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Geographical, institutional and workplace variability in genetic evaluation, screening practices, multidisciplinary care, and lung transplantation management for familial interstitial lung disease.

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Title: Geographical, institutional and workplace variability in genetic evaluation, screening practices, multidisciplinary care, and lung transplantation management for familial interstitial lung disease.
Authors: Moen EV; Medical Diagnostic Center, University Clinic for Innovative Patient Pathways, Regional Hospital Central Jutland, Viborg, Denmark. emivil@rm.dk.; Centre for Rare Lung Diseases, Department of Respiratory Diseases and Allergy, Aarhus University Hospital, Aarhus, Denmark. emivil@rm.dk., Prior T; Department of Respiratory Diseases, Aalborg University Hospital, Aalborg, Denmark.; Department of Clinical Medicine, Aalborg University, Aalborg, Denmark., Kreuter M; Mainz Center for Pulmonary Medicine, Department of Pneumology, Department of Pulmonary, Critical Care & Sleep Medicine, Mainz University Medical Center, Marienhaus Clinic Mainz, Mainz, Germany., Wuyts WA; Unit for interstitial lung diseases, Dept Respiratory Medicine, University Hospitals Leuven, Leuven, Belgium., Molina-Molina M; ILD Unit, Respiratory Department, University Hospital of Bellvitge. IDIBELL. CIBERES, L'Hospitalet de Llobregat, Barcelona, Spain., Wijsenbeek M; Centre for interstitial lung diseases and sarcoidosis, department of respiratory medicine, Erasmus University Medical Centre, Rotterdam, The Netherlands., Møller J; Centre for Rare Lung Diseases, Department of Respiratory Diseases and Allergy, Aarhus University Hospital, Aarhus, Denmark.; Department of Clinical Medicine, Aarhus University, Aarhus, Denmark., Kronborg-White S; Centre for Rare Lung Diseases, Department of Respiratory Diseases and Allergy, Aarhus University Hospital, Aarhus, Denmark.; Department of Clinical Medicine, Aarhus University, Aarhus, Denmark., Østergård NM; Centre for Rare Lung Diseases, Department of Respiratory Diseases and Allergy, Aarhus University Hospital, Aarhus, Denmark., Morais A; Pulmonology Department, Portugal Faculty of Medicine, Centro Hospitalar São João, University of Porto, Porto, Portugal.; Instituto de Biologia Molecular e Celular, Instituto de Investigação e Inovação em Saúde, University of Porto, Porto, Portugal., Tzouvelekis A; Department of Respiratory Medicine, University of Patras, Patras, Greece., Ryerson CJ; Department of Medicine and Centre for Heart Lung Innovation, University of British Columbia, Vancouver, BC, Canada., Caro F; ILD Unit, 'Maria Ferrer' Hospital, Buenos Aires City, Argentina., Buendia I; Laboratory of Translational Research in Aging and Fibrosis Lung Disease, Instituto Nacional de Enfermedades Respiratorias Ismael Cosio Villegas, Mexico City, Mexico., Magnusson J; Departement of Respiratory Medicine, Institute of Medicine, university of Gothenburg, Gothenburg, Sweden., Lee JS; Department of Medicine, University of Colorado Denver - Anschutz Medical Campus, Aurora, CO, USA., Morisett J; Département de Médecine, Centre Hospitalier de l'Université de Montréal, Montréal, Québec, Canada., Oldham JM; Division of Pulmonary and Critical Care Medicine, University of Michigan, Ann Arbor, USA., Troy LK; Department of Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, Sydney, Australia., Funke-Chambour M; Division of Pulmonology, Department of Medicine, Lausanne University Hospital (CHUV), University of Lausanne, Lausanne, Switzerland., Alberti ML; ILD Unit, 'Maria Ferrer' Hospital, Buenos Aires, Argentina., Borie R; Service de Pneumologie A Hôpital Bichat, APHP, Université Paris Cité, Inserm, PHERE, Paris, 75018, France., Walsh SLF; National Heart and Lung Institute, Imperial College, London, UK., Rajan S; Department of Chest Medicine, Interstitial Lung Disease, Bombay Hospital Institute of Medical Sciences, and Bhatia Hospital, Mumbai, India., Kondoh Y; Department of Respiratory Medicine and Allergy, Tosei General Hospital, Seto, Japan., Khor YH; Respiratory Research@Alfred, School of Translational Medicine, Monash University, Melbourne, VIC, Australia.; Department of Respiratory and Sleep Medicine, Austin Health, Heidelberg, VIC, Australia.; Institute for Breathing and Sleep, Heidelberg, VIC, Australia., Bendstrup E; Centre for Rare Lung Diseases, Department of Respiratory Diseases and Allergy, Aarhus University Hospital, Aarhus, Denmark.; Department of Clinical Medicine, Aarhus University, Aarhus, Denmark.
