silva-Ribeiro S</searchLink>; Porto, Portugal.<br /><searchLink fieldCode="AU" term="%22Piette+JC%22">Piette JC</searchLink>; Service de Médecine Interne 2, Institut E3M, Sorbonne Université, AP-HP, Groupement Hospitalier Pitié-Salpêtrière, Centre national de référence du lupus systémique, du syndrome des antiphospholipides et autres maladies auto-immunes, Paris, France.<br /><searchLink fieldCode="AU" term="%22Mathian+A%22">Mathian A</searchLink>; Service de Médecine Interne 2, Centre de Référence des maladies auto-immunes et auto-inflammatoires systémiques rares de l'adulte d'Ile-de-France, Centre et Martinique, Institut E3M, Inserm UMRS, Centre d'Immunologie et des Maladies Infectieuses (CIMI-Paris), Sorbonne Université, Assistance Publique-Hôpitaux de Paris (APHP), Groupement Hospitalier Pitié-Salpêtrière (GHPS), Paris, France.<br /><searchLink fieldCode="AU" term="%22Ferrada+M%22">Ferrada M</searchLink>; Department of Medicine, Division of Immunology & Rheumatology, University of Maryland, Baltimore, USA.<br /><searchLink fieldCode="AU" term="%22Shimizu+J%22">Shimizu J</searchLink>; Department of Immunology and Parasitology, St. Marianna University of School of Medicine, Kawasaki, Japan.<br /><searchLink fieldCode="AU" term="%22Sharma+A%22">Sharma A</searchLink>; Post Graduate Institute of Medical Education and Research Department of Internal Medicine, Chandigarh, India.<br /><searchLink fieldCode="AU" term="%22Kawka+L%22">Kawka L</searchLink>; Department of Rheumatology, National Reference Center for Autoimmune diseases (RESO), INSERM UMR-S 1109, Hôpitaux Universitaires de Strasbourg, Strasbourg, France.<br /><searchLink fieldCode="AU" term="%22Sztejkowski+C%22">Sztejkowski C</searchLink>; Department of Rheumatology, National Reference Center for Autoimmune diseases (RESO), INSERM UMR-S 1109, Hôpitaux Universitaires de Strasbourg, Strasbourg, France.<br /><searchLink fieldCode="AU" term="%22Dusing+C%22">Dusing C</searchLink>; Department of Rheumatology, University Hospital Düsseldorf, Medical Faculty of Heinrich-Heine University, Düsseldorf, Germany.<br /><searchLink fieldCode="AU" term="%22Rose+T%22">Rose T</searchLink>; Department of Rheumatology and Clinical Immunology, Charité-Universitätsmedizin Berlin, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Lamas+A%22">Lamas A</searchLink>; School of Medicine and Biomedical Sciences, Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal.<br /><searchLink fieldCode="AU" term="%22Vasconcelos+C%22">Vasconcelos C</searchLink>; School of Medicine and Biomedical Sciences, Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal.<br /><searchLink fieldCode="AU" term="%22Semeraro+P%22">Semeraro P</searchLink>; Department of Clinical and Experimental Sciences, Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, University of Brescia, Brescia, Italy.<br /><searchLink fieldCode="AU" term="%22Pozzi+AC%22">Pozzi AC</searchLink>; Department of Clinical and Experimental Sciences, Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, University of Brescia, Brescia, Italy.<br /><searchLink fieldCode="AU" term="%22Neagu+T%22">Neagu T</searchLink>; Rheumatology Department, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj Napoca, Romania.<br /><searchLink fieldCode="AU" term="%22Resteu+M%22">Resteu M</searchLink>; Rheumatology Department, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj Napoca, Romania.<br /><searchLink fieldCode="AU" term="%22Armengou+A%22">Armengou A</searchLink>; Department of Internal Medicine, Hospital Universitari Dr. Josep Trueta, Girona, Spain.<br /><searchLink fieldCode="AU" term="%22Perez+Jaen+ADC%22">Perez Jaen ADC</searchLink>; Department of Internal Medicine, Hospital Universitari Dr. Josep Trueta, Girona, Spain.<br /><searchLink fieldCode="AU" term="%22Policarpo+Torres+G%22">Policarpo Torres G</searchLink>; Department of Internal Medicine, Hospital Universitari Dr. Josep Trueta, Girona, Spain.<br /><searchLink fieldCode="AU" term="%22Devilliers+H%22">Devilliers H</searchLink>; Internal Medicine and Systemic Diseases Unit, University Hospital Centre Dijon, Dijon, France.<br /><searchLink fieldCode="AU" term="%22Matthews+L%22">Matthews L</searchLink>; Relapsing Polychondritis Awareness & Support (relapsingpolychondritis.org), Worcester, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Bucsa+C%22">Bucsa C</searchLink>; ASPOR Association of Romanian Relapsing Polychondritis Patients & Iuliu Hațieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania.<br /><searchLink fieldCode="AU" term="%22Rednic+S%22">Rednic S</searchLink>; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania.<br /><searchLink fieldCode="AU" term="%22Mertz+P%22">Mertz P</searchLink>; Sorbonne Université, Internal Medicine Department, DMU 3ID, FHU PACEMM, Hôpital Tenon, Assistance publique-hôpitaux de Paris (AP-HP), Paris, France.; Pediatric Department, Versailles Hospital, Le Chesnay, France.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Oxford+University+Press%22">Oxford University Press </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>100883501 <i>Publication Model: </i>Print <i>Cited Medium: </i>Internet <i>ISSN: </i>1462-0332 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2214620324%22">14620324 </searchLink><i>NLM ISO Abbreviation: </i>Rheumatology (Oxford) <i>Subsets: </i>MEDLINE
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