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Perceptions of research participation among underrepresented groups: Insights using freelisting methodology.

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Title: Perceptions of research participation among underrepresented groups: Insights using freelisting methodology.
Authors: Klaiman T; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America.; Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, United States of America.; Center for Health Incentives and Behavioral Economics (CHIBE), Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America., Silvestri JA; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America., Ferrante EB; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America., Sheu D; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America., Lieberman A; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America., Dress E; Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America., Ogunniyi MO; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Department of Medicine, Division of Cardiology, Emory University School of Medicine, Atlanta, Georgia, United States of America.; Grady Health System, Atlanta, Georgia, United States of America., Dickert NW; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Department of Medicine, Division of Cardiology, Emory University School of Medicine, Atlanta, Georgia, United States of America.; Department of Epidemiology, Emory University Rollins School of Public Health, Atlanta, Georgia, United States of America., Lane-Fall MB; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Department of Anesthesiology, Columbia University Vagelos College of Physicians and Surgeons, New York, New York, United States of America., Frasso R; Jefferson College of Population Health, Thomas Jefferson University, Philadelphia, Pennsylvania, United States of America.; Asano-Gonnella Center for Research in Medical Education and Health Care, Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania, United States of America., Kohn R; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America.; Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America.; Leonard Davis Institute of Health Economics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America.
Source: PloS one [PLoS One] 2026 Jul 01; Vol. 21 (7), pp. e0351215. Date of Electronic Publication: 2026 Jul 01 (Print Publication: 2026).
Publication Type: Journal Article
Journal Info: Publisher: Public Library of Science Country of Publication: United States NLM ID: 101285081 Publication Model: eCollection Cited Medium: Internet ISSN: 1932-6203 (Electronic) Linking ISSN: 19326203 NLM ISO Abbreviation: PLoS One Subsets: MEDLINE
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Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America.<br /><searchLink fieldCode="AU" term="%22Ferrante+EB%22">Ferrante EB</searchLink>; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America.<br /><searchLink fieldCode="AU" term="%22Sheu+D%22">Sheu D</searchLink>; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America.<br /><searchLink fieldCode="AU" term="%22Lieberman+A%22">Lieberman A</searchLink>; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America.<br /><searchLink fieldCode="AU" term="%22Dress+E%22">Dress E</searchLink>; Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America.<br /><searchLink fieldCode="AU" term="%22Ogunniyi+MO%22">Ogunniyi MO</searchLink>; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Department of Medicine, Division of Cardiology, Emory University School of Medicine, Atlanta, Georgia, United States of America.; Grady Health System, Atlanta, Georgia, United States of America.<br /><searchLink fieldCode="AU" term="%22Dickert+NW%22">Dickert NW</searchLink>; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Department of Medicine, Division of Cardiology, Emory University School of Medicine, Atlanta, Georgia, United States of America.; Department of Epidemiology, Emory University Rollins School of Public Health, Atlanta, Georgia, United States of America.<br /><searchLink fieldCode="AU" term="%22Lane-Fall+MB%22">Lane-Fall MB</searchLink>; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Department of Anesthesiology, Columbia University Vagelos College of Physicians and Surgeons, New York, New York, United States of America.<br /><searchLink fieldCode="AU" term="%22Frasso+R%22">Frasso R</searchLink>; Jefferson College of Population Health, Thomas Jefferson University, Philadelphia, Pennsylvania, United States of America.; Asano-Gonnella Center for Research in Medical Education and Health Care, Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania, United States of America.<br /><searchLink fieldCode="AU" term="%22Kohn+R%22">Kohn R</searchLink>; Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America.; Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America.; Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America.; Leonard Davis Institute of Health Economics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America.
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