Source: BMC pulmonary medicine [BMC Pulm Med] 2026 Jul 07. Date of Electronic Publication: 2026 Jul 07.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 100968563 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1471-2466 (Electronic) Linking ISSN: 14712466 NLM ISO Abbreviation: BMC Pulm Med Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Geographical, institutional and workplace variability in genetic evaluation, screening practices, multidisciplinary care, and lung transplantation management for familial interstitial lung disease.
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  Data: <searchLink fieldCode="AU" term="%22Moen+EV%22">Moen EV</searchLink>; Medical Diagnostic Center, University Clinic for Innovative Patient Pathways, Regional Hospital Central Jutland, Viborg, Denmark. emivil@rm.dk.; Centre for Rare Lung Diseases, Department of Respiratory Diseases and Allergy, Aarhus University Hospital, Aarhus, Denmark. emivil@rm.dk.<br /><searchLink fieldCode="AU" term="%22Prior+T%22">Prior T</searchLink>; Department of Respiratory Diseases, Aalborg University Hospital, Aalborg, Denmark.; Department of Clinical Medicine, Aalborg University, Aalborg, Denmark.<br /><searchLink fieldCode="AU" term="%22Kreuter+M%22">Kreuter M</searchLink>; Mainz Center for Pulmonary Medicine, Department of Pneumology, Department of Pulmonary, Critical Care & Sleep Medicine, Mainz University Medical Center, Marienhaus Clinic Mainz, Mainz, Germany.<br /><searchLink fieldCode="AU" term="%22Wuyts+WA%22">Wuyts WA</searchLink>; Unit for interstitial lung diseases, Dept Respiratory Medicine, University Hospitals Leuven, Leuven, Belgium.<br /><searchLink fieldCode="AU" term="%22Molina-Molina+M%22">Molina-Molina M</searchLink>; ILD Unit, Respiratory Department, University Hospital of Bellvitge. IDIBELL. CIBERES, L'Hospitalet de Llobregat, Barcelona, Spain.<br /><searchLink fieldCode="AU" term="%22Wijsenbeek+M%22">Wijsenbeek M</searchLink>; Centre for interstitial lung diseases and sarcoidosis, department of respiratory medicine, Erasmus University Medical Centre, Rotterdam, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Møller+J%22">Møller J</searchLink>; Centre for Rare Lung Diseases, Department of Respiratory Diseases and Allergy, Aarhus University Hospital, Aarhus, Denmark.; Department of Clinical Medicine, Aarhus University, Aarhus, Denmark.<br /><searchLink fieldCode="AU" term="%22Kronborg-White+S%22">Kronborg-White S</searchLink>; Centre for Rare Lung Diseases, Department of Respiratory Diseases and Allergy, Aarhus University Hospital, Aarhus, Denmark.; Department of Clinical Medicine, Aarhus University, Aarhus, Denmark.<br /><searchLink fieldCode="AU" term="%22Østergård+NM%22">Østergård NM</searchLink>; Centre for Rare Lung Diseases, Department of Respiratory Diseases and Allergy, Aarhus University Hospital, Aarhus, Denmark.<br /><searchLink fieldCode="AU" term="%22Morais+A%22">Morais A</searchLink>; Pulmonology Department, Portugal Faculty of Medicine, Centro Hospitalar São João, University of Porto, Porto, Portugal.; Instituto de Biologia Molecular e Celular, Instituto de Investigação e Inovação em Saúde, University of Porto, Porto, Portugal.<br /><searchLink fieldCode="AU" term="%22Tzouvelekis+A%22">Tzouvelekis A</searchLink>; Department of Respiratory Medicine, University of Patras, Patras, Greece.<br /><searchLink fieldCode="AU" term="%22Ryerson+CJ%22">Ryerson CJ</searchLink>; Department of Medicine and Centre for Heart Lung Innovation, University of British Columbia, Vancouver, BC, Canada.<br /><searchLink fieldCode="AU" term="%22Caro+F%22">Caro F</searchLink>; ILD Unit, 'Maria Ferrer' Hospital, Buenos Aires City, Argentina.<br /><searchLink fieldCode="AU" term="%22Buendia+I%22">Buendia I</searchLink>; Laboratory of Translational Research in Aging and Fibrosis Lung Disease, Instituto Nacional de Enfermedades Respiratorias Ismael Cosio Villegas, Mexico City, Mexico.<br /><searchLink fieldCode="AU" term="%22Magnusson+J%22">Magnusson J</searchLink>; Departement of Respiratory Medicine, Institute of Medicine, university of Gothenburg, Gothenburg, Sweden.<br /><searchLink fieldCode="AU" term="%22Lee+JS%22">Lee JS</searchLink>; Department of Medicine, University of Colorado Denver - Anschutz Medical Campus, Aurora, CO, USA.<br /><searchLink fieldCode="AU" term="%22Morisett+J%22">Morisett J</searchLink>; Département de Médecine, Centre Hospitalier de l'Université de Montréal, Montréal, Québec, Canada.<br /><searchLink fieldCode="AU" term="%22Oldham+JM%22">Oldham JM</searchLink>; Division of Pulmonary and Critical Care Medicine, University of Michigan, Ann Arbor, USA.<br /><searchLink fieldCode="AU" term="%22Troy+LK%22">Troy LK</searchLink>; Department of Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, Sydney, Australia.<br /><searchLink fieldCode="AU" term="%22Funke-Chambour+M%22">Funke-Chambour M</searchLink>; Division of Pulmonology, Department of Medicine, Lausanne University Hospital (CHUV), University of Lausanne, Lausanne, Switzerland.<br /><searchLink fieldCode="AU" term="%22Alberti+ML%22">Alberti ML</searchLink>; ILD Unit, 'Maria Ferrer' Hospital, Buenos Aires, Argentina.<br /><searchLink fieldCode="AU" term="%22Borie+R%22">Borie R</searchLink>; Service de Pneumologie A Hôpital Bichat, APHP, Université Paris Cité, Inserm, PHERE, Paris, 75018, France.<br /><searchLink fieldCode="AU" term="%22Walsh+SLF%22">Walsh SLF</searchLink>; National Heart and Lung Institute, Imperial College, London, UK.<br /><searchLink fieldCode="AU" term="%22Rajan+S%22">Rajan S</searchLink>; Department of Chest Medicine, Interstitial Lung Disease, Bombay Hospital Institute of Medical Sciences, and Bhatia Hospital, Mumbai, India.<br /><searchLink fieldCode="AU" term="%22Kondoh+Y%22">Kondoh Y</searchLink>; Department of Respiratory Medicine and Allergy, Tosei General Hospital, Seto, Japan.<br /><searchLink fieldCode="AU" term="%22Khor+YH%22">Khor YH</searchLink>; Respiratory Research@Alfred, School of Translational Medicine, Monash University, Melbourne, VIC, Australia.; Department of Respiratory and Sleep Medicine, Austin Health, Heidelberg, VIC, Australia.; Institute for Breathing and Sleep, Heidelberg, VIC, Australia.<br /><searchLink fieldCode="AU" term="%22Bendstrup+E%22">Bendstrup E</searchLink>; Centre for Rare Lung Diseases, Department of Respiratory Diseases and Allergy, Aarhus University Hospital, Aarhus, Denmark.; Department of Clinical Medicine, Aarhus University, Aarhus, Denmark.
